How I Got a Pancreatic MRI for Free – And How You Might, Too (or at a Reduced Cost)
By: David Sharp
Since finding out last year that I have a BRCA1 germline mutation, I’ve been keenly aware that it raises my lifetime pancreatic cancer risk to nearly 5%, compared with 1.7% for the general population.
The overall five-year pancreatic cancer survival rate is only about 13%, largely because this aggressive, stealthy cancer is often diagnosed after it’s already spread. For that reason, my medical oncologist recommended an annual pancreatic MRI to catch it early, just in case. That made abundant sense to me, so I scheduled the scan at OHSU, a major medical center here in Portland, Oregon. I assumed that between my BRCA1 mutation and pancreatic cancer’s lethality, original Medicare—my health insurer—would pick up the tab, which would otherwise cost me a few thousand dollars.
Turns out, Medicare probably won’t.
Why not? In part, Medicare relies on guidelines from major medical societies to determine what it will cover. Unfortunately, those societies have failed to reach the kind of strong scientific consensus that Medicare likes to see when deciding whether to pay for a procedure or test. The American Society for Gastrointestinal Endoscopy recommends pancreatic cancer screening for BRCA1 carriers regardless of family history, citing research suggesting that limiting screening to people with a family history could miss two out of three pancreatic cancer cases.
By contrast, NCCN guidelines recommend pancreatic screening for BRCA1 carriers only if they also have a close relative with pancreatic cancer. Having no family history of pancreatic cancer would normally be good news. But my lack of a family history worsens my chances of convincing Medicare to ante up.
What’s more, Medicare would view my pancreatic MRI as a “screening” rather than “diagnostic” test because I have no pancreatic cancer symptoms or diagnosis. Medicare automatically covers screening for several other cancers, including prostate, breast, and colon. But pancreatic cancer screening for a BRCA1 patient like me isn’t one of its specifically listed preventive benefits, further reducing the odds that Medicare will pay.
To double check that, I contacted many OHSU staff members and several experts in hereditary cancer and health insurance, including Pamela Munster, M.D., a top BRCA expert at Stanford University; Lindsay Byrne, a genetic counselor at The James Comprehensive Cancer Center (Munster and Byrne recently appeared in a highly informative AnCan webinar on genetic counseling for families: https://www.youtube.com/watch?v=2UvlUdKPKV8); Lisa Schlager, vice president for public policy at FORCE (an organization that assists people facing hereditary cancer); and Amanda Goodstadt, a senior staff attorney at Triage Cancer (which educates people about legal, insurance, and other issues that arise after a cancer diagnosis). Their view: Medicare isn’t likely to help.
I next looked into clinical trials that might provide a pancreatic MRI for free. Several are currently recruiting BRCA1 carriers, but I kept failing to qualify for the most ironic of reasons: I had either too much cancer or not enough. In some cases, my prostate cancer history excluded me; in others, I lacked the required family history of pancreatic cancer.
Then I tried another route: I canceled the MRI and applied for OHSU’s financial assistance program. My wife and I have little taxable income because we’re delaying Social Security to increase the size of future benefits and living on retirement savings and investments in the meantime. Two weeks after applying, I received a letter from OHSU stating that it had granted me 100% financial assistance for the next 12 months. After that, I can apply again. Medicare’s restrictions suddenly became irrelevant.
I celebrated for about five seconds. Then I read the fine print. OHSU’s policy had restrictions of its own, including certain services considered non-covered or medically unnecessary under Oregon Health Plan rules. I thought, “Oh, shit. Another bureaucratic quagmire.”
It took more than a dozen calls to find the right person, but eventually I spoke to OHSU’s revenue cycle operations manager for the Department of Surgery. Her title is a mouthful, but she turned out to be the key individual in the OHSU hierarchy who could help. I explained my predicament and told her I didn’t feel comfortable proceeding with the pancreatic scan without written confirmation that OHSU’s financial assistance program would cover it.
A few hours later, a written guarantee appeared in my patient portal. Success! My MRI is now rescheduled for December 4, and it’s on the house. Because BRCA1 also raises the risk of male breast cancer, I can use the same financial assistance for an oncologist-recommended mammogram, skin cancer check, and upper endoscopy.
Obviously, this solution won’t work for everyone. And it may not even work for me in a couple of years, once my wife and I start receiving Social Security and no longer qualify for financial assistance. But my hunt for a free pancreatic scan taught me the following seven strategies that may reduce my health care spending in the future—and may save you some bucks now:
1.) Ask hospitals about financial assistance and discounts. OHSU, for example, offers a self-pay rate that cuts 35% off the bill for uninsured patients. 2.) Look for clinical trials that cover the cost. I struck out, but you might not. 3.) Don’t rely on optimistic assurances from hospital employees that your insurer will pay; they’re often wrong. 4.) Don’t waste time seeking guidance through original Medicare’s live chat. I found it useless. 5.) If you’re promised free or discounted care, get it in writing before the procedure—and check the exclusions. 6.) Don’t assume your insurer will pay simply because your doctor strongly recommends a procedure. 7.) Most importantly, keep knocking until the right door opens.
Like We Didn’t Know…. the value of care partner support groups
Most of our Readers are well aware of the value of a Care Partners Support Group – especially a peer-led one that does not inhibit conversation or stand on ceremony.
The message was partially echoed in an article in the Fall 2026 issue of Cancer Today, Finding Your Own Support . Written by regular columnist, K.J. Bannan. She wonders “if I, as a caregiver, mighthave benefited form similar level of group support” to her mother who died of lung cancer.
At anCan we’d say, definitely YES! But sadly, K.J. is not aware of AnCan and our groups. Now if someone feels like reaching out…
Overturning Insurance Denials: What happens when your payer says no!?
You’ve all been there – your Payer denies you for:
Drugs
Specialist
Providers Procedures
2nd Opinions
What do you do next? How do you avoid hours on the phone? How do you beat the runaround?
We cover all types of payers, from Private and Obama Plans to Commercial and CMS (Medicaid and Medicare).
Ask the Experts: Gil Solomon, MD – Retired Family Physician and Health Plan Medical Director, and Allie Antonucci, CPC, Market Access and Reimbursement Professional, present and discuss. Dr. John Antonucci hosts the event.
AnCan would like to thank our sponsors who make these presentations possible. Those are Novartis, Blue Earth Diagnostics, Tealix, and Bayer.
Active Surveillance Prostate Cancer Video Chat, September 23rd, 2026
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, Telix, and Foundation Medicine.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/. Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/.
Chat Log:
Rick Davis 8:16 PM
Insurance denial webinar https://us02web.zoom.us/webinar/register/WN_4R0lFIupRhuh4bmfrzjBaA#/registration
Rick Davis 8:38 PM
The Active Surveillor https://howardwolinsky.substack.com/
Eric- Atlanta 8:39 PM
GU Pathology 2nd Opinions: https://ancan.org/prostate-cancer-and-gu-pathology-2nd-opinions/
Eric- Atlanta 8:54 PM
https://aspatients.org
Eric- Atlanta 8:54 PM
ASPI is all about active surveillance
Ed (VA) 8:55 PM
I need to drop off at 9 Eastern. I will share in the next meeting in 2 weeks.
Eric- Atlanta 8:56 PM
https://pcri.org The Prostate Cancer Research Institute
Ray E Santa Monica CA 9:03 PM
I am taking off
Rick Davis 9:05 PM
Here’s our AnCan webinar with Klotz and Carroll https://ancan.org/webinar-is-pre-treatment-active-surveillance-for-prostate-cancer-safe/
Rick Davis 9:06 PM
and Klotz on focal therapy on AnCan https://ancan.org/webinar-is-focal-therapy-right-for-your-prostate-cancer/
Eric- Atlanta 9:13 PM
Dr. Liss/Microbiome: https://ancan.org/dr-michael-liss-on-gut-microbiomes-040225/
Rick Davis 9:15 PM
AnCan Michael Liss’ seminar on gut microbiome https://ancan.org/dr-michael-liss-on-gut-microbiomes-040225/
Eric- Atlanta 9:22 PM
Special Presentation: Exercise After Prostate Cancer: Active Surveillance and Beyond: https://ancan.org/special-presentation-exercise-after-prostate-cancer-active-surveillance-and-beyond/
Barry Dixon 9:23 PM
gotta go. Good night. Barry
Eric- Atlanta 9:23 PM
Also: https://ancan.org/evidence-that-vigorous-exercise-may-alter-the-course-of-prostate-cancer/
Joel _ Manassas, VA 9:29 PM
Good to hear our discussions tonight. Thanks to all. Goodnight.
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 21, 2026
Substack is coming to AnCan… or maybe AnCan is coming to Substack. We’ll be posting the best from our Reminders and Blog Posts. Watch our for more details.
NEW AnCan HEART Group for all things cardio.Sign up for Reminder at https://ancan.org/contact-us/. For ProsCard mailing list, please write to dr.john@ancan.org to be added to the distribution and Dr. John’s weekly heart primer.
AnCan thanks the following sponsors for making this recording possible: Novartis, Telix and Blue Earth Diagnostics.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Go to ‘Extra Time’ to hear Newbie with PTEN, TP53 and maybe RB1
Topics Discussed
denovo N1 Newbie waits on treatment recommendations; uro assumes Newbie is denovo M1 but SUV is low – needs verification; T rises but PSA holds steady – CRPC??; offered Veozah trial – but hide the Embr watch; PSA increases from 0.16 to 1.6 – could be inflammation or RT; insist on a bone strengthener and switch docs; at least 12 m. of doublet; Reel Recovery rave review; arousal 3 months after stopping org, but Gent expects more; late Newbie faces PTEN, TP53 and possibly RB1 – treatment path???
Chat
Sergio sent: 5:41 PM
David – ty for your message. Let’s def connect. I can be reached at gonzaler84@hotmail.com. We can find time later in the week if this works for you.
Bill Lawler sent: 6:09 PM
When i was prescribed those two drugs, I was advised to stagger the start dates by ten days to two weeks.
FEZOLINETANT
Avery sent: 6:35 PM
Bill Lawler – Are you in the DMV area? If so, which hospital is your care? FYI- I just received the exact same markers and barrigel and I start my 5 and half weeks of radiation treatments on Wed at Sibley.
ok thx
Bill Lawler sent: 6:41 PM
Avery, My 28 treatments start on Oct. 1. Greater Boston area, MGB Danvers.
Avery sent: 6:41 PM
Bill – Wish you well
Bill Lawler sent: 6:49 PM
Fezolinetant principal investigator: Shehzad Basaria, Brigham & Women’s Hosp.
Bob Schwartz, USN, Venice, FL. sent: 7:08 PM
Another good mtg., have to go, see everyone next mtg.
AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Two Vets both recur after a long time and cud be candidates for MDT
Topics Discussed
San Diego Veteran faces slow recurrence over 15 years – consider Matt Rettig at W.L.A. VA ; Tacoma to OSHU is well worthwhile to see Dr.E; variant disease produces plenty of PSA but doesn’t respond – Ac225 trial @ MSKCC a possibility; NW Montana G9 Vet recurs after Brachy + ADT @ Huntsman in 2019 – PSA now 18.5; older Gent has bone density issues.
Chat
Dan M, Tacoma WA sent: 3:26 PM
The liquid biopsy phlebotomists will even come to your house.
Bill Lawler sent: 3:37 PM
I’ve been on Darolutamide & Orgovyk ADT treatment for two months. at six weeks my PSA dropped from 14.4 to1.18.
Danny Lankford (Minnesota) sent: 3:41 PM
Ditto here. I started on Darolutamide and Orgovyx and my PSA went from 13-ish down to 0.04 in 3 months.
AnCan–John A sent: 3:41 PM
in one or two years > new theranostics with new cancer cell markers
Alfredo in Wimberley, TX sent: 4:18 PM
Sorry, I must leave early tonight. Best regards to everyone.
Ben Nathanson sent: 4:23 PM
I’m still listening
AnCan–John A sent: 4:30 PM
Dr Theresa Werner is now deputy director at Huntsman
Active Surveillance Prostate Cancer Video Chat, September 9th, 2026
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, Telix, and Foundation Medicine.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 7, 2026
Are you in DelMarVa?? Reserve Wednesday night, Sep 16 for an AnCan get-together. We’ll meet for a ‘dutch’ dinner in the Chevy Chase area – location TBD. If you have not received an email invitation and would like to attend, please drop a note to boykin@ancan.org. Partners/spouses welcome!
And if you’re in Los Angeles or going to PCRI Sep 18-20, please reach out to Bill Franklin as we may hold an AnCan meetup.
Substack is coming to AnCan… or maybe AnCan is coming to Substack. We’ll be posting the best of all our Reminders. Watch our for more details.
AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Severe radiation cystitis interferes with treatment plans
Topics Discussed
Was this Newbie really a 5+4 at Dx in 2010?; RT done – now to HT and what next?; crippling RT cystitis changes PrCa treatment plans; could Pluvicto be an option for mHSPC Gent; extensive initial RT preferred; why can’t RO prescribe HT?; move forward with salvage RT and adjust LHRH; muscle cramps; move to CoH, Duarte makes difference; does Pluvicto need prior hydration infusion?; surprise bone Bx – somatic sequencing may take time; RT finished – what to expect during doublet HT?; is screen for blood clot or variant PrCa?
Chat
Jeff Marchi – San Francisco sent: 5:17 PM
877-582-7011 tech support
AnCan–John A sent: 5:18 PM
thanks Jeff and Jim. try that Gary
Gary P sent: 5:36 PM
The second one sent by you. Just got off phone. Thanks very much.
Damon I thought you said HDR rather than low dose brachy, but I might have misheard?
Gary Martin sent: 7:39 PM
I’ve heard the FDG PET scans and the biomarkers including LDH, Chromogranin A, NSE, and CEA are often tracked where PSA-discordant progression may be suspected.
Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 1, 2026
Are you in DelMarVa?? Reserve Wednesday night, Sep 16 for an AnCan get-together. We’ll meet for a ‘dutch’ dinner in the Chevy Chase area – location TBD. If you have not received an email invitation and would like to attend, please drop a note to boykin@ancan.org. Partners/spouses welcome!
Substack is coming to AnCan… or maybe AnCan is coming to Substack. We’ll be posting the best of all our Reminders. Watch our for more details.
COMING IN SEPTEMBER… AnCan Heart Group – new support group for all things cardio and open to all! To sign up for Reminder at https://ancan.org/contact-us/. For ProsCard mailing list, please write to dr.john@ancan.org.
AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: 1) when your pituitary goes dormant 2) is debulking the primary right?
Topics Discussed
Stable disease but treatment leads to one atrophied kidney; is a GU med onc needed at this juncture?; pituitary never recovered post prednisone/abi – what next?; pros and cons of RT debulking for higher volume denovo Mx Gents; Tony Fig’s shoulder surgery; RT cystitis causes hospitalization and deferral of clinical trial; is Testosterone replacement appropriate?; heart issues defer advocating for a PSMA update
Chat
Pierre D., Olean NY sent: 3:11 PM
$50 \hr
Alfredo in Wimberley, TXsent: 3:55 PM
gadolinium
jeff wood sent: 4:04 PM
What are the repercussions of debulking?
RJ Smith (Seattle) sent: 4:07 PM
Standard side-effects and long-term risks of side-effects from the radiation.
Len Sierra sent: 4:20 PM
The Bardo Thodol – Tibetan Book of the Dead — kudos to Dr. John!
If you know your family carries or is at risk for a germline/inhetited mutation, the game changes. It may not be a parent, sibling, or child that creates concern…watch out for aunts, uncles, nieces, nephews, even grandparents! Genetic Counselor and AnCan Advisory Board Member, Lindsey Byrne, MSCGC from NCCN/NCI The James CCC at Ohio State University, will lead you through the additional considerations to keep in mind if you face that situation. Including where to look and how to get others to test. Alongside her, we will have Dr. Pamela Munster, now at Stanford, who will present and discuss. We’ll also have a panel featuring some faces you are sure to recognize!