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AnCan Inherited Mutations Virtual Support Group.

Many years ago AnCan and the Burhans Family found each other. Bill, a yeast geneticist at Roswell Park Comprehensive Cancer Center in Buffalo, NY discovered rick davis in the Inspire forum well before AnCan was formed.

“Buffalo Will” lived with recurrent and aggressive prostate cancer driven by a BRCA2 mutation. He was amongst the first to benefit from a PARP-Inhibitor; Bill just happened to have it as a research drug lying around his lab, and his tumor board allowed him to try it 6 years before FDA approval. Bill got more than 2 years from this treatment.

AnCan had the great honor to navigate Bill until he died in 2019. We have also supported his sister, who lives with BRCA driven cancers, and been supported by Bill’s brother and sister-in-law, Buzz and Chris. We have seen how an inherited mutation can impact families on many levels and vowed to minimize that in Bill’s honor.

While it’s taken a while, AnCan is now proud to start a quarterly Inherited Mutations Group. Two or three years back, AnCan initiated an email list, the BRCABrothers. That naturally evolved into this group that includes men and women with inherited mutations of various types – HRR mutations like BRCA, DDR and Lynch Syndrome mutations, TGR mutations like LiFraumeni and even sickle cell trait that afflicts many of AnCan’s Renal Medullary Carcinoma community.

Our goal is to support all those impacted by inherited mutations, whether known or not – Survivors, Previvors and Care Partner Families. The group is disease and mutation agnostic. It addresses the issues that arise while living with a mutation that can be passed from generation to generation.

Our Moderators are Peers Joel Axler and Bill Harris, Previvor Sydney Ireland and Care Partner, Gary Ireland.

This group meets on the 2nd Thursday of each Quarter at 8pm Eastern in the AnCan Schmier Room

AnCan Foundation is honored to collaborate with UCSF Center for BRCA Research in supporting your community.

In memory of Bill Burhans, PhD, Davie Isaacs, MD and Nancy Ireland.

Instructions for Joining a Group

Click HERE for instructions on joining a group.

Click HERE to sign up for email reminders for this, and other groups we offer.

All of our groups are FREE...

and you can drop in at any time!

Quick Links

Click HERE for a complete list of resources

Upcoming Inherited Mutations Groups

Inherited Mutations Support

With this national online support group, you will be able to join a video chat with others who are affected by various inherited mutations and their caregivers: if you don’t feel comfortable with video, you will be able to call-in also, but we do ask that we can put your first name in the room so we know who is talking.

The virtual group meets Quarterly on the 2nd Thursday @ 8pm Eastern in the AnCan Schmier Room. You can join online or by phone at +1 646 749 3127 Access # 656-182-845. See the Joining Instructions Panel above right for more information and other Country Access codes. Our groups are free & drop-in – no registration required.

Jul

Inherited Mutations Virtual Support Group

8:00 pm

Oct

Inherited Mutations Virtual Support Group

8:00 pm

Meet our moderators

Joel Axler

Moderator

Joel is a germline BRCA peer... with the t-shirt to prove it.

Bill Harris

Moderator

BRCA2 Peer... who REALLY has the T-shirt to prove it!!!!

Gary Ireland

Moderator

A family experience.... inherited mutations and active surveillance prostate cancer

Sydney Ireland

Moderator

BRCA2 Previvor, first female Eagle Scout and former White House staffer

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Resources

Germline Somatic Patient Guide for Prostate Cancer ACCC & PCF 1225

UCSF Center for BRCA Research

Hereditary Cancer Clinic | UCSF Health

Psychosocial Challenges of Living with a Hereditary Cancer Risk – UCSF

Li-Fraumeni Syndrome: A Specific Hereditary Cancer Syndrome – UCSF

Implications of Genetic Testing on Radiation Therapy Decisions International Journal of Radiation Oncology

FORCE

Our services are free, but if you benefit then please consider a tax deductible donation.

AnCan does not provide medical advice – we do empower you to manage your own care.

Our calls are recorded and posted on this website for later listening; please note we are a peer-to-peer support group and not subject to HIPAA compliance.