Active Surveillance Prostate Cancer Video Chat, October 14th, 2026
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, Telix, and Foundation Medicine.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/. Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/.
Chat Log:
Hugh Houston 8:12 PM
https://ancan.org/prostate-cancer-and-gu-pathology-2nd-opinions/ • Jonathan Epstein, MD, Advanced Uro Pathology T: 516-760-2037 (jepstein@imppllc.com) https://advanceduropathology.com • Ming Zhou, MD, PHD, Mount Sinai (NYC) Health T: 516-760-2037 Ming.zhou@mountsinai.org • Jesse McKenney, MD, Cleveland Clinic https://clevelandcliniclabs.com/healthcare-provider-resources/pathology/ • Johns Hopkins Pathology https://pathology.jhu.edu/patient-care/second-opinions
Phil Segal 8:13 PM
mskaeley@gmail.com
Phil Segal 8:15 PM
dmclachlan@gmail.com
Ed C in California 8:18 PM
My charge from Dr Jonathan Epstein was $900 without an insurance payment
AnCan thanks the following sponsors for making this recording possible: Novartis, Telix and Blue Earth Diagnostics.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick:
Topics Discussed
Younger Newbie graduates to our Group post RRP; treated after 20 yrs of AS.. but in the wrong group; finding the best trial for Frank; Bx cannot confirm PrCa; spot RT may be the ticket; all sable during IHT; RT to commence this month; what’s in Dr. Guancial’s name?; PSMA scans pos doublet are negative; when and how often to PSM scan; GU MO denies Pluvicto post triplet though scans light up; Gent decides to start TRT; brief discussion of HLD-0915
Chat
Bob Schwartz, USN, Venice, FL. sent: 3:17 PM
I can agree as to the hospital sling I received last time, for my other shoulder surgery. Which was why I was glad to hear your recommendation of a better one, prior to my upcoming surgery. Wish I didn’t need the surgery, but old age & past injuries, are catching up with me.
Steve L…. Hold tight and we’ll have the mugs available in our shop before long. You can order and take care of biz.
Alfredo in Wimberley, TX sent: 4:31 PM
Family calling – I must drop off now. Best wishes to all!
Steve Schuler (Seattle) sent: 4:31 PM
I wondered why I hadn’t heard anything… Answer: beurocrac
(can’t spell it though… :^(
Len Sierra sent: 4:36 PM
JAMA Oncol. 2019, 5, 856-863. In the first prospective trial of 68Ga-PSMA-11 PET/CT for BRPC, which included 635 patients, detection rates were 38% for PSA levels of < 1.0 ng/mL (n = 79), 84% for 1.0 to 2.0 (n=89), 86% for 2.0 to 5.0 (n=158), and 94% for >5.0. (BRPC = Bio-Recurrent PC)
Steve Schuler (Seattle) sent: 4:41 PM
a meta-observation is that most therapies that are initially only for end stage move earlier in treatment where their use there improves things. improves at least in the CSS sense, not necessarily in the OS sense
Len Sierrasent: 4:46 PM
New Terminology: • Androgen Pathway Modulator Sensitive: Tumors that continue to respond to or are controlled by androgen pathway suppression/blockade. • Androgen Pathway Modulator Resistant: Tumors that progress despite treatment targeting the androgen pathway
Steve – Seattle sent: 4:49 PM
My Calendar has the Ancan Seattle dinner scheduled for Sunday but I don’t have any details.
rick davis sent: 4:51 PM
Stand by as I said.
Steve Schuler (Seattle) sent: 4:53 PM
I’ve got to drop, but I will “stand by” to hear about Sunday. I will be at the conference Saturday, probably at Fred Hutch which I assume must be a video screen but in the FH building… That way I get a free sandwich I think :^)
RJ Smith (Seattle) sent: 4:54 PM
Same here–see you there Steve!
rick davis sent: 4:54 PM
: NCT06800313 HLD0915
George Kander
sent: 4:56 PM
Family calls – have to go. Thanks everyone and hopefully see you at dinner Friday in Portland – Chhers
Inherited/Germline Mutations Video Chat Support Group – October 8th, 2026
Welcome to AnCan Foundation’s Inherited Mutations Virtual Support Group.
This is a quarterly, free, and drop-in video chat support group that takes place at 8 pm Eastern on the 2nd Thursday of October, January, April, and July at https://ancan.org/schmier
Our group is open to anyone touched by an inherited mutation of any type. That includes carriers, family members, and previvors. We are peer-led and discuss any and all issues surrounding inherited / germline mutations. Our group may include health care providers, but they’re always there as peers.
AnCan thanks Novartis for making this event and recording possible. Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators, and Participants.
AnCan does not accept sponsored promotions. Any drugs, protocols, or devices discussed are based solely on anecdotal peer experience or clinical evidence. AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
Chat Log:
David in Portland, OR 8:57 PM
UCSF exercise guide for prostate cancer patients: https://urology.ucsf.edu/sites/defaul…
Joel 9:00 PM
https://www.facingourrisk.org/researc…
David in Portland, OR 9:01 PM
Cancer Risks Associated With BRCA1 and BRCA2 Pathogenic Variants: https://ascopubs.org/doi/full/10.1200…
Rick Davis 9:15 PM
Cancer Risks Associated With BRCA1 and BRCA2 Pathogenic Variants: https://ascopubs.org/doi/full/10.1200…
Joel 9:37 PM
“hereditary conditions” or “inherited genetic conditions”?
David in Portland, OR 9:44 PM
According to ChatGPT, here are the top inherited diseases: Familial hypercholesterolemia, hereditary hemochromatosis, sickle cell disease, alpha-thalassemia, beta-thalassemia, G6PD deficiency, cystic fibrosis, alpha-1 antitrypsin deficiency, autosomal dominant polycystic kidney disease, neurofibromatosis type 1, Marfan syndrome, Huntington disease, Duchenne muscular dystrophy, myotonic dystrophy type 1, hemophilia A, phenylketonuria (PKU), spinal muscular atrophy, Tay-Sachs disease, Lynch syndrome, hereditary breast and ovarian cancer syndrome.
David in Portland, OR 9:44 PM
On a lighter note, I grew up reading comic books. It recently occurred to me that lots of comic book superheroes were mutants of one sort or another. They include: Marvel Comics — Mutants 1. Wolverine 2. Cyclops 3. Storm 4. Jean Grey (Phoenix) 5. Beast 6. Nightcrawler 7. Professor X 8. Magneto 9. Rogue 10. Iceman 11. Kitty Pryde (Shadowcat) 12. Colossus 13. Mystique 14. Gambit 15. Jubilee 16. Emma Frost 17. Psylocke 18. Cable 19. Bishop 20. Havok 21. Polaris 22. Banshee 23. Dazzler 24. Magik 25. Sunspot 26. Cannonball 27. Wolfsbane 28. Multiple Man 29. Forge 30. Angel (Archangel) Marvel Comics — Mutates 31. Spider-Man 32. Hulk 33. Mr. Fantastic 34. Invisible Woman 35. Human Torch 36. The Thing 37. Deadpool 38. Daredevil 39. She-Hulk 40. Luke Cage 41. Jessica Jones 42. Captain America 43. Cloak 44. Dagger 45. Spider-Woman DC Comics — Metahumans and Transformed Heroes 46. The Flash 47. Black Canary 48. Beast Boy 49. Firestorm 50. Static 51. Captain Atom 59. Halo 60. Thunder
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Oct. 5, 2026
Substack is coming to AnCan… or maybe AnCan is coming to Substack. We’ll be posting the best from our Reminders and Blog Posts. Coming soon – we’re working on it!!
NEW AnCan HEART Group for all things cardio. Sign up for Reminder at https://ancan.org/contact-us/. Next meeting Oct 7 in AnCan Schmier Room. For ProsCard mailing list, please write to dr.john@ancan.org to ad to the distribution and Dr. John’s weekly heart primer.
AnCan thanks the following sponsors for making this recording possible: Novartis, Telix and Blue Earth Diagnostics.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: wot a choice this week … trials – ANDROMEDA, VIR5500 & Veozah; everyone wants scarce E2; and switch foreign drugs by 10/22!
Topics Discussed
Newbie Calgarian supported by 1.5 AnCan Calgarians; 2nd recurrence raises questions for Newbie; E2 scarcity; switch foreign online pharmacy by Oct. 22; ANDROMEDA triallist encourages others to sign up – inc. Newbies; borderline anemia delays salvage RT – but so does switching insurance; Veozah/fezolinetant trial open in Greater Boston; T and PSA rise during IHT – ANDROMEDA??; ARSI switch may be in order; does rationing Pluvicto sessions do the trick?; VIR5500 trialist experiences fatigue; Frank recovering and may be fit enough to consider a trial; GU MO orders confirmatory bone Bx before starting doublet; E2 preferred if HT resumes – or ANDROMEDA?; ; started Pluvicto – waiting on bone Bx result; ask for the PSMA SUV
Chat
Bruce Schrimpf sent: 5:12 PM
Army: Do not volunteer unless you can type. There is a story there! BDS
Danny Lankford (Minnesota) sent: 5:52 PM
I just started the e2 patch after months of wearing my GU oncologist down with evidence . 😉
john sent: 5:58 PM
At DEXA T=-1.3 you have osteopenia, and are at risk for further bone loss due to hormone therapy. Suggest Calcium 500mg twice daily (w/food if carbonate) and Vitamin D perhaps 800 IU/d. Discuss w/your PCP for a decision and doses. Weight bearing exercises. Repeat DEXA every 2y or according to your doctors. Consider E2 estradiol rather than an LHRH agonist; let’s ask Dr Paul in the room. I’m not sure at what point an endocrinologist is needed, but a bone strengthener needed because you also have a bone met.
I have tried to register for virtual prostate cancer conference at OHSU on October 17. I am provided a registration ID code, but not provided a link to access conference. What am I missing?
rick davis sent: 6:12 PM
Dr. Bill – I expect they’ll send a link closer to the conference
Active Surveillance Prostate Cancer Video Chat, September 23rd, 2026
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, Telix, and Foundation Medicine.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/. Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/.
Chat Log:
Rick Davis 8:16 PM
Insurance denial webinar https://us02web.zoom.us/webinar/register/WN_4R0lFIupRhuh4bmfrzjBaA#/registration
Rick Davis 8:38 PM
The Active Surveillor https://howardwolinsky.substack.com/
Eric- Atlanta 8:39 PM
GU Pathology 2nd Opinions: https://ancan.org/prostate-cancer-and-gu-pathology-2nd-opinions/
Eric- Atlanta 8:54 PM
https://aspatients.org
Eric- Atlanta 8:54 PM
ASPI is all about active surveillance
Ed (VA) 8:55 PM
I need to drop off at 9 Eastern. I will share in the next meeting in 2 weeks.
Eric- Atlanta 8:56 PM
https://pcri.org The Prostate Cancer Research Institute
Ray E Santa Monica CA 9:03 PM
I am taking off
Rick Davis 9:05 PM
Here’s our AnCan webinar with Klotz and Carroll https://ancan.org/webinar-is-pre-treatment-active-surveillance-for-prostate-cancer-safe/
Rick Davis 9:06 PM
and Klotz on focal therapy on AnCan https://ancan.org/webinar-is-focal-therapy-right-for-your-prostate-cancer/
Eric- Atlanta 9:13 PM
Dr. Liss/Microbiome: https://ancan.org/dr-michael-liss-on-gut-microbiomes-040225/
Rick Davis 9:15 PM
AnCan Michael Liss’ seminar on gut microbiome https://ancan.org/dr-michael-liss-on-gut-microbiomes-040225/
Eric- Atlanta 9:22 PM
Special Presentation: Exercise After Prostate Cancer: Active Surveillance and Beyond: https://ancan.org/special-presentation-exercise-after-prostate-cancer-active-surveillance-and-beyond/
Barry Dixon 9:23 PM
gotta go. Good night. Barry
Eric- Atlanta 9:23 PM
Also: https://ancan.org/evidence-that-vigorous-exercise-may-alter-the-course-of-prostate-cancer/
Joel _ Manassas, VA 9:29 PM
Good to hear our discussions tonight. Thanks to all. Goodnight.
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 21, 2026
Substack is coming to AnCan… or maybe AnCan is coming to Substack. We’ll be posting the best from our Reminders and Blog Posts. Watch our for more details.
NEW AnCan HEART Group for all things cardio.Sign up for Reminder at https://ancan.org/contact-us/. For ProsCard mailing list, please write to dr.john@ancan.org to be added to the distribution and Dr. John’s weekly heart primer.
AnCan thanks the following sponsors for making this recording possible: Novartis, Telix and Blue Earth Diagnostics.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Go to ‘Extra Time’ to hear Newbie with PTEN, TP53 and maybe RB1
Topics Discussed
denovo N1 Newbie waits on treatment recommendations; uro assumes Newbie is denovo M1 but SUV is low – needs verification; T rises but PSA holds steady – CRPC??; offered Veozah trial – but hide the Embr watch; PSA increases from 0.16 to 1.6 – could be inflammation or RT; insist on a bone strengthener and switch docs; at least 12 m. of doublet; Reel Recovery rave review; arousal 3 months after stopping org, but Gent expects more; late Newbie faces PTEN, TP53 and possibly RB1 – treatment path???
Chat
Sergio sent: 5:41 PM
David – ty for your message. Let’s def connect. I can be reached at gonzaler84@hotmail.com. We can find time later in the week if this works for you.
Bill Lawler sent: 6:09 PM
When i was prescribed those two drugs, I was advised to stagger the start dates by ten days to two weeks.
FEZOLINETANT
Avery sent: 6:35 PM
Bill Lawler – Are you in the DMV area? If so, which hospital is your care? FYI- I just received the exact same markers and barrigel and I start my 5 and half weeks of radiation treatments on Wed at Sibley.
ok thx
Bill Lawler sent: 6:41 PM
Avery, My 28 treatments start on Oct. 1. Greater Boston area, MGB Danvers.
Avery sent: 6:41 PM
Bill – Wish you well
Bill Lawler sent: 6:49 PM
Fezolinetant principal investigator: Shehzad Basaria, Brigham & Women’s Hosp.
Bob Schwartz, USN, Venice, FL. sent: 7:08 PM
Another good mtg., have to go, see everyone next mtg.
