Hi-Risk/Recurrent/Advanced PrCa Video Chat, 4/28/26
Watch AnCan’s newest PROSTOX video “Predicting Radiation Side Effects” https://ancan.org/predicting-radiation-side-effects-prostox-webinar-with-interesting-updates/
Survey Opportunity
$200 for a 60min interview. Must be mHSPC or mCRPC; 40-75+/-; NOT have used Talzenna, Xtandi or Orgovyx. Reach out to Jason at 773 383 9090 jturner@flinceresearch.com. 15 needed. Indicate you are via AnCan and let us know if accepted (rd@ancan.org)
Rick D presents AnCan at Houston Methodist https://ancan.org/ancan-keynote-at-houston-methodist-aug-2024-can-you-hear-us-amplifying-the-patient-voice/
Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/
Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/
Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan
AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: PSA rockets to 186 and bone mets are found 5 months after prostatectomy; AND, self-advocacy pays off!
Topics Discussed
Recurrence (salvage) RT success but Newbie is anxious; BRCA germline Newbie in treatment at MSKCC; PSA skyrockets right after surgery and mets are found; treatment doing its work and GU med onc confirms path; great experience with AnCan Advisor Dan Georg who endorses treatment; 2nd opinion where academic conflict of interest is suspected; bad reaction to Zometa; chemo steroids create mega-munchies – GLP1 helps; if enz is not making issues, don’t switch; BRCA gets Gent to finally see a GU med onc; rash from coming off HT meds; self-advocating shortens time on HT doublet
Chat
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AnCan – Rick sent: 3:06 PM
Flince Market Research Jason JTurner@flinceresearch.com… here’s who to reach out to.
age 40-75+’ never used Talzenna, Xtandi or Orgovyx; must be metastatic
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AnCan – Rick sent: 3:32 PM
Playing the Long Game seminar https://ancan.org/playing-the-long-game-does-your-recurrent-advanced-prostate-cancer-need-treating-nci-seminar/
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Julian-Houston sent: 3:54 PM
Jubbonti is equivalent to Prolia
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AnCan – Rick sent: 4:01 PM
rd@ancan.org https://ancan.org
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Jeff Marchi – San Francisco sent: 4:15 PM
Has he had genetic testing
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Mark Greenberg sent: 4:21 PM
no
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AnCan – Rick sent: 4:22 PM
Channing Paller GU med onc https://www.hopkinsmedicine.org/profiles/results/directory/profile/3138167/channing-paller
Curtland DeVille Rad Onc https://profiles.hopkinsmedicine.org/provider/curtiland-deville-jr/2700377
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Mark Greenberg sent: 4:22 PM
Thank you
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Steve Roux, Up North, Michigan sent: 4:48 PM
Guys, I need to jump off for a dinner date. See you next week!
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Danny Lankford (Minnesota) sent: 4:50 PM
Can I share something with Frank about the eating like an animal comment?
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Peter M sent: 5:07 PM
Good night gents. Great meeting!
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Nick Mavroudis sent: 5:08 PM
good night all
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Bob Schwartz, USN, Venice, FL. sent: 5:08 PM
Have to go too, take care everyone.
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Danny Lankford (Minnesota) sent: 5:17 PM
Signing off. Have a good night. These dang kids begging me for food. 😉
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AnCan – Rick sent: 5:23 PM
Soilo Arts Heal John Maxwell https://ancan.org/solo-arts-heal-with-john-w-maxwell/
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John Maxwell – Chicago sent: 5:28 PM
Cary (NW Suburbs)
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“Thomas” Matica sent: 5:33 PM
Over and out, gents. Thanks.
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Pierre D., Olean, NY sent: 5:34 PM
Good night all
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Bruce Schrimpf sent: 5:35 PM
Good seeing all of you!