AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: 1) SUV may be key to advanced treatment 2) 7 lesions really high volume?
Topics Discussed
7 metastases should be considered high volume and may indicate triplet protocol including chemotherapy; low SUV may indicate that lesion is NOT metastatic; old GU MO and new GU MO disagree on PSMA reading and treatment; managing two doctors: does he need a PSMA scan with a PSA of 0.12?; fatigue and brain fog in younger Gent maty call for switch in HT; switching docs at Fred Hutch, UW; starting IHT, but how best to monitor; first appointment with Dr. E coming up
Chat… (shortest ever in this group!!!)
Bill Lawler sent: 5:16 PM
Left Iliac bone
AnCan – Rick sent: 5:19 PM
877 582 7011 GoTo Assistance
If you need to dial in 646 749 3129 then 222 583 973
AnCan – Rick sent: 5:32 PM
dexamethasone in place of pred.
AnCan–John A sent: 5:34 PM
Lorente, Omlin, et.al. Tumour responses following a steroid switch from prednisone to dexamethasone in castration-resistant prostate cancer patients progressing on abiraterone. BrJCancer, 2014 Oct14 doi;10.1038/bjc.2014.531
Active Surveillance Prostate Cancer Video Chat, June 10th, 2026
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, Telix, and Foundation Medicine.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/. Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/.
Andy Douglas, Florida 8:11 PM
Jonathan Epstein, MD
Andy Douglas, Florida 8:11 PM
Advanced Uropathology of New York 700 Stewart Ave, Suite 101 Garden City, NY 11530 Hours: Monday-Friday 9:00AM – 6:00PM P: 516-760-2037 F: 516-200-3899 jepstein@imppllc.com
Ray E 8:12 PM
Ming Zhou Md
Ray E 8:12 PM
https://profiles.mountsinai.org/ming-zhou
Andy Douglas, Florida 8:23 PM
Shaw Zhou, MD St Petersburg 38th Avenue 5747 38th Ave N, St. Petersburg, Florida 33710 Phone (727) 381-8667
Ed Cirimele, Ca 8:39 PM
Ed Cirimele: jocimo@gmail.com
Eric 8:41 PM
Gotta head back to it. Thanks!
Andy Douglas, Florida 8:43 PM
https://www.healthcare6.com/physician/san-rafael-ca/joseph-lee-2179445.html
AnCan – Rick 8:45 PM
Here’s the KP link Ed…. https://mydoctor.kaiserpermanente.org/ncal/providers/jhlee
Andy Douglas, Florida 8:49 PM
PSA density is a measure that relates the level of prostate-specific antigen (PSA) in the blood to the size of the prostate gland, calculated by dividing the PSA value by the prostate volume. A higher PSA density can indicate a greater risk of prostate cancer, especially if it is above 0.15 ng/mL/cc.
AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Two (2) younger Newbies both need better QBs… AND we have another hydrocele
Topics Discussed
Agent Orange Newbie doing well on RT and doublet; younger Newbie with possible variant PrCa needs solid GU med onc; 2nd younger Newbie also needs to upgrade his MO – is he stuck in doublet?; scans suggest Jevtana not holding disease – pasritamig trial next?; debulking to start with IMRT; does coffee creamer interfere with treatment?; hydrocele not the first time for AnCan; nocturia and RT proctitis cause problems; Orgovyx coming soon; Dr. E in his future
John, thank you for the recommendation! And yes, I can get to UofC easily! I just retired…..lots of free time!
Don Rogers sent: 4:08 PM
Hi John, Nice to hear you are doing well. Everything here in Boca Raton is also wonderful. I am doing great, PSA still undetectible. Looking forward to going on a Disney Cruise with the entire family in early July. Mary and I then go on a 10 day camping trip to Yellowstone. Let me what you find out at your 3 month visit with your oncologist. My best always, Don
Len Sierra sent: 4:21 PM
EZH2 inhibitors: Mevrometostat (PF-06821497): An investigational selective inhibitor of enhancer of zeste homolog 2 (EZH2) being studied in combination with XTANDI for mCRPC. Several Phase 3 trials (MEVPRO-1 and MEVPRO-2) are ongoing.
Bob McHugh sent: 4:49 PM
Lomotil or Immodium?
Jim Ekrut, Ft. Worth, TX sent: 4:51 PM
Imodium doesn’t seem to help much. I’m hoping the gastroenterologist will prescribe Lomotil, but he initially hesitated because it’s a controlled substance.
Jim Marshall, Vet Sup Grp. Moderator sent: 4:56 PM
The LATITUDE Trial, 2017, had HS Abi + 10mg. and a few years later HS dropped to 5mg although CR stayed at 10mg. Jim M
Jim Ekrut, Ft. Worth, TX sent: 5:04 PM
Thanks so much for a helpful session! Until next time.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Hypertension is presumptive for Vietnam-era vets. (bj)
Topics Discussed Monitor high blood pressure for a VA disability claim; hypertension is presumptive for Vietnam Era Vets; develop a claims strategy to avoid complexity; changes in urinary incontinence rates; why you should enroll in VA Healthcare; new prostate cancer diagnosis – high risk.
Chat
AnCan – Boykin sent a chat · 8:14 PM
veterans@ancan.org
Bob Schwartz, USN, Venice, FL. sent a chat · 8:58 PM
Good mtg., have to go, see everyone next mtg.,
Leon Roberts sent a chat · 9:02 PM
Hi all so many problems getting in, still no audio or camera. Would like to file for loss o creatie organ that I just heard. Got a phone nr I can call in?
AnCan – Boykin sent a chat · 9:04 PM
@Leon – give me a second
Bruce Schrimpf sent a chat · 9:32 PM
Good seeing all of you! Have a great week!
AnCan – Boykin sent a chat · 9:33 PM
veterans@ancan.org
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Using Artificial Intelligence (AI) to understand medical information. (bj)
Topics Discussed New diagnosis with history of BPH and Gleason Score of 3+3; MRI false positive, but fusion biopsy detected PCa; health insurance company don’t want to cover treatment for BPH when PCa present; life insurance companies have turned away men with a Gleason Score of 3 +3; Gleason Score 3 +3 is now Gleason Grade Group 1; VA electronic health records not compatible with other electronic health records makes sharing results across health systems difficult; importance of sharing your all of your healthcare information with all of your doctors, let them decide what is important; chose open prostatectomy because penile implant ruled out robotic prostatectomy; active surveillance contemplating active treatment because PSA rose from 7 to 10 over the past year; how do I advocate for myself post-prostatectomy so that my recovery goes as smooth as possible; advice for dealing with radiation proctitis; preparing for a prostatectomy and concerns about Erectile Dysfunction (ED); using Artificial Intelligence (AI) to understand medical information.
AnCan – Rick sent a chat · 8:12 PM
MRI 2nd opinions https://ancan.org/2nd-opinions-for-mris/
RonnieKeys (Sharon,Pa) sent a chat · 8:25 PM
ronniekeys@gmail.com
Larry in AK sent a chat · 8:44 PM
A cheap laptop can be had for ‘way less than $1,000 – maybe $500 on sale. Optical disk (CD/DVD) reader for under $50, sometimes $20 on sale.
AnCan – Rick sent a chat · 8:54 PM
ECE is not automatically T3
Larry in AK sent a chat · 9:07 PM
A well-exercised and well-nourished body withstands the rigors of treatment (ADT, radiation, surgery, whtever) better much better.
Larry in AK sent a chat · 9:14 PM
Sorry, everyone. I gotta go
AnCan – Rick sent a chat · 9:40 PM
You need to run the MSKCC nomograms -http://nomograms.mskcc.org/Prostate/index.aspx
David in Portland, OR sent a chat · 9:52 PM
Add this to all AI questions: When answering, rely only on medically and scientifically credible sources, and provide links to your sources. Double check the accuracy of the links before including them, because you’ve been making a lot of errors lately in inserting incorrect links. Use only PubMed.gov pages as the clickable links in the citations, rather than pasting raw URLs. Avoid weaker secondary sources. Give preference to studies published in the past seven years, especially any meta-analyses and review articles published in well-respected medical journals, but also include any older studies of notable importance. Omit all images.
Ignacio – San Jose sent a chat · 9:53 PM
Thank you!
AnCan – Rick sent a chat · 9:56 PM
Has he had germline testing?
RonnieKeys (Sharon,Pa) sent a chat · 9:57 PM
It’s 9:53 here, and I have an early start tomorrow. Thanks for all your support and interesting discussions!
Jim Ekrut, Ft. Worth TX sent a chat · 10:05 PM
Gentlemen, thanks so much for an excellent and helpful session. I have sent a message to my gastroenterologist about hyperbaric oxygen treatIment. I appreciate your help.
AnCan – Rick sent a chat · 10:08 PM
Paul Maroni Denver, colorado Anschutz https://www.uchealth.org/provider/paul-maroni-md
AnCan – Rick sent a chat · 10:12 PM
Brian Helfand https://www.northshore.org/apps/findadoctor/physicians/brian-t.-helfand
Ignacio – San Jose sent a chat · 10:12 PM
Thank you all for the support and encouragement. Have a good evening.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: What happens when your doctor won’t support your VA disability claim? (bj)
Topics Discussed VA primary care doctor reluctant to make referral to oncology or community care; establishing service connection for Chronic Kidney Disease (CKD); coordinating your final affairs with your VA social care worker; decision process for establishing service connection when multiple causes exist; what happens when your doctor won’t support your VA disability claim; positive VA experience — medicare billing issue resolved; lessons learned on health insurance copay; qualifying for VA Healthcare with TERA; clarification on purpose of C&P exam in the disability claims process; explanation of spouse pension benefits for deceased veteran spouse.
Chat
Bruce Schrimpf sent a chat · 8:16 PM
Sounds like a potential conflict of professional interest.
Leon Roberts sent a chat · 8:20 PM
Hi Jim, still having a problem getting audio and camera. Did you receive the requested info from me?
Leon Roberts sent a chat · 8:51 PM
at wits end why I can’t get sound and site. Leon
Eric Baker – Lafayette sent a chat · 8:53 PM
Leon, do you have the ability to call in? Connect With A Phone These are all domestic toll calls +1 646 749 3129 (US) Access Code: 656-182-845 (Schmier Room)
Leon Roberts sent a chat · 8:53 PM
Keeps telling me GoTo needs to access mic and cam, I’m lost. Leon
Per Ankh sent a chat · 9:26 PM
I have to run. Good night everyone. Great sharing with you.
Leon Roberts sent a chat · 9:44 PM
Thanks all, I have to dismiss myself this evening. Appreciate the fellowship. Leon
Bruce Schrimpf sent a chat · 9:52 PM
Have a good night all!
