AnCan thanks the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Don’t blame it on the prostate cancer… two Gents report tenderness but is it something else?
Topics Discussed
Newbie prescribed singlet HT when doublet was SoC – don’t switch w.3 months left but change docs; is cystoscopy the right procedure?; IHT after 3 years – but what bout shortness of breath; is tenderness from exercise or cancer?; is HT the right first step on BCR; insurance declines Axumin; starting AMG509 xaluritamig trial; stable on mono daro at 86; just finished 6th Pluvicto for foamy cell PrCa; don’t fret over tiny PSA moves; is chest tenderness down to HT or a previous cancer?; not eligible for Capitello trial – needs 2nd opinion on intensification
Chat
AnCan – Ric sent: 3:04 PM
GoTo Help 877 582 7011
Danny sent: 3:13 PM
Have to duck out for a couple of minutes.
David D Seattle sent: 3:14 PM
David joined by phone, I have an update
Len sent: 3:31 PM
Yes, my brother in arms, I was at the beach today. Water temp was 73. Re: your email – did you complete your chest RT?
Hello Steve! Yes, I’ll need to step up my sunblock to spf 50. UV index is high every day. How’s by you?
Adrian (Tony) Bruno sent: 3:51 PM
ask him what his hemoglobin level is
Steve Roux, Up North, Michigan sent: 4:00 PM
I got to run gang. So good to see you all. Great meeting as usual!
Joseph (Sean) Siry – Laguna Woods, CA. sent: 4:04 PM
Dinner is on the table, so I will have to go also– & I can report next time the good news.
AnCan – Rick sent: 4:06 PM
For everyone – Please tell us if you think you need to leave early…(should have added, “and you asked for time’:rd)
Bob Y — Los Angeles sent: 4:13 PM
I also need to leave early. Happy to see all of you.
Jim E., Ft. Worth T sent: 4:17 PM
While I haven’t had “Germline” testing, I had a complimentary gene testing through a group called Color, and they indicated no concerns for increased risk. I have logged in and opened my biopsy and PSMA PET results.
Bruce Schrimpf sent: 4:27 PM
I may have b e to leave there is a tornado warning for areas just to the South of my home. BDS
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics, and Foundation Medicine.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Questions about the efficacy of clinical trials for focal therapy treatment of prostate cancer. (bj)
Topics Discussed New diagnosis and seeking second opinions on treatment options; potential candidate for active surveillance; importance of getting second opinion on biopsy results; Stereotactic Body Radiation Therapy (SBRT) scheduled—5 sessions over a 10-day period; concerns about traveling to a center of excellence for treatment and then receiving follow-up care locally; questions about the efficacy of clinical trails in general and specifically focal therapy for prostate cancer; difficulties in getting insurance companies to approve medical treatments; differences between germline and somatic (Decipher) genetic testing; avoid the “Google Trap”—don’t make your treatment decisions based on internet searches.
Chat
AnCan – Stuart sent a chat · 7:54 PM
Dr. Ming Zhou Mount Sinai Health System Department of Pathology, Box 1194 Annenberg Bldg. 15th FL 1468 Madison Ave New York, NY 10029 Email: Ming.zhou@mountsinai.org Telephone: (212)241-8881
AnCan – Stuart sent a chat · 7:55 PM
Dr. Jonathan Epstein – https://advanceduropathology.com/ Tel:516-760-2037 jepstein@imppllc.com
AnCan – Rick sent a chat · 8:19 PM
The Emperor… Great scans and a PSA of 0.2 with a healthy prostate 😏
David in Portland, OR sent a chat · 8:52 PM
“Delayed Definitive Management of Localized Prostate Cancer: What Do We Know?” Co-authors include Peter Carroll and Mack Roach, https://doi.org/10.1038/s41391-024-00876-2
AnCan – Rick sent a chat · 8:59 PM
PROMISE https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
AnCan – Boykin sent a chat · 9:00 PM
AnCan Foundation YouTube Channel
https://www.youtube.com/@ancanfoundation
AnCan – Boykin sent a chat · 9:03 PM
All is well. Good to see you.
Steve in Malaysia sent a chat · 9:08 PM
I have a few short questions.
AnCan – Rick sent a chat · 9:09 PM
Have to wait until the back end, Steve
Steve in Malaysia sent a chat · 9:09 PM
ok 👍
AnCan – Boykin sent a chat · 9:15 PM
AnCan Prostox https://ancan.org/?s=prostox
Bill (VA) sent a chat · 9:26 PM
https://clinicaltrials.gov/study/NCT06807359
David in Portland, ORsent a chat · 9:46 PM
“Can You Take Cash From Medicare Patients?” https://elitenp.com/medicare-and-cash-practices/?utm_source=chatgpt.com
AnCan – Rick sent a chat · 9:49 PM
Thank you David….
Active Surveillance Prostate Cancer Video Chat, April 8th, 2026
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics, and Foundation Medicine.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
Eric- Atlanta 8:00 PM
2026 Prostate Cancer Patients and Caregivers Conference September 18th-20th, 2026 | Early Registration | $30 https://pcri.org/2026-conference
Phil-Toronto 8:03 PM
PCRI mid-year update April 25/26
Ron Jr (Sharon, Pa) 8:28 PM
I live in the Rust Belt, NW Pa, country area – and my Urologist only does Trans-perineal biopsy. I had a hip replacement & it’s the ONLY biopsy I had, and I will get moving forward. Infection would put my total hip at risk!
Albert 9:01 PM
thanks all. Bye, Albert
AnCan – Rick 9:04 PM
Turkey bacon ain’t so bad
AnCan – Rick 9:06 PM
PCPEP study – sign up! https://ancan.org/pcpep-the-prostate-cancer-patient-empowerment-program-040126/
Eric- Atlanta 9:07 PM
Is the PCPEP seminar shared? I had to miss.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Applying for VA Health Care benefits. (bj)
Topics Discussed Losing Special Monthly Compensation (SMC) when your treated prostate cancer gets rated on its residual effects; establishing service connection for prostate cancer when you didn’t deploy to Southwest or Southeast Asia; importance of intent to file in establishing your start pay date for a disability claim; applying for VA Health Care benefits; Compensation & Pension (C&P) exam notification informs you which claims are included in the exam; strategies and data gathering to support chronic kidney disease (CKD) claims; linking CKD to radiation treatment residuals or urinary incontience; preparing for Board of Veterans Appeals hearing; understanding the difference between an a formal appeal and supplemental claim; billing questions when the doctor or practice you’re seeing changes under Community Care.
Chat
Eric Baker – Lafayette sent a chat · 9:30 PM
I am going to head out gentlemen, have a great evening and see you all in two weeks!
AnCan – Boykin sent a chat · 9:32 PM
Good night Eric!
Israel sent a chat · 9:48 PM
Sorry, I have to run. See you next time.
AnCan – Boykin sent a chat · 9:50 PM
Good night Israel
Bruce Schrimpf sent a chat · 9:57 PM
Great meeting! Learned a lot!
AnCan – Boykin sent a chat · 10:05 PM
veterans@ancan.org
Reel Recovery is an international non-profit organization that conducts free fly-fishing retreats for men living with all forms of cancer. Their retreats offer the peace of the outdoors and the healing power of fly-fishing, while providing a safe, supportive environment for participants to connect with others sharing similar cancer journeys.
The organization provides all meals, lodging, and fly-fishing equipment at no cost, and no previous fishing experience is required. To maintain an intimate and supportive atmosphere, a maximum of 12 men are invited to participate in each retreat.
Two of our own, AnCan’rs Bill and Herb, had the opportunity to participate in the retreat.
The organization’s mission is built on the idea that nature has a profound power to heal. Their retreats aren’t just about fishing; they are about providing a safe space for men to share their stories. Since its founding in 2003, Reel Recovery has served thousands of men across the United States and abroad. If you or a man you know is living with any form of cancer, at any stage of treatment or recovery, consider looking into their upcoming retreat schedule.
To learn more, apply for a retreat, or donate to support their mission, visit ReelRecovery.org.
AnCan thanks the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Dr. Kwon… either overtreating or undertreating! And… Crestor & Nubeqa don’t mix!
Topics Discussed
Repeat recurrences since 2019 may be down to shorter periods of HT; Gent pushes for Axumin and gets it; should he debulk?; add back E2; is Kwon overtreating with triplet? – get thee to a GU med onc; stable but needs a new GU med onc – or does he?; HT is doing exactly what it should; doing well on mono daro but needs help with back pain; rosuvastatin doesn’t play well with daro; numbers good after stopping HT but fatigue/weakness persists; RT requires self catheterizing; fatigue/weakness could be recent covid; experience with PCPEP
Chat
Alfredo in Wimberley sent: 5:24 PM
UW-OncoPlex™ is a multiplexed mutation assay for tumor tissue that assesses mutations >400 genes related to cancer treatment, prognosis, or diagnosis (listed below). UW-OncoPlex™ is intended for solid tumors.
Sorry Fellas, I need to leave early. I will pose my question next week. Thanks!
“Thomas” M Vancouver,WA sent: 6:45 PM
Pregabalin (Lyrica)
Jim Marshall, Vet Support Grp. Moderator sent: 6:48 PM
Might want to look at PRAVASTATIN as an alternative. I could not handle Crestor or Lipitor. Jim Marshall
Bruce Schrimpf sent: 6:52 PM
The worst thing about a colonoscopy is the prep not the procedure itself. During the procedure you’re in La-la Land!
Jeff Marchi – San Francisco sent: 6:53 PM
exactly
Bruce Schrimpf sent: 6:54 PM
Indeed!
Jeff Marchi – San Francisco sent: 6:55 PM
👍
david opp sent: 6:56 PM
I am going to call it a night, I will try for next Tuesday.
Peter M sent: 7:05 PM
Great meeting! Good night!
“Thomas” M Vancouver,WA sent: 7:07 PM
Excuse me, gents. Leaving the meeting. Thanks to all.
Pierre D., Olean NY sent: 7:14 PM
I joined PC-PEP a week ago and find it helpful.
Bruce Schrimpf sent: 7:15 PM
I had COVID during the time I was on Lupron. I was retired so I took noon time naps. I believe in the less medication the better! It makes me feel better and improves my bank account!
Joseph (Sean) Siry – Laguna Woods, CA. sent: 7:17 PM
Have a healthy week
Bruce Schrimpf sent: 7:18 PM
Always good seeing and hearing all of you. Good night (Guten Nacht Auf Deutsch). BDS
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics, and Foundation Medicine.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: High Dose Rate (HDR) brachytherapy versus stereotactic body radiotherapy (SBRT). (bj)
Topics Discussed Importance of getting a second opinion on bioposy results; clincal study comparison of High Dose Rate (HDR) brachytherapy versus stereotactic body radiotherapy (SBRT); necessity of getting a second opinion on bioposy results for a Gleason 3+3 diagnosis; efficacy of specific supplements and dietary changes in reducing future prostate cancer risk and managing PSA levels.
Chat
Stuart sent a chat · 7:41 PM
Dr. Ming Zhou Mount Sinai Health System Department of Pathology, Box 1194 Annenberg Bldg. 15th FL 1468 Madison Ave New York, NY 10029 Email: Ming.zhou@mountsinai.org Telephone: (212)241-8881
Stuart sent a chat · 7:42 PM
Dr. Jonathan Epstein – https://advanceduropathology.com/ Tel:516-760-2037 jepstein@imppllc.com
Steve in Malaysia sent a chat · 8:49 PM
Hi guys, can you add me? Have a few questions.
Bill Franklin sent a chat · 8:51 PM
We should have plenty of time Steve.
Steve in Malaysia sent a chat · 8:51 PM
Thanks
Bill Franklin sent a chat · 9:08 PM
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2845485
Bill Franklin sent a chat · 9:09 PM
I think this is the one you’re talking about? Just published in JAMA in Feb, 2026.
Bill Franklin sent a chat · 9:10 PM
JAMA HDR vs SBRT study https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2845485
Bill Franklin sent a chat · 9:10 PM
Rick and I had the same one.
Albert sent a chat · 9:16 PM
Thanks guys
AnCan – Rick sent a chat · 9:27 PM
https://themarsh.org/soloartsheal Greg Burns this Wednesday at 7.30 pm PACIFIC
Terri Richards sent a chat · 9:29 PM
Thank You So much Rick, My mic was not working > Thank you for all that you all do !
Ron Jr sent a chat · 9:30 PM
I forgot to ask: Should I get a 2nd opinion on my Biopsy diagnosis of my GL 3+3 lesion? (or feel lucky about it, and sit down and be grateful) Additionally, are there proven supplements or dietary changes that can reduce my future Prostate Cancer risk & PSA test numbers?
Solo Arts Heal featuring Kelly Spillman on August 28th, 2024
AnCan and The Marsh (well-renowned, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal.
Kelly Spillman is a psychology professor, stand-up comedian, and storyteller based in Los Angeles. Kelly has performed at The Comedy Store, The Improv, and many comedy festivals around the country.
Solo Arts Heal featuring John W. Maxwell on August 27, 2025
AnCan and The Marsh (well-renowned, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal.
John is a husband, father, mentor, coach, teacher, and listener. He is fascinated by psychology, human behavior, mathematics, sports, and music. In this performance, John will be sharing excerpts from his book, Hammering Nails.
Solo Arts Heal featuring John Bartlett on April 23, 2025
AnCan and The Marsh (well-renowned, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal.
Please join us in welcoming John Bartlett as he shares his experiences as a fashion designer, pet lover & rescuer, and educator. John will talk to us about the power of giving back to help people heal.
