Learn more about Renal Medullary Cancer by listening to MD Anderson’s Dr. Pavlos Msaouel here.
And watch Lead Moderator, Ritchie Johnson on GMA3 in June 2021
AnCan and The Chris “CJ” Johnson RMC Foundation come together to provide support for the Renal Medullary Carcinoma (‘RMC’) community by hosting video chat, peer moderated virtual groups. RMC is a rare type of kidney cancer associated with Sickle Cell Trait (SCT) or Sickle Cell Disease (SCD).
The Chris “CJ” Johnson Foundation Inc., established in 2013 by Ritchie Johnson in memory of her son, Chris, who passed away in 2012. We are a 501(c)3 non-profit organization based in Sugar Land, Texas. Our primary focus is to identify individuals with sickle hemoglobinopathies such as sickle cell trait (SCT), who may be at risk for renal medullary carcinoma (RMC), a rare and aggressive form of kidney cancer. We offer programs that heighten awareness, educate and promote advocacy to increase public understanding, and ultimately a cure for RMC. Additionally, the foundation donates annually to University of Texas MD Anderson Cancer Center located in Houston, Texas to advance RMC research.
Our mission is to be a global community dedicated to creating awareness and alleviating healthcare disparities for individuals diagnosed with RMC through advocacy, education and research. Ultimately, all persons affected with RMC will have equal access to institutions that are leaders in cutting-edge research.
Our vision is to eliminate healthcare disparities and find a cure for renal medullary carcinoma (RMC).
To read more about our US and Global partner, The Chris “CJ” Johnson RMC Foundation and their Founder, Ritchie Johnson, please visit their website and their Facebook page.
To read more about our UK partner, The Ricky Casey Trust and their Founder, Nicola Forshaw Casey , please visit theirwebsite and their Facebook page.
Our sessions may be recorded and posted to AnCan’s YouTube Channel, shared on social media and elsewhere.
The video chat virtual group meets on 2nd Tuesdays of the month at 8 pm Eastern, 7 pm Central, 6 pm Mountain and 5 pm Pacific in the AnCan Schmier Room. You can join online or by phone at +1 646 749 3127 Access # 656-182-845. See the Joining Instructions Panel above right for more information and other Country Access codes.
All of our groups are FREE...
and you can drop in at any time!
Upcoming RMC Groups
Renal Medullary Carcinoma
Our moderators are patients and caregivers who intimately understand the struggles associated with RMC. We aspire to come together to give strength, bring encouragement, and provide support to patients and caregivers from all over the world. This is a peer-moderated group. As such, we cannot provide medical advice; we can speak about our own experiences with RMC. We are here for you, and look forward to meeting you! Moderator bios are found below.
Meet our moderators
Related Blog posts
Webinar: Is Pre-treatment Active Surveillance for Prostate Cancer Safe?
Join us for this 'ripped from the headlines' webinar featuring a hot topic in the Active Surveillance community. When world famous physician-scientist, leader of The Human Genome Project and former NIH Chief, Dr. Francis Collins, suddenly needs treatment for his...
Solo Arts Heal with Beth Horner
You’ll love our March guest, Beth Horner! Noted for her vivacious stage presence, comic sensibility and warm, energetic style, Storyteller Beth possesses a repertoire of stories that has been called “heartfelt, articulate and truthful.”
Patient Highlights from the 2024 ASCO GU conference
Patient Highlights from the 2024 ASCO GU conference – hear our Brains Trust present the posters and presentations they think are most relevant to you.
Resources
Our services are free, but if you benefit then please consider a tax deductible donation. You can also support us by signing up to Amazon Smile and nominating Answer Cancer Foundation at no cost to you.
AnCan does not provide medical advice – we do empower you to manage your own care.
Our calls are recorded and posted on this website for later listening; please note we are a peer-to-peer support group and not subject to HIPAA compliance.
