Active Surveillance Prostate Cancer Video Chat, May 27th, 2026
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
Eric- Atlanta 8:18 PM
2nd Opinin for Biopsy links: https://ancan.org/prostate-cancer-and-gu-pathology-2nd-opinions/
Eric- Atlanta 8:22 PM
The Active Surveillor: https://howardwolinsky.substack.com
Eric- Atlanta 8:32 PM
New Prostate Cancer Guidelines and ASPI Pathway: https://ancan.org/new-prostate-cancer-guidelines-and-aspi-pathway/
Eric- Atlanta 8:39 PM
Ancan Solo Arts Heal: https://ancan.org/solo-arts-heal/ Tonight at 10:30EST
AnCan – Rick 8:52 PM
Here’s another more direct link if you’d like to listen to Laurie and myself. https://themarsh.org/soloartsheal/
Eric- Atlanta 8:53 PM
‘Threading the Clinical Needle’ on Gleason 6/GG1: A Matter of Language and Math: https://howardwolinsky.substack.com/p/threading-the-clinical-needle-on
Joe C 9:14 PM
Thanks, guys. Appreciate the discussion, information and all the good advice. I have to drop.
AnCan – Rick 9:25 PM
Cipro is the standard GU antibiotic
AnCan – Rick 9:28 PM
Gotta run over for the Solo Arts Heal tech check. Please join us at 7.30 pm Pacific https://themarsh.org/soloartsheal/ Good night, Gents…
AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: LDR recurrence requires HDR follow-up. Low meeting demand leads to many open-mic Qs.
Topics Discussed
Focal HIFU therapy recurs as 3+3 in gland – which group to attend?; our military chaplain is stable but needs VA help; Frank very happy with AnCan’s GU med onc match; treating LDR brachy recurrence with HDR and SBRT; seeking next line of systemic treatment that’s not chemo or PSMA driven; spot RT for skull Mx; low tech swamp cooler hangs around the neck; old ivermectin/fenbendazole chestnut booted; 6x Pluvicto successfully completed; strategy for next chemo session; oxybutynin for hot flashes; E2 patch does not cause leg DVT; germline Gent questions need for counseling
Chat
Bob Schwartz, USN, Venice, FL sent: 3:45 PM
Frank, you help as much as you get help. Don’t ever doubt how much we appreciate you.
AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Many tasty tips this week… our fave – clinical trials DON’T cover all costs
Topics Discussed
Liquid biopsies and biomarkers; Bispecific T-Cell Engagers (BITE) for TP53+RB1 Gent; is it time to test for small cell? – Provider doesn’t think so; dry mouth from denosumab/Xgeva – not quite, that’s ONJ – great dental health discussion; Reel Recovery takes his mind off seeking HT break; germline negative, but should T3b Gent stop HT after 9 months; the 2 Davids discuss trials managing oligoMx lightly; clinical trials often don’t cover all costs; our first Long Game man goes onto mono daro with 6 months NCI grace; Dr. E orders more tests to guide HT treatment – and suggests Good Patch for hot flashes; don’t worry yet about ‘morphing’ tests; PPI can elevate chromogranin; hypersensitivity to docetaxel demands dose adjustment; better GU doc on Florida Gulf Coast
Chat
Larry in AK sent: 5:13 PM
I will seek circulating tumor cell analysis searching for evolutionary changes in my cancer over time. Still in its infancy as a tool
Danny Lankford (Minnesota) sent: 5:29 PM
My wife and I are using Open Evidence. https://www.openevidence.com/ but you need an NPI (provider ID) to access it. It’s been amazing to help me along on my journey.
AnCan – Rick sent: 5:44 PM
oxybutynin -ditropan
Alfredo in Wimberley sent: 5:44 PM
OXYBUTYNIN (ox i BYOO ti nin) treats symptoms of an overactive bladder, such as loss of bladder control or frequent need to urinate. It works by relaxing muscles in the bladder. It belongs to a group of medications called antispasmodics. This medicine may be used for other purposes; ask your health care provider or pharmacist if you have questions. COMMON BRAND NAME(S): Ditropan XL
Danny Lankford (Minnesota) sent: 5:45 PM
same here on the venlafaxine 37.5mg for me and my mouth is dry as can be
I’m taking 2.5 mg of oxybutynin once a day, in the evening when I take my Apalutamide. Still get warm and sweat, but has taken the intense feeling of a hot flash away.
Another good mtg., have to go, see everyone next week.
Jann Nielsen sent: 6:35 PM
Great meeting. Have to go.
Luther sent: 6:43 PM
Good thing I’m seeing her on Wed. then
Frank Ciambra sent: 6:49 PM
I didnt hear a thing larry
Larry in AK sent: 6:51 PM
There are organizations that re-distribute prescription drugs. It is illegal, but some prosecutors shy away from prosecuting humanitarian bending” of the law.
Alfredo in Wimberley sent: 6:51 PM
I have to leave, best regards to one one and all!
Matt sent: 7:01 PM
evening fella! I’ll follow up. Cheers 😉
Bruce Schrimpf sent: 7:03 PM
Thanks for the information about Dr. Stish writing an article! I have had a long day and will call it a night.
Active Surveillance Prostate Cancer Video Chat, May 13th, 2026
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
Eric- Atlanta 8:29 PM
BPH ASPI video Dr. Casey Dauw: https://aspatients.org/meeting/the-abcs-of-bph/
Eric- Atlanta 8:30 PM
Ancan Special Presentation: It Ain’t Your Grandpa’s BPH: https://ancan.org/special-presentation-it-aint-your-grandpas-bph/
Andy Douglas, FL 8:40 PM
Standard Medicare Coverage Criteria (all must be met) Medicare covers Aquablation once per patient when: prostate volume is 30–150 cc confirmed by transrectal ultrasound (TRUS), IPSS score greater than or equal to 12, maximum urinary flow rate less than or equal to15 mL/s with voided volume greater than 125 cc, and there has been failure or intolerance of at least 3 months of conventional therapy (such as alpha-blockers or 5-ARIs). The procedure must use an FDA-approved device
Rob Wood 8:42 PM
Rob Wood – Maine– aquablation questions to Mike Williams woodsinmaine@gmail.com
BJ Kap 8:59 PM
thanks guys great discussion have a good night
Eric- Atlanta 9:10 PM
Benign Prostatic Hypertrophy (BPH) Morgan McDowell, DNP, APRN, WHNP-BC, AGPCNP-BC: https://grandroundsinurology.com/benign-prostatic-hypertrophy-bph/?_hsmi=381422106&fbclid=IwZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHicfwgnaFklEBjKzeyZafooENJ-llAD_2V-GZKdLpAKoPZvT4jXRibNOyO-y_aem_x0ohp35PKH7dhukcwFD2Tg
Mike Thompson 9:15 PM
Thanks everyone- great discussion tonight. Good night.
AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Configuring your own treatment path for slowly recurring oligo-metastasis brings us to gynecomastia.
Topics Discussed
Younger Newbie asks what else after triplet protocol; older Newbie Vet with low grade recurrence and sickle cell trait; another triplet Newbie needs a GU MO after Cleveland Clinic fails him; salvage RT with no HT; capivasertib added to GUNS trial protocol; can we figure how to get SBRT + a little Pluvicto?; good discussion on gynecomastia; fatigue begs the Q… how long on HT??; Dr Wassersug delivers his E2 pitch; 2nd opinion confirms doublet but what’s the right salvage RT field.
Chat
AnCan – Rick sent: 3:03 PM
GoTo Support 877 582 701
To call in by phone dial 646 749 3129 then 222-583-973
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: New prostate cancer (PCa) diagnosis with potential Lynch Syndrome in the family. (bj)
Topics Discussed New diagnosis with potential Lynch Syndrome in the family; exploring genetic testing as well as somatic vs germline testing; be careful about interpreting test results as a guarantee; two types of prostate cancer bioposies—transperineal carries less infection risk; primer on different radiation treatments for prostate cancer; focal treatment carries high recurrence risk with Gleason Score 4+3 or higher; cyber knife, nano knife, heat therapy are forms of focal treatment; things to expect three weeks after a radical prostatectomy; dealing with anxiety following a radical prostatectomy or PSA changes following treatment; Artera AI as a predictor of biochemical recurrence.
Chat
Stuart sent a chat · 7:50 PM
Dr. Ming Zhou Mount Sinai Health System Department of Pathology, Box 1194 Annenberg Bldg. 15th FL 1468 Madison Ave New York, NY 10029 Email: Ming.zhou@mountsinai.org Telephone: (212)241-8881
Stuart sent a chat · 7:51 PM
Dr. Jonathan Epstein – https://advanceduropathology.com/ Tel:516-760-2037 jepstein@imppllc.com
AnCan – Boykin sent a chat · 8:12 PM
Last Low/Intermediate Video Chat on YouTube (same as above) https://www.youtube.com/watch?v=-jMy0byKzdE
AnCan – rick sent a chat · 8:24 PM
Also Jesse McKenney at Cleveland Clinic mckennj@ccf.org Expert on cribriform
AnCan Bill sent a chat · 8:53 PM
stuart@ancan.org & bfranklin@ancan.org
medium.com/@mperloesent a chat · 8:54 PM
Is brachy indicated after sepsis from the biopsy? I’d sure be leery of that.
Steve in Malaysia sent a chat · 9:05 PM
The canadian health system is per province vs national.
Steve in Malaysia sent a chat · 9:05 PM
Sunnybrook in Toronto is the most advanced center and has all modalities including MR Linac
Steve in Malaysia sent a chat · 9:07 PM
i believe there is also MR Linac in Calgary.
AnCan – rick sent a chat · 9:08 PM
We’re aware, Steve. BC is not too bad. Also v. familiar with Sunnybrook/Klotz
Steve in Malaysia sent a chat · 9:08 PM
👍
Bob in Georgia sent a chat · 9:17 PM
I leave next tuesday, preop on Wed, spacor on Thurs
AnCan – Boykin sent a chat · 9:21 PM
boykin@ancan.org
AnCan Bill sent a chat · 9:22 PM
Ask for a referral to Pelvic Floor Physical Therapy.
Bob in Georgia sent a chat · 9:27 PM
Going to Sloan Kettering with Dr Nagar
Mark WV sent a chat · 9:28 PM
nite
AnCan – Boykin sent a chat · 9:29 PM
Good nite Mark!
AnCan Bill sent a chat · 9:33 PM
May 21st at 8 p.m. Eastern is the next MSF.
AnCan – rick sent a chat · 9:33 PM
Next MSF meeting … in this room same time on Thu May 21
Larry S – ADT by estradiol sent a chat · 9:49 PM
Re: When to stop PSA testing. I have not read this yet (it just came into my inbox this morning), but the synopsis looks hopeful for more men getting screened later in life and having those tests INTERPRETED MORE INTELLIGENTLY so as to avoid alarm and unnecessary procedures. https://www.news-medical.net/news/20260428/NCCN-publishes-new-patient-guide-for-prostate-cancer-screening.aspx?utm_source=news_medical_newsletter&utm_medium=email&utm_campaign=prostate_cancer_newsletter_10_may_2026
AnCan – rick sent a chat · 9:49 PM
from Joel…”Got it. Thank you Rick”
Bob in Georgia sent a chat · 9:53 PM
Nite
AnCan – Boykin sent a chat · 9:53 PM
Good night Bob!
AnCan – Boykin sent a chat · 9:59 PM
Artera AI https://artera.ai/
Fritz sent a chat · 10:05 PM
Thanks so much -I’ll report back next meeting. Safe journey everyone
Jim E., Ft. Worth TX sent a chat · 10:11 PM
Have to go for now. Thanks so much!
