Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 8, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 8, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 8, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/   Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:
Editor’s Pick: Don’t suffer in silence with joint pains after starting ADT (bn)
Topics Discussed
Only 6 months of Orgovyx with his salvage radiation — too short?;  aching joints on ADT are incapacitating him; he struggled to get proton beam but standard radiation therapy is looking better and better; public service message: get your flu shot!; PSA creeping up despite hormone therapy — should his docs be doing more?; put questions for the doc in writing; is a broader field of coverage better for salvage therapy?; feeling better after radiation fatigue, and battling melanoma, too; suspicious lymph node, but it’s dangerously close to the rectum
Chat Log
? · 6:32 PM
All imaging was negative so how do fiduciary makers help?
Jeff · 6:38 PM
https://www.cambridge.org/core/journals/journal-of-radiotherapy-in-practice/article/abs/role-of-fiducial-markers-in-the-assessment-of-prostate-bed-motion-in-postprostatectomy-patients-treated-with-volumetric-modulated-arc-therapy/AF625C517EF1EF486837975016056600
? · 6:38 PM
Good job Jerry getting educated so quickly. This group is here for you
John A · 6:55 PM
NSAID
Steve L · 6:59 PM
Is there a minimal PSA for a meaningful PSMA or Somatic Blood Biopsy?
John A · 7:16 PM
Dr Emmanuel Antonarakis
Steve Roux, MI · 7:40 PM
hey guys I gotta run my Tucker out for a walk. Good meeting all! See you next week!
? · 7:48 PM
Steve there’s a new tracer called curium available via trial only at this time for low psa values
Steve L · 8:13 PM
Rick,  What is your homeland?
Low/Intermediate Prostate Cancer Video Support Group, Oct 7, 2024

Low/Intermediate Prostate Cancer Video Support Group, Oct 7, 2024

Low/intermediate Prostate Cancer Video Support Group, Oct 7, 2024

 

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.

WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.

Join our other free and drop in groups:
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!

Editor’s Pick: A careful review of treatment options can help you avoid decision regret. (bj)

Topics Discussed

New prostate cancer diagnosis — how do I avoid decision regret?; prostate cancer treatment considerations — surgery vs radiation; using nomograms to predict likelihood of recurrence; PROMISE research study and germline DNA testing; decipher test; external beam radiation; cyber knife; somatic DNA testing; catheter; Gleason score; TULSA Pro; electroporation; kegel exercises; Prostate Cancer Research Institute (PCRI); RTIRE trial update; COVID and PSA spikes; High-Intensity Focused UltraSound (HIFU) and other focal treatment options; applying study results to your situation.

Chat Log

AnCan – rick
http://nomograms.mskcc.org/Prostate/index.aspx

George Toronto
I have a question for Michael

George Toronto
cancel my question please

Causley
Michael – this is Causley E.  I’m in the group with you.  I had surgery 2 years ago and can share my experiences with you when time permits.

Boykin Jordan (DC Metro)
PCRI – https://pcri.org/

Boykin Jordan (DC Metro)
PCRI (YouTube) – https://www.youtube.com/c/thepcri

AnCan – rick
PROMISE test – free trial by mail.  https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar

AnCan – rick
Dr. Ming Zhou https://profiles.mountsinai.org/ming-zhou

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 8, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 30, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 30, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/   Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:

Editor’s Pick: Do T3c men (seminal vesical invasion) need a 2nd line anti-androgen? (rd)

Topics Discussed

T3c Newbie more concerned about heart than remaining above the grass; KP Newbie struggles to get SoC; yet another young denovo Mx Newbie; 4 years out, denovo Mx Newbie is still with clueless uro; daro causes enormous fatigue and brain fog – maybe slight improvement on enz; GU med onc drops ARSI for T3c man and doesn’t replace it – should she? Dr, Larry Fong move to UDub; how do we keep the cancer unstable for men on long-term HT?

Chat Log

  • dennis carden

    sent: 5:49 PM

    ty!! definitely will! What time does it normally start?

  • Jim Marshall, Alexandria, VA

    sent: 5:49 PM

    Next Tuesday at 06:00pm ET. Jim

  • dennis carden

    sent: 5:50 PM

    ah excellent, ok! ty!!

  • Jim Marshall, Alexandria, VA

    sent: 5:50 PM

    1st & 3rd Mondays at 08:00pm ET, 2nd & 4th Tuesdays at 06:00pm ET.

  • dennis carden

    sent: 5:51 PM

    ah, will make a note of this, ty!!!

  • dennis carden

    sent: 5:53 PM

    no..and i’m 62 recently retired..so too early for medicare unfortunately..have aetna

  • John A

    sent: 5:55 PM

    Dr. Andrea Harzstark

  • John A

    sent: 5:58 PM

    Somatic mutations (as opposed to germline mutations)

  • Keith Lawrenz

    sent: 6:06 PM

    Zometa

  • Steve Roux, MI

    sent: 6:18 PM

    Love you guys but the Detroit Lions need my attention. LOL. Goodnight!

  • John A

    sent: 6:25 PM

    Regarding Len’s question…if necessary he could ditch RT in favor of chemo–??

  • Charlie Stokes

    sent: 6:45 PM

    charlie@retiredminimalist,com

  • Jim Marshall, Alexandria, VA

    sent: 6:46 PM

    Genitourinary Medical Oncologist.

  • Thuc

    sent: 6:48 PM

  • John A

    sent: 6:50 PM

  • Dr. Jeff

    sent: 7:15 PM

    Hope you like the story

  • Dr. Jeff

    sent: 7:21 PM

    sorry I have to go. Thanks.

  • Mike Wyn

    sent: 7:24 PM

    Thanks everyone. Good bye.

  • Thomas M

    sent: 7:25 PM

    Good night all. Thanks.

US Veterans PACT Act Coverage

US Veterans PACT Act Coverage

US Veterans PACT Act Coverage

Covered service for Vietnam era veterans means active service in:
  1. The Republic of Vietnam from Jan. 9, 1962, to May 7, 1975.
  2. Thailand at any U.S. or Royal Thai Base from Jan. 9, 1962, to June 30, 1976.
  3. Laos from Dec. 14, 1965, to Sept. 30, 1969,
  4. Cambodia at Mimot, Krek, or the Kampong Cham Province from April 16, 1962, to April 30, 1969.
  5. Korean Demilitarized Zone (DMZ) from April 1, 1968, to Aug. 31, 1971.
  6. Guam, American Samoa or territorial waters thereof from Jan. 9, 1962, to July 31, 1980.
  7. Johnston Atoll or on a ship that called at Johnston Atoll from Jan. 1, 1972, to Sept. 30, 1977.
  8. Air Force or Air Force Reserve veterans who regularly and repeatedly operated, maintained, or served aboard a C-123 aircraft know to have been used for spraying herbicides.

Qualifying service for Gulf War era veterans means you either:

  1. Performed active military service in any of the following countries during or after the Gulf War (Aug. 2, 1990): Bahrain, Iraq, Kuwait, Oman, Qatar, Saudi Arabia, Somalia or the United Arab Emirates. Or;
  2. Performed active military service in any of the following countries after the start of the Global War on Terrorism (Sept. 11, 2001): Afghanistan, Bahrain, Djibouti, Egypt, Iraq, Jordan, Kuwait, Lebanon, Oman, Qatar, Saudi Arabia, Somalia, Syria, United Arab Emirates, Uzbekistan or Yemen.

Nuclear and Radiation-Exposed Veterans

The PACT Act expanded veterans who are eligible for presumptive service connection for diseases which manifested as a result of radiation exposure by adding onsite participation in the following radiation-risk activities:

  1. Enewetak Atoll cleanup from Jan. 1, 1977, thru Dec. 31, 1980.
  2. Palomares, Spain, response effort from Jan. 17, 1966, thru March 31, 1967.
  3. Thule, Greenland, response effort from Jan. 21, 1968,  thru Sept. 25, 1968.

Here is a comprehensive list of Veterans VA has recognized as performing radiation-risk activities.

View the full list of cancers and disease that VA has acknowledged may be induced by radiation.

How to apply for VA Health Care & Its Expansion

In one of the largest-ever expansions of Veteran health care, all Veterans exposed to toxins and other hazards during military service—at home or abroad—are now eligible for VA health care.

At the direction of President Biden, VA is expanding health care eligibility to millions of Veterans, including all Veterans who served in the Vietnam War, the Gulf War, Iraq, Afghanistan or any other combat zone after 9/11, years earlier than called for by the PACT Act. These Veterans will be eligible to enroll directly in VA health care without first applying for VA benefits.

Additionally, Veterans who never deployed but were exposed to toxins or hazards while training or on active duty in the United States will also be eligible to enroll.

Veterans can apply for VA health care:

Health Eligibility Center
2957 Clairmont Rd., Suite 200
Atlanta, GA 30329

Capt. Jim Marshall USAF retd.   captjim@ancan.org

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 8, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 24, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 24, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
Doctor of Nursing, Wendy Garvin Mayo says, “Every patient should watch this!” View Clinical Trials 101: Common Myths and Facts – find it at https://ancan.org/webinar-clinical-trials-101-common-myths-and-facts/
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/   Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:

 

Editor’s Pick: Docs finally solve his post-prostatectomy urination ordeal: a surgical clip left in by mistake (bn)

Topics Discussed

Tips to prepare for his first visit to a GU oncologist; choosing between radoncs who disagree on hormone therapy; don’t wait beyond a 0.25 PSA to get a scan; scan first, zap later — not the reverse; his terrible post-prostatectomy urination problems finally explained: a plastic surgical clip got left in after the surgery; after his first Pluvicto round, less bone pain, but middle-of-the-night vomiting; reminder that not everyone needs 6 Pluvicto rounds; his Embr Wave works great — though it didn’t for the fellow AnCan’er who gave it to him; on a trial, he’ll be getting up-front PARP inhibitor along with the ADT for his BRCA mutation — what side effects can he expect?; “tremendous aches throughout my entire body” after second shot of Prolia, and docs saying it’s normal — maybe he doesn’t need the drug so often; good news from an MRI — suspected liver mets are a false alarm.

Chat Log

Michael McCabe · 6:22 PM
Hello everyone!
Jim Marshall, Alexandria, VA · 6:25 PM
Some offlabel info in case you are watching huuricanes and weather.  They is a weather model called Ventusky out of the Czech Republic.   It has been very accurate, invoke  www.ventusky.com     it is marvelous.   Jim Marshall
Julian – Houston · 6:28 PM
thank you!
Joel Blanchette, Reston, VA · 6:37 PM
Dr. Eblan is my Radiation Oncologist
? · 6:40 PM
PROMISE germline test https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
Joel Blanchette, Reston, VA · 6:58 PM
Dr. Josh Allen is also one of my GU Medical Oncologist
Jim Marshall, Alexandria, VA · 7:17 PM
ORGOVYX.
? · 7:18 PM
Orgovyx  (relugolix)
Steve Collins · 7:20 PM
stevecollinsteam@comcast.net
? · 7:23 PM
🎂 🎂🎂 – happy b-day, Bill
Julian – Houston · 7:25 PM
check out https://www.orgovyx.com/
? · 7:31 PM
I can wait to talk if time is short.
Richard Tolbert · 7:33 PM
Thanks everyone, I have to leave the meeting.
Michael McCabe · 7:50 PM
take care guys gotta go…
Gene Siciliano · 8:00 PM
I didn’t realize how long these groups go, and I have to leave. Thanks everyone.
Julian – Houston · 8:09 PM
Thanks again for the great discussion and conversation!
Len Sierra · 8:14 PM
https://embrlabs.com/products/embr-wave-2
AnCan – rick · 8:14 PM
Embr…. https://embrlabs.com/
Low/Intermediate Prostate Cancer Video Support Group, Oct 7, 2024

Low/Intermediate PCa video chat, Sep 23, 2024

Low/Intermediate PCa Video Chat, Sep 23, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.

WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.

Join our other free and drop in groups:
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!

Editor’s Pick: RTIRE trial — a patient perspective (bj)

Topics Discussed

Tulsa Procedure (Tulsa Pro) questions; patient experience with RTIRE trial; types of biopsies (transrectal and transperineal); ArteraAI prostate cancer test; radiation treatment considerations when urinary conditions exist; when do I belong in AnCan’s High Risk/Recurrent/Advance Group?; interpreting prostatic capsular abutment as a risk factor; positive feedback from the 2024 PRCI Men’s Health Conference attendees; AnCan Low/Intermediate Group success stories.

Chat Log

Boykin Jordan (DC Metro)
What is the name of the trial that Stuart is referring to?

AnCan – rick
electroporation + IMRT, Boykin. Let me see if I can find name

Dennis S
Thank you. I was hoping to respond to the previous speaker

AnCan – rick
RTIRE – https://pubmed.ncbi.nlm.nih.gov/39054460/

Jim Stewart   Reno, NV
good night all…grandkid duty calls!!!

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 8, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 16, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 16, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
Doctor of Nursing, Wendy Garvin Mayo says, “Every patient should watch this!” View Clinical Trials 101: Common Myths and Facts – find it at https://ancan.org/webinar-clinical-trials-101-common-myths-and-facts/
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/   Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:
Editor’s Pick: Germline BRCA2 Dx may impact treatment decisions (rd)
Topics Discussed
Younger high risk Gent with germline BRCA; is singlet enough for T3c (SVI); retrying daro; drug holiday endures for CHEK2 Gent; FINALLY starting HT 11 yrs after RP; HT effective; persevering w. Kwon… at least until next decision point; Testosterone discussion
Chat Log
Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 8, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 10, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 10, 2024

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
Did you miss Clinical Trials 101: Common Myths and Facts – find it at https://ancan.org/webinar-clinical-trials-101-common-myths-and-facts/
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/   Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:
Editor’s Pick: Sounding off on Medicare Advantage’s hidden risks (bn)
Topics Discussed
What exactly do FDG PET scans show?; the skinny on fatty acid metabolism; drug holidays make sense to us; why suddenly three SBRT sessions and not two?; if you want your scan explained, make an appointment with the radiologist who took it; drug holidays have worked for him — but require steady nerves; several ideas on cutting costs of Orgovyx and abi; many of us weigh in on the hidden risks of Medicare Advantage plans; one scenario where Medicare Advantage made sense;  some states are strengthening Medicare regulations to cap patient costs for oral drugs; saving on abi doesn’t require a visit to India; doublet vs triplet demands a GU oncologist’s expertise; PTEN — a new reason not to skip sequencing; he’s getting SPECT scans along with his Pluvicto treatments; a GU medonc might decide you don’t need all 6 rounds of Pluvicto if you’re doing well with fewer; Pluvicto might work better if you don’t bypass chemo; he’s recurrent — but maybe better off in our Low/Intermediate meeting; “TallAllen” Edel can help sort out treatment options in Southern California.
Chat Log
Steve L  · 6:21 PM
Perhaps I do want some time or some information here.  I recently requested a second opinion from another Fred Hutch provider and was turned down as a matter of policy.   They don’t provide second opinions to other Fred Hutch providers.  I would prefer a provider who provides more explanation and reasoning.  Who are the recommended providers in Seattle both inside and outside Fred Hutch.
AnCan – rick · 6:24 PM
Very hard to get a 2nd opinion within the same institution EXCEPT Kaiser, We can discuss other alternatives.
Dr. Jeff · 6:25 PM
Fatty acids are converted to acetyl CoA, which can directly enter the Krebs cycle and subsequently oxidative phosphorylation. Each fatty acid molecule produces many acetyl CoA molecules
Steve L · 6:32 PM
My insurance covered a Bone scan and a CT even with my PSA undetectable. I mentioned to my Doc that I had some recent bone pain in my hip.
John A · 6:36 PM
thanks Steve
Len Sierra · 6:39 PM
And I have had 2 CT CAP scans approved by insurance over the past couple of years while my PSA was undetectable.  I cited the ARCHES trial as the logic for doing it.
Unknown · 6:53 PM
I’d love to have a Medicare discussion at one of our meetings. I’m eligible next year and am a bit nervous about the drug coverage I should get.
AnCan Barniskis Room · 6:55 PM
abiraterone low dose with food is much cheaper and works just as well. Check GoodRX and it is free and very inexpensive.
AnCan Barniskis Room · 6:57 PM
They should be called Medicare Disavantage plan. They are perfect as long as you don’t use them.
TonyFig · 6:57 PM
There was an AnCan Medicare webinar 11/1/23  https://ancan.org/?s=medicare
Michael McCabe · 7:01 PM
I still can get under plan F because i had Medicare before 2020.
AnCan – rick · 7:02 PM
Sumitovant Pharmaceuticals
AnCan – rick · 7:02 PM
They make Orgovyx
AnCan – rick · 7:11 PM
Janssen is no longer; they’ve been folded back into JnJ
Don Rogers · 7:14 PM
Always ask any insurance agent who wants you on an advantage plan what his commission will be each year.
AnCan Barniskis Room · 7:15 PM
Brian, How many mets were seen?
John A · 7:15 PM
it was 2
Alan Babcock · 7:20 PM
I have another meeting I must go to.
Jeremy · 7:21 PM
Thankyou lads but need to run my son to baseball practice.
Don Rogers · 7:23 PM
Scriptco.com-abiraterone has been $80 per month (120-250 mg) for the last 2 yrs. $140 per years membership fee
Dr. Jeff · 7:23 PM
Scripto could save me a trip to India
Len Sierra · 7:24 PM
Yes, Dr. Jeff, and much safer!
Unknown · 7:25 PM
Costco does low cost Abbi
Steve Roux, MI · 7:27 PM
Thanks Guys! Good stuff in here!
Peter M · 7:58 PM
your place in Venice?
Brian Haack – Eagle, ID · 8:00 PM
Gotta go make some dinner. Thx for another great discussion!
Peter M · 8:03 PM
Good night gents!
AnCan – rick · 8:09 PM
Artera AI test – FDA approved
Julian – Houston · 8:11 PM
https://artera.ai/arteraai-prostate-cancer-test
Steve Roux, MI · 8:24 PM
I gotta run guys – see you next week!
Low/Intermediate Prostate Cancer Video Support Group, Oct 7, 2024

Low/Intermediate Video Chat, Sept. 9, 2024

Low/IntermediateVideo Chat, Sept. 9, 2024

 

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.

WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.

Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/; Veterans Healthcare Navigation…1st & 3rd Tuesdays @ 8.00 pm Eastern https://ancan.org/veterans/

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 @or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime!
You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/
Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Editor’s pick: The use of different labs to measure PSA, can lead to inconsistent results. CE

Special Note: Note: Rick Davis and Alexa Jett enjoyed being “live” with Dr. Mark in person for this meeting, also Andrew makes an appearance.

Topics Discussed: High PSA with biopsy; research of treatment protocols; active surveillance; MRI guided biopsy; PI-RADS 4&5 lesions; positive cores not showing up on MRI; anxiety with regards to active surveillance and treatment; elevated PSA – standing alone does not necessitate biopsy; use the same lab for better consistency in lab results; change in tumor size; diet; inflammation; IRE clinical trials; focal treatment; radical prostatectomy; cardiovascular risk factors and pacemakers; risk of infection while wearing a catheter; Decipher score; PCRI Conference; Centers of Excellence; PET scans; potential of cancer spreading outside of the prostate; abnormalities in bladder and rectal wall; SBRT; ProAct adjustable continence therapy; hyperbaric oxygen therapy and its application to prostate cancer treatment; Prostox score; reminder of the other groups such as Men Speaking Freely.

Chat

Eric M. Atlanta
Theranostics I believe is the name?

John A
Igancio, there are several ways we deal with scanxiety. Behavior: exercise, other activities ie yoga, attending groups and sharing. Cognition: distraction, cognitive therapy techniques, mindfulness, meditation. Medication: as needed short term antianxiety meds for panicky anxiety or sleep, or antidepressants which block panicky anxiety. Therapy: behavioral, psychotherapy. Time can lessen it though as rick said even us oldtimers get it, but it’s not so fresh and harsh.

Ignacio
Thank you John! Actually, I do not believe I have “scananxiety” as much as “results anxiety”, not only from scans but also from PSA tests. However, time and experience have helped quite a bit. I have accepted my situation and am willing to take actioin if needed!

Ignacio
Thank you!

John A
MedGasRes. 2018 Oct-Dec; 8(4); 167-171. doi:10.4103/2045-9912.248268 Further application of hyperbaric oxygen in prostate cancer. Lu et al

Gregg – Metro Detroit
Adios guys – gotta go!

John A
clarify spelling/pronunciation: SpaceOAR hydrogel is one brand of the 3 Mark mentioned

Ignacio

Thank you all! Gonna catch the rest of the 9ers…

 

 

Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 8, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 2, 2024

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 2, 2024

AnCan’s working on Labor Day!!!!

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
Did you miss Clinical Trials 101: Common Myths and Facts – find it at https://ancan.org/webinar-clinical-trials-101-common-myths-and-facts/
If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/   Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:

Editors’s Pick: Staying on an uninterrupted ARSI discussed thrice this week – do you risk morphing? Plus AnCan’s a broken record… get a GU med onc! (rd)

Topics Discussed

Disease returns after gold standard treatment, and a GU med onc is called for; younger Gent with de novo Mx hears it could be time for a GU med onc; as predicted, PCa recurs after cryoablation 10 years ago; 6 months of enz is NOT extended use; after 4 years of abi, time for break; after 4 years of daro, time for a break?

Chat Log
  • AnCan – rick

    sent: 5:38 PM

    https://www.uclahealth.org/providers/matthew-rettig

  • Allen C, NJ

    sent: 5:39 PM

    no audio, anyone else

  • AnCan – rick

    sent: 5:39 PM

    we are all good

  • AnCan – rick

    sent: 5:41 PM

    https://www.uclahealth.org/providers/amar-kishan

  • Jim Marshall, Alexandria, VA

    sent: 5:51 PM

    Brian: Diagnosed with the same as you have, same Lymph Nodes – 2017 – did ADT + Abiraterone for 5 years, treatment holiday for 2 years but 7(3+4) , will return to treatment in the future. Jim Marshall.

  • Allen C, NJ

    sent: 6:08 PM

    lost my audio again

  • Allen C, NJ

    sent: 6:08 PM

    have video but no audio

  • Allen C, NJ

    sent: 6:09 PM

    anyone else having problems

  • Jim Marshall, Alexandria, VA

    sent: 6:10 PM

    NO AUDIO PROBLEMS. MIGHT WANT TO TURN OFF VIDEO TO BETTER UTILITIZE BANDWIDTH. JIM

  • Allen C, NJ

    sent: 6:11 PM

    will try phone call what is no?

  • Jim Marshall, Alexandria, VA

    sent: 6:12 PM

    To phone in 646-749-3129. 225-583-973

  • AnCan – rick

    sent: 6:27 PM

    PROMISE https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar

  • Dr. Jeff

    sent: 7:03 PM

    sorry guys but I have to go

  • dan: alexandria, virginia

    sent: 7:10 PM

    ditto… sorry I have to go