Under-60 Advanced Prostate Cancer

Under-60 Advanced Prostate Cancer

Back in mid-2012, the US Preventative Services Task Force first made the following recommendation with an associated D Grade:
The U.S. Preventive Services Task Force (USPSTF) recommends against prostate-specific antigen (PSA)–based screening for prostate cancer.

 At the time, prostate cancer advocates objected strongly, warning it would result in many more men diagnosed de novo metastatic, and ultimately more disease specific deaths.

Sadly, we have seen this manifested, especially with respect to younger men. AnCan clearly sees the trend along with a lack of support for the particular needs expressed by younger men living with advanced prostate cancer.
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2nd Thursday of each month at 8 pm Eastern in The Barniskis Room (222-583-973)

Gay & Bisexual Men Prostate Cancer Group

 


Gay or bisexual men diagnosed with prostate cancer have particular concerns. Addressing them with your peers is far easier!
AnCan Foundation, the innovator of virtual support groups, addresses special interests in special groups. We gather peers who easily relate and can support each other.
Moderated by Gay & Bisexual peers with prostate cancer, this group addresses your specific questions. Our moderators are both technically expert and supportive.
The group is open to all levels of prostate cancer no matter where you are in your journey. AnCan offers specific prostate cancer groups at all levels. This group will focus on gay and bisexual issues less comfortable to raise in open groups rather than treatment questions.

TODAY ONLY we’ll start at 6pm ET
Next month and onward: 2nd Tuesdays of every month at 5:30pm Eastern/ 4:40pm Central/ 3:30pm Mountain/ 2:30pm Pacific always in the AnCan Schmier Room.
Meetings are free and drop-in – no sign up or pre-registration required.
Sign up to receive a Reminder before each meeting at https://ancan.org/contact-us/
Other virtual AnCan Groups include stage-based prostate cancer, art and creative writing classes, Veterans programs and mental health support.

AnCan Foundation dedicates this group in loving memory of Ken Mason

Gay & Bisexual Men Prostate Cancer Group

 


Gay or bisexual men diagnosed with prostate cancer have particular concerns. Addressing them with your peers is far easier!
AnCan Foundation, the innovator of virtual support groups, addresses special interests in special groups. We gather peers who easily relate and can support each other.
Moderated by Gay & Bisexual peers with prostate cancer, this group addresses your specific questions. Our moderators are both technically expert and supportive.
The group is open to all levels of prostate cancer no matter where you are in your journey. AnCan offers specific prostate cancer groups at all levels. This group will focus on gay and bisexual issues less comfortable to raise in open groups rather than treatment questions.

2nd Tuesdays of every month at 5:30pm Eastern/ 4:40pm Central/ 3:30pm Mountain/ 2:30pm Pacific always in the AnCan Schmier Room.
Meetings are free and drop-in – no sign up or pre-registration required.
Sign up to receive a Reminder before each meeting at https://ancan.org/contact-us/
Other virtual AnCan Groups include stage-based prostate cancer, art and creative writing classes, Veterans programs and mental health support.

AnCan Foundation dedicates this group in loving memory of Ken Mason

Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 23, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 23, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 23, 2025

UPCOMING PRESENTATION

Dr. JONATHAN EPSTEIN IS BACK for an AnCan webinar on Tue, Sep 30 at 8.pm Eastern!
“Interpreting Prostate Needle Biopsies in Today’s World”
Bx explained from early AS to advanced Pr Ca inc. AI – with lotsa time for Q&A.
Register at https://ow.ly/PpoX50WVsJ4

NEW monthy GAY & BISEXUAL MEN’S Prostate Cancer Group starting Tue, Oct 14.
Sign up at https://ancan.org/contact-us/

Hear John Maxwell on Solo Arts Heal https://youtu.be/UQuMUm6HHqU and buy Hammering Nails for AnCan’s fundraiser https://www.amazon.com/Hammering-Nails-Poems-strange-topics/dp/B0BNJHYVG3?mc_cid=8e4adc6969&mc_eid=838454d636

AnCan thanks the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Hiding in plain sight, a new tumor docs failed to mention. (bn)

Topics Discussed

Upcoming AnCan group; newly diagnosed with a spot on his spine — consider zapping both prostate and tumor; what’s happening with Medicare and telehealth?; a Pluvicto update after his first treatment; after focal therapy, docs kept quiet about a new tumor, and it may now be escaping the prostate; lots of metastasis, PSA in the thousands, but he got doublet therapy, not triplet; a 0.04 PSA rise isn’t worrisome; he’s offered Clomid to raise testosterone (why not just take testosterone?); massive sweating spells that far exceed hot flashes; prior mastectomy complicates planned radiation for sore nipples; thanks to John Maxwell for giving AnCan the proceeds of his poetry collection during September; great experience from Dr. Guercio in Rochester; ready to shift his care to a top NYC hospital.

Chat Log

Ben Nathanson · 6:16 PM
NY Times: In Chicago, a New Approach to Gay and Bisexual Men With Prostate Cancer https://www.nytimes.com/2021/12/07/health/prostate-gay-sex-cancer.html?unlocked_article_code=1.oE8.Ij-J.lRa7OMYAXY5h&smid=url-share Allen Edel: Gay men should never have a prostatectomy https://www.prostatecancer.news/2021/

AnCan – rick · 6:29 PM
Kevin courtney is the GU med onc

AnCan – rick · 6:29 PM
at UTSW that I ws truying to recall.

Alfredo in Houston · 6:31 PM
https://profiles.utsouthwestern.edu/profile/131906/kevin-courtney.html

Alfredo in Houston · 6:32 PM
https://www.houstonmethodist.org/doctor/eleni-efstathiou/

AnCan – rick · 6:39 PM
PROMISE Trial https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar

Alfredo in Houston · 7:03 PM
https://www.uofmhealth.org/profile/2980/todd-matthew-morgan-md

AnCan – rick · 7:27 PM
Interpreting Prostate Needle Biopsies in Today’s World” with global expert Dr.Jonathan Epstein , Advanced Uropathology Register at https://ow.ly/PpoX50WVsJ4 – free.

Jim Marshall, Veteran, Alexandria, VA · 7:28 PM
https://ancan.us14.list-manage.com/track/click?u=ece3f3da90f82cb974b407396&id=9b15081950&e=7e455a27bb For Veterans Speaking Freely. Jim

AnCan – rick · 7:29 PM
AnCan Schmier Room – https://www.gotomeet.me/ancanschmier

Don Rogers · 8:08 PM
anastrozole 1 mg twice a week

AnCan – rick · 8:23 PM
casodex

Frank Ciambra · 8:35 PM
i just did my 7th pluvicto last wednesday i am recovering well and ave atrip planned to see my son and his family this weekend and will be jammig music tommorow night

Frank Ciambra · 8:38 PM
im going to see my son who recently retirrd from the teams in va beach mygrandsons have bb tornaments this weekend

AnCan – rick · 8:42 PM
Dr. McHugh, Dr. Rathkopf, Dr. Autio

AnCan – rick · 8:44 PM
geenitourinary (GU) medical oncologist

AnCan – rick · 8:48 PM
Embr watch

Hi-Risk/Recurrent/Advanced PrCa Video Chat, Sep 23, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, Aug 26, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, Aug 26, 2025

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Novartis, Johnson and Johnson, Myriad Genetics, Telix, Blue Earth Diagnostics and Foundation Medicine

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Bright hopes for estradiol patches to reduce ADT effects, from Dr. Paul. (bn)

Topics Discussed

A professor’s worry about hot flashes while teaching prompts many familiar suggestions — plus an unexpected one: an illuminating discussion of estradiol by Dr. Paul, who’s serious about seeing it get wider use; Marc V., starting chemo, shares a “week that’s been one of the most challenging in my life”; PSA relapse after April’s Pluvicto leaves him wondering — more Pluvicto? xaluritamig trial? alpha trial?; wrestllng with Orgovyx side effects — on top of severe back pain, sleep apnea, and multiple sclerosis — and he’s seeing the wrong cancer specialist; new research of muscle loss in cancer; muscle loss hits a patient in his 80s harder than one in his 60s; why get two DNA tests — germline and somatic — for his RB1 gene?; he’s wondering what to expect when starting ADT — and while experiences vary, nobody here is a fan.

Chat Log

Jon McPhee Toronto · 6:26 PM
What about estrogen patches?

AnCan – rick · 6:26 PM
soy isoflavones

John A · 6:27 PM
Jon, yes that’s partly what I meant by if simple measures don’t work consider hormone treatment.

John Maxwell · 6:29 PM
HOT FLASHES: I am having good success with the Embr Wave 2 wrist band reducing, not eliminating my hot flashes, especially at night. I am very happy with it.

Alain · 6:30 PM
Thanks John!

Frank Ciambra · 6:52 PM
Xalurtamig

Len Sierra · 7:15 PM
www.mskcc.org
Charles James Ryan, MD – MSK Genitourinary Medical Oncologist
480 Red Hill Rd, Middletown, NJ 07748

Len Sierra · 7:18 PM
Phone for Ryan: Call 646-392-1746

AnCan – rick · 7:23 PM
Activin-A , Think the researcher may be David Hyman at MSKCC

AnCan – rick · 7:24 PM
first-in-human phase I study of the Activin A inhibitor, STM 434, in various solid tumors.

AnCan – rick · 7:44 PM
Jim C – Chuck Ryan’s URL https://www.mskcc.org/cancer-care/doctors/charles-ryan

AnCan – rick · 7:45 PM
dr.john@ancan.org

Jeff Marchi – San Francisco · 7:46 PM
A really good study by Dr. Efstathiou

https://www.urotoday.com/conference-highlights/apccc-2024/151546-apccc-2024-debate-how-to-best-manage-a-fit-patient-with-high-risk-localised-and-locally-advanced-prostate-cancer-how-to-select-patients-for-adjuvant-therapy-after-radical-prostatectomy-and-how-to-treat-them.html

Jon McPhee Toronto · 7:48 PM
Question: I am going to get a shot of Zoladex (goserelin). Apparently popular in Canada, but I never see it mentioned in US. Any idea why?

AnCan – rick · 7:50 PM
Frank C – alphabreak trial https://clinicaltrials.gov/study/NCT06402331?cond=Prostate%20Cancer&term=AlphaBreak&rank=1#locations

AnCan – rick · 7:52 PM
Frank C – in the middle of the country Grand Rapids, St. Louis, and Omaha offer the treatment.

AnCan – rick · 7:53 PM
Not great input on AMG509 – coupleof our guys could not get into th tril. One gent had no response.

Jeff Marchi – San Francisco · 7:53 PM
On ADT for 9 years. Orgovyx for 2 years. No real fatigue. It varies for others

Frank Ciambra · 7:54 PM
Thank you ,how can i get in touch with you

AnCan – rick · 7:59 PM
AMG509 – https://clinicaltrials.gov/study/NCT06402331?cond=Prostate%20Cancer&term=AlphaBreak&rank=1#locations

dan, alexandria · 8:00 PM
thanks