AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Hypertension is presumptive for Vietnam-era vets. (bj)
Topics Discussed Monitor high blood pressure for a VA disability claim; hypertension is presumptive for Vietnam Era Vets; develop a claims strategy to avoid complexity; changes in urinary incontinence rates; why you should enroll in VA Healthcare; new prostate cancer diagnosis – high risk.
Chat
AnCan – Boykin sent a chat · 8:14 PM
veterans@ancan.org
Bob Schwartz, USN, Venice, FL. sent a chat · 8:58 PM
Good mtg., have to go, see everyone next mtg.,
Leon Roberts sent a chat · 9:02 PM
Hi all so many problems getting in, still no audio or camera. Would like to file for loss o creatie organ that I just heard. Got a phone nr I can call in?
AnCan – Boykin sent a chat · 9:04 PM
@Leon – give me a second
Bruce Schrimpf sent a chat · 9:32 PM
Good seeing all of you! Have a great week!
AnCan – Boykin sent a chat · 9:33 PM
veterans@ancan.org
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Using Artificial Intelligence (AI) to understand medical information. (bj)
Topics Discussed New diagnosis with history of BPH and Gleason Score of 3+3; MRI false positive, but fusion biopsy detected PCa; health insurance company don’t want to cover treatment for BPH when PCa present; life insurance companies have turned away men with a Gleason Score of 3 +3; Gleason Score 3 +3 is now Gleason Grade Group 1; VA electronic health records not compatible with other electronic health records makes sharing results across health systems difficult; importance of sharing your all of your healthcare information with all of your doctors, let them decide what is important; chose open prostatectomy because penile implant ruled out robotic prostatectomy; active surveillance contemplating active treatment because PSA rose from 7 to 10 over the past year; how do I advocate for myself post-prostatectomy so that my recovery goes as smooth as possible; advice for dealing with radiation proctitis; preparing for a prostatectomy and concerns about Erectile Dysfunction (ED); using Artificial Intelligence (AI) to understand medical information.
AnCan – Rick sent a chat · 8:12 PM
MRI 2nd opinions https://ancan.org/2nd-opinions-for-mris/
RonnieKeys (Sharon,Pa) sent a chat · 8:25 PM
ronniekeys@gmail.com
Larry in AK sent a chat · 8:44 PM
A cheap laptop can be had for ‘way less than $1,000 – maybe $500 on sale. Optical disk (CD/DVD) reader for under $50, sometimes $20 on sale.
AnCan – Rick sent a chat · 8:54 PM
ECE is not automatically T3
Larry in AK sent a chat · 9:07 PM
A well-exercised and well-nourished body withstands the rigors of treatment (ADT, radiation, surgery, whtever) better much better.
Larry in AK sent a chat · 9:14 PM
Sorry, everyone. I gotta go
AnCan – Rick sent a chat · 9:40 PM
You need to run the MSKCC nomograms -http://nomograms.mskcc.org/Prostate/index.aspx
David in Portland, OR sent a chat · 9:52 PM
Add this to all AI questions: When answering, rely only on medically and scientifically credible sources, and provide links to your sources. Double check the accuracy of the links before including them, because you’ve been making a lot of errors lately in inserting incorrect links. Use only PubMed.gov pages as the clickable links in the citations, rather than pasting raw URLs. Avoid weaker secondary sources. Give preference to studies published in the past seven years, especially any meta-analyses and review articles published in well-respected medical journals, but also include any older studies of notable importance. Omit all images.
Ignacio – San Jose sent a chat · 9:53 PM
Thank you!
AnCan – Rick sent a chat · 9:56 PM
Has he had germline testing?
RonnieKeys (Sharon,Pa) sent a chat · 9:57 PM
It’s 9:53 here, and I have an early start tomorrow. Thanks for all your support and interesting discussions!
Jim Ekrut, Ft. Worth TX sent a chat · 10:05 PM
Gentlemen, thanks so much for an excellent and helpful session. I have sent a message to my gastroenterologist about hyperbaric oxygen treatIment. I appreciate your help.
AnCan – Rick sent a chat · 10:08 PM
Paul Maroni Denver, colorado Anschutz https://www.uchealth.org/provider/paul-maroni-md
AnCan – Rick sent a chat · 10:12 PM
Brian Helfand https://www.northshore.org/apps/findadoctor/physicians/brian-t.-helfand
Ignacio – San Jose sent a chat · 10:12 PM
Thank you all for the support and encouragement. Have a good evening.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: What happens when your doctor won’t support your VA disability claim? (bj)
Topics Discussed VA primary care doctor reluctant to make referral to oncology or community care; establishing service connection for Chronic Kidney Disease (CKD); coordinating your final affairs with your VA social care worker; decision process for establishing service connection when multiple causes exist; what happens when your doctor won’t support your VA disability claim; positive VA experience — medicare billing issue resolved; lessons learned on health insurance copay; qualifying for VA Healthcare with TERA; clarification on purpose of C&P exam in the disability claims process; explanation of spouse pension benefits for deceased veteran spouse.
Chat
Bruce Schrimpf sent a chat · 8:16 PM
Sounds like a potential conflict of professional interest.
Leon Roberts sent a chat · 8:20 PM
Hi Jim, still having a problem getting audio and camera. Did you receive the requested info from me?
Leon Roberts sent a chat · 8:51 PM
at wits end why I can’t get sound and site. Leon
Eric Baker – Lafayette sent a chat · 8:53 PM
Leon, do you have the ability to call in? Connect With A Phone These are all domestic toll calls +1 646 749 3129 (US) Access Code: 656-182-845 (Schmier Room)
Leon Roberts sent a chat · 8:53 PM
Keeps telling me GoTo needs to access mic and cam, I’m lost. Leon
Per Ankh sent a chat · 9:26 PM
I have to run. Good night everyone. Great sharing with you.
Leon Roberts sent a chat · 9:44 PM
Thanks all, I have to dismiss myself this evening. Appreciate the fellowship. Leon
Bruce Schrimpf sent a chat · 9:52 PM
Have a good night all!
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: New prostate cancer (PCa) diagnosis with potential Lynch Syndrome in the family. (bj)
Topics Discussed New diagnosis with potential Lynch Syndrome in the family; exploring genetic testing as well as somatic vs germline testing; be careful about interpreting test results as a guarantee; two types of prostate cancer bioposies—transperineal carries less infection risk; primer on different radiation treatments for prostate cancer; focal treatment carries high recurrence risk with Gleason Score 4+3 or higher; cyber knife, nano knife, heat therapy are forms of focal treatment; things to expect three weeks after a radical prostatectomy; dealing with anxiety following a radical prostatectomy or PSA changes following treatment; Artera AI as a predictor of biochemical recurrence.
Chat
Stuart sent a chat · 7:50 PM
Dr. Ming Zhou Mount Sinai Health System Department of Pathology, Box 1194 Annenberg Bldg. 15th FL 1468 Madison Ave New York, NY 10029 Email: Ming.zhou@mountsinai.org Telephone: (212)241-8881
Stuart sent a chat · 7:51 PM
Dr. Jonathan Epstein – https://advanceduropathology.com/ Tel:516-760-2037 jepstein@imppllc.com
AnCan – Boykin sent a chat · 8:12 PM
Last Low/Intermediate Video Chat on YouTube (same as above) https://www.youtube.com/watch?v=-jMy0byKzdE
AnCan – rick sent a chat · 8:24 PM
Also Jesse McKenney at Cleveland Clinic mckennj@ccf.org Expert on cribriform
AnCan Bill sent a chat · 8:53 PM
stuart@ancan.org & bfranklin@ancan.org
medium.com/@mperloesent a chat · 8:54 PM
Is brachy indicated after sepsis from the biopsy? I’d sure be leery of that.
Steve in Malaysia sent a chat · 9:05 PM
The canadian health system is per province vs national.
Steve in Malaysia sent a chat · 9:05 PM
Sunnybrook in Toronto is the most advanced center and has all modalities including MR Linac
Steve in Malaysia sent a chat · 9:07 PM
i believe there is also MR Linac in Calgary.
AnCan – rick sent a chat · 9:08 PM
We’re aware, Steve. BC is not too bad. Also v. familiar with Sunnybrook/Klotz
Steve in Malaysia sent a chat · 9:08 PM
👍
Bob in Georgia sent a chat · 9:17 PM
I leave next tuesday, preop on Wed, spacor on Thurs
AnCan – Boykin sent a chat · 9:21 PM
boykin@ancan.org
AnCan Bill sent a chat · 9:22 PM
Ask for a referral to Pelvic Floor Physical Therapy.
Bob in Georgia sent a chat · 9:27 PM
Going to Sloan Kettering with Dr Nagar
Mark WV sent a chat · 9:28 PM
nite
AnCan – Boykin sent a chat · 9:29 PM
Good nite Mark!
AnCan Bill sent a chat · 9:33 PM
May 21st at 8 p.m. Eastern is the next MSF.
AnCan – rick sent a chat · 9:33 PM
Next MSF meeting … in this room same time on Thu May 21
Larry S – ADT by estradiol sent a chat · 9:49 PM
Re: When to stop PSA testing. I have not read this yet (it just came into my inbox this morning), but the synopsis looks hopeful for more men getting screened later in life and having those tests INTERPRETED MORE INTELLIGENTLY so as to avoid alarm and unnecessary procedures. https://www.news-medical.net/news/20260428/NCCN-publishes-new-patient-guide-for-prostate-cancer-screening.aspx?utm_source=news_medical_newsletter&utm_medium=email&utm_campaign=prostate_cancer_newsletter_10_may_2026
AnCan – rick sent a chat · 9:49 PM
from Joel…”Got it. Thank you Rick”
Bob in Georgia sent a chat · 9:53 PM
Nite
AnCan – Boykin sent a chat · 9:53 PM
Good night Bob!
AnCan – Boykin sent a chat · 9:59 PM
Artera AI https://artera.ai/
Fritz sent a chat · 10:05 PM
Thanks so much -I’ll report back next meeting. Safe journey everyone
Jim E., Ft. Worth TX sent a chat · 10:11 PM
Have to go for now. Thanks so much!
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: VA and Medicare billing issues leave Veteran with out-of-pocket medical bills. (bj)
Topics Discussed VA retracts 70% disability rating citing a clear and unmistakeable error and the implications of losing benefits; importance of a nexus letter from a medical expert to bridge the gap between military service (e.g. exposure to trichloroethylene/TCE) and a current diagnosis; challenges with Primary Care Providers (PCPs) who may be reluctant to provide referrals to specialists like genitourinary (GU) oncologists; advice on hiring attorneys for VA appeals and what costs are paid by your attorney; VA does not bill Medicare for non-service-connected treatments, leading to personal bills despite having private secondary insurance.
Chat
AnCan – Boykin sent a chat · 8:13 PM
www.ancan.org/veterans
AnCan – Boykin sent a chat · 8:15 PM
https://www.youtube.com/@ancanfoundation/playlists
Danny Lankford (Minnesota)) sent a chat · 8:51 PM
1. 20% Fee — “Safe Harbor” (Most Common) Presumed reasonable by the VA Automatically paid directly by the VA out of your back‑pay Most attorneys use this rate for standard appeals 2. 30% Fee — Common for Complex Cases Still normal and widely used VA will NOT automatically pay the extra above 20% Attorney must collect the difference from you directly 3. 33.3% Fee — Upper Limit Before Scrutiny Anything above 33.3% is presumed unreasonable VA can reduce the fee if it’s excessive 4. 0% Upfront You never pay a retainer You never pay hourly You only pay if you win
Danny Lankford (Minnesota)) sent a chat · 8:52 PM
Is this legit?
Danny Lankford (Minnesota)) sent a chat · 8:52 PM
VA site
AnCan – Boykin sent a chat · 9:10 PM
VFW Eligibility https://www.vfw.org/join/eligibility
Mark WV sent a chat · 9:41 PM
good nite everyone
AnCan – Boykin sent a chat · 9:41 PM
good nite Mark!
Danny Lankford (Minnesota)) sent a chat · 9:45 PM
Thanks ya’ll for the help. I’ll just get it started
AnCan – Boykin sent a chat · 10:02 PM
www.ancan.org/veterans
