Keeping Cool in the Heat of Summer

Keeping Cool in the Heat of Summer

Keeping cool in the heat of Summer… and tackling hot flashes year round

 

We hear it time and time again – keeping cool is not easy.

Many people across our communities complain about how much the heat impacts their ability to function at all – whether it’s from outside heat or internal flashes.

I can talk about this one pretty confidently myself, as I’ve been living with MS for 9 years now (wow!). It’s a known heat and cold -intolerant disease that causes temporary symptom flares known as Uhthoff’s Phenomenon. But I’m not the only one. Heat impacts many of us frequently – especially MS’rs and men on hormone therapy.

It’s a consistent and persistent problem for so many of us, so I’d like to dedicate this blog post to the hot, sweaty, brain-fogged, but brilliant AnCan community.

Below you’ll find some recommendations for cooling products and other resources that we hope will ease your summer; not to mention your Quality of Life all year round.

The first part is a list of specific products that are tried and tested by either myself or someone in one of our community groups – with many of them coming from one of our lead moderators, Kim Stroeh. Thank you, Kim!  Other suggestions come from AnCan Gents wrestling with hot flashes in the prostate cancer world, like Barry Blomquist and Bob Alvord… thank you!

Second is a list of products that we’ve heard about, but so far we don’t know of anyone who’s tried them; also products that maybe we have tried and tested, but don’t really have a specific link for.

Third is small list of tips and resources. I’m going to keep this part relatively small because it will probably need a completely separate blog post. Since Kim and I both have a chronic illness (MS) that makes us much more susceptible to the heat, a lot of our resources come from organizations that deal with it specifically. I’ve included those orgs that may be helpful no matter what our community may be living with.

 

Pro Tip:

Did you know that some insurance companies may cover the cost of a cooling product? That’s because it’s considered a DME (durable medical equipment). It may be tedious, but call them up and ask.

 

 

We don’t get any financial benefit from these products; these are just some things that our community members have recommended because they actually work for them. Hopefully they work for you too!

I’ll be including a lot of links from Amazon because it’s simply easier to see a wider range of products and brands in one spot. I know Amazon may not be everyone’s favorite shopping platform, so feel free to use these ideas as a springboard to your preferred shopping platform or store.

Have a product to add or a link to a product listed below? Email me at Hannah@ancan.org

1. Tried and True

Specific products that are tried and tested by someone in one of our community groups

Cooling Blanket

https://a.co/d/0hJIdVa7

  • I just got one at the start of the summer and I absolutely love it!! I wonder why I didn’t get one sooner. Keeps me cool under the blanket when I move around. When I’m still, it keeps me warm. – Hannah

Portable Rechargeable Neck Fan

https://www.lowes.com/pd/Ropilly-Neck-Fan-Rechargeable-Wearable-Fan-6-Speed-Hands-Free-Portable-Personal-Fan-USB-C-for-Travel-Office-Outdoor/6363936

  • Recommended by Bob Alvord (High Risk Prostate Cancer). See section 3 below for his favorite way to use this rechargeable neck fan when combined with a wet cooling towel!

MIDIAN Air Conditioning Vests

https://a.co/d/048mVjgA

  • An air conditioning vest. Recommendation from Barry Blomquist of our High Risk Prostate Cancer group.

Embr Wave 2

https://embrlabs.com/products/embr-wave-2

 

Cooling Products    

  • these are products that use some kind of gel or other substance sewn into an insert that you tuck into a larger item, such as a vest, hat, etc.

A note from Kim:

“If indoors with extended cooling packs will stay cool for 2-3 hours or longer. Outside, it depends on how hot it is. I think the melting temperature is 72 degrees vs 32 degrees of water. Can become solid again at room temperature if the ambient temperature is cool enough.”

Thermapparel Undercool 3 cooling vest

https://www.thermapparel.com/products/undercool-3?srsltid=AfmBOoqL5mu0GVd1NXc-Sinc_ysIvf0HOF1_I4_493kDiAJNuGncwSGW

  • “Don’t waste your money on slim packs, buy the extended packs and by an extra set so you can switch out in between (you can buy in bundle and save money). The one reason I like this cooling vest is that its cooling packs are only on your back so it weighs around 2 lb versus a prior cooling vest that had them both on the front and the back and weighed 8 lb that was very bulky and made me feel like a bulky football player. For me, heavy weight can make my fatigue worse/drain me faster and that is one of the reasons I did not like the heavier one. I wear this when I need it (now if I am outside for any length of time in summer or attempting to do yard work) and have to wear it when I train with my personal trainer twice weekly at the gym. It is not really noticeable visually wearing under a t-shirt unless it is body hugging, it has a relatively low profile.” – Kim

 

Other Thermapparel Products

https://www.thermapparel.com/collections/all

  • “I feel the grab and go packs are worthless (at least from my needs). But my needs are extreme. :-D” – Kim

 

Adjustable Zipper Cooling Vest with (5-12) 4.5″ x 6″ Kool Max® Packs

https://www.polarproducts.com/polarshop/pc/viewPrd.asp?idproduct=32&idcategory=508

  • “It looks like they changed the design since I bought it so you are using the smaller individual packs versus 4 larger packs. Remember, smaller compartments will melt faster and not last as long. Cooling vests are nice because you stay dry. Store in freezer/fridge so always ready to go.” -Kim

2. Products to Try

A list of products that we’ve heard about, but so far we don’t know of anyone who’s tried them; also products that maybe we have tried and tested, but don’t really have a specific link for.

Please use the search method or store of your choice. You can copy/paste from here to get more targeted results

Folding Hand Fan – the manual kind

  • “Carrying a portable foldable hand fan can go a long way. Incredibly grateful I bought mine into Target field. Lightweight, cheap, takes up little space and easy to transport.” – Kim

Portable Rechargeable Handheld Fan

  • I never use it because – it needs to be charged, bulkier and heavier than the foldable fan. – Kim

Portable Rechargeable Neck Fan     

Click the link here for Bob Alvord’s top choice. Then, scroll down to section 3 to see his genius way of using it.

  • “I am not a fan of the neck fans because they tend to be loud (so harder to hear) and don’t give enough breeze for me to be very effective. May be effective for others that are not as extreme as me.” – Kim
  • I have one that I use on occasion. It’s a cheap one. I like it well enough to bring with me on the rare summer hike, but not enough to recommend a specific one. It’s a little bulky and makes my neck sweaty where it hangs on my neck. Can also be a little bit loud, but I don’t usually mind. – Hannah

Cooling wrist wraps

Cooling Bra inserts

Cooling Hats

  • With a built-in fan
  • Water activated
  • Or just the gel inserts

Cooling headband/ wraps – can also search for cooling migraine relief

Cooling Scarves / towels

Cooling Eye Masks – Great for migraines too

Cooling Vests – see above for specific products

Cooling Pad for Car

  • Gel seat pads
  • Electric car seat covers

Cooling Pad for Seat– This set of search terms brings up a lot of the same links as above

Cooling pillowcases – side note- this will be my next purchase after the success of the cooling blanket I recently purchased! – Hannah

Cooling pillows

Cooling mattress

Cooling mattress topper

Cooling blanket

Bamboo sheets and bamboo pajamas

  • “If have issues being overheated while sleeping, I highly recommend getting both bamboo sheets and pajamas. They not only keep you cooler but will help wick away the moisture so you don’t feel drenched when you wake up.” – Kim

 

REON POCKET PRO Plus

Not yet on the market, but Barry Blomquist (Prostate Cancer community) mentioned it. Sensors actively adjust to temperature shifts maintaining your personalized comfort, while dual thermo-modules deliver efficient on-the-go cooling and warming.

https://electronics.sony.com/t/reonpocket

 

 

3. Resources

I’ve included those orgs that may be helpful no matter what our community may be living with. Just good, practical advice to beat the heat.

 

MS Society

https://www.nationalmssociety.org/managing-ms/living-with-ms/diet-exercise-and-healthy-behaviors/heat-temperature

  • You’ll find tips + even more links to cooling products they recommend (including cooling bra inserts, eco- friendly products, cooling hats & wrist wraps, & others). Some even come with discount codes!

 

Tips for staying cool

https://www.nationalmssociety.org/news-and-magazine/momentum-magazine/living-well/20-ways-to-survive-summer

  • Good, practical advice that seems a little bit obvious at times, but there’s some surprising tips in there as well.

https://msfocus.org/Magazine/Magazine-Items/Posted/Sound-Summer-Sleep-with-MS.aspx

  • Advice for sleeping at night. Lots of mention of products that I’ve listed above

 

Tips for Sleep

“The ceiling fan is your friend. I have also learned I need to turn the air down to 70 degrees from 72 degrees when I sleep because it is still too hot where my body touches the mattress.” – Kim

I use a slim floor fan, but have it set up on top of a nightstand at the foot of my bed. I also turn the AC down to 71F at night. I also make it a habit to use lotion on my feet and legs right before I get into bed. It has a soothing, cooling effect that keeps the heat away for a while – especially with the fan blowing directly on me. – Hannah

 

Tips & Habits to Sprinkle Throughout Your Day

“Drinking heavily iced water/beverages or frozen food can go a long ways. Most metal water bottles the ice will last most of the day.” – Kim

“I use floor fans when I am hanging outside on the highest setting. Helps keep bugs away too. Need outlet/extension cord available to access electricity. Can be kinda loud.” – Kim

 

Kim’s Ice Crown 

  • “A new thing I tried 3 weeks ago because using the cooling vest, heavy iced drinking water, and a spray bottle/fan that I keep in the fridge and add ice cubes before I left the house was not enough to keep my cool enough while training for 30min (I told you it was extreme!) I take bandana, open it up, line up ice cubes to two opposite diagonal corners (10-12 ice cubes for me from my ice maker), roll it up and tie around my head or neck. Will last about 30 -45 min wearing indoors. You will be wet from it and dripping with water and your t-shirt will get wet but that is okay for me during the summer. Store in ziplock bag when traveling with it and make ahead of time and store in freezer. I have it my thermapparel cooler when transporting so it doesn’t melt until I put it on. I call it my ice crown. Leave some space at the ends so you can tie it around your head or neck. Also rewetting bandana with icy water if hiking, etc helps after ice cubes melt. Cheap if you have ice maker but you will get wet from the chest up and doesn’t last as long as a cooling vest.”

 

Bob Alvord’s (High-Risk Prostate Cancer community) neck fan- towel combo

Image of Bob Alvord with his cooling towel and rechargeable neck fan combo

Bob Alvord with his cooling towel and rechargeable neck fan combo

Image of Bob holding his neck fan up so we can see it

“… I use a well hydrated cooling towel, large one and a wearable neck fan to alleviate hot flashes.  You wear the fan around your neck and then place the cooling towel over the fan. This system greatly lowers the towel temperature. My measurement of the towel with the fan is around 65 degrees, using a thermometer. Placing the towel against your corotid, with a 65 degree temperature source is enough to lower exposure to heat. ”

 

 

 

Have a product, tip or URL to recommend? Email me at Hannah@ancan.org

We’ll update this post as needed

Veterans Video Chat, 06/02/2026

Veterans Video Chat, 06/02/2026

Veterans Video Chat, 06/02/2026

Veterans Video Chat, 06/02/2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.

If you missed any recent recordings, you’ll find the full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/. Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/.

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.

AnCan  cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.

All AnCan’s groups are free and drop-in … join us in person sometime!

Join our other free and drop in groups:

Editor’s Pick: Hypertension is presumptive for Vietnam-era vets. (bj)

Topics Discussed
Monitor high blood pressure for a VA disability claim; hypertension is presumptive for Vietnam Era Vets; develop a claims strategy to avoid complexity; changes in urinary incontinence rates; why you should enroll in VA Healthcare; new prostate cancer diagnosis – high risk.

Chat

AnCan – Boykin sent a chat · 8:14 PM
veterans@ancan.org

Bob Schwartz, USN, Venice, FL. sent a chat · 8:58 PM
Good mtg., have to go, see everyone next mtg.,

Leon Roberts sent a chat · 9:02 PM
Hi all so many problems getting in, still no audio or camera. Would like to file for loss o creatie organ that I just heard. Got a phone nr I can call in?

AnCan – Boykin sent a chat · 9:04 PM
@Leon – give me a second

Bruce Schrimpf sent a chat · 9:32 PM
Good seeing all of you!  Have a great week!

AnCan – Boykin sent a chat · 9:33 PM
veterans@ancan.org

Veterans Video Chat, 06/02/2026

Veterans Video Chat, 05/19/2026

Veterans Video Chat, 05/19/2026

Veterans Video Chat, 05/19/2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.

If you missed any recent recordings, you’ll find the full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/. Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/.

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.

AnCan  cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.

All AnCan’s groups are free and drop-in … join us in person sometime!

Join our other free and drop in groups:

Editor’s Pick: What happens when your doctor won’t support your VA disability claim? (bj)

Topics Discussed
VA primary care doctor reluctant to make referral to oncology or community care; establishing service connection for Chronic Kidney Disease (CKD); coordinating your final affairs with your VA social care worker; decision process for establishing service connection when multiple causes exist; what happens when your doctor won’t support your VA disability claim; positive VA experience — medicare billing issue resolved; lessons learned on health insurance copay; qualifying for VA Healthcare with TERA; clarification on purpose of C&P exam in the disability claims process; explanation of spouse pension benefits for deceased veteran spouse.

Chat

Bruce Schrimpf sent a chat · 8:16 PM
Sounds like a potential conflict of professional interest.

Leon Roberts sent a chat · 8:20 PM
Hi Jim, still having a problem getting audio and camera. Did you receive the requested info from me?

Leon Roberts sent a chat · 8:51 PM
at wits end why I can’t get sound and site. Leon

Eric Baker – Lafayette sent a chat · 8:53 PM
Leon, do you have the ability to call in?  Connect With A Phone   These are all domestic toll calls  +1 646 749 3129  (US)  Access Code:  656-182-845 (Schmier Room)

Leon Roberts sent a chat · 8:53 PM
Keeps telling me GoTo needs to access mic and cam, I’m lost. Leon

Per Ankh sent a chat · 9:26 PM
I have to run. Good night everyone. Great sharing with you.

Leon Roberts sent a chat · 9:44 PM
Thanks all, I have to dismiss myself this evening. Appreciate the fellowship. Leon

Bruce Schrimpf sent a chat · 9:52 PM
Have a good night all!

Veterans Video Chat, 06/02/2026

Veterans Video Chat, 5/7/2026

Veterans Video Chat, 5/7/2026

Veterans Video Chat, 5/7/2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.

If you missed any recent recordings, you’ll find the full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/. Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/.

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.

AnCan  cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.

All AnCan’s groups are free and drop-in … join us in person sometime!

Join our other free and drop in groups:

Editor’s Pick: VA and Medicare billing issues leave Veteran with out-of-pocket medical bills. (bj)

Topics Discussed
VA retracts 70% disability rating citing a clear and unmistakeable error and the implications of losing benefits; importance of a nexus letter from a medical expert to bridge the gap between military service (e.g. exposure to trichloroethylene/TCE) and a current diagnosis; challenges with Primary Care Providers (PCPs) who may be reluctant to provide referrals to specialists like genitourinary (GU) oncologists; advice on hiring attorneys for VA appeals and what costs are paid by your attorney; VA does not bill Medicare for non-service-connected treatments, leading to personal bills despite having private secondary insurance.

Chat

AnCan – Boykin sent a chat · 8:13 PM
www.ancan.org/veterans

AnCan – Boykin sent a chat · 8:15 PM
https://www.youtube.com/@ancanfoundation/playlists

Danny Lankford (Minnesota)) sent a chat · 8:51 PM
1. 20% Fee — “Safe Harbor” (Most Common) Presumed reasonable by the VA Automatically paid directly by the VA out of your back‑pay Most attorneys use this rate for standard appeals  2. 30% Fee — Common for Complex Cases Still normal and widely used VA will NOT automatically pay the extra above 20% Attorney must collect the difference from you directly  3. 33.3% Fee — Upper Limit Before Scrutiny Anything above 33.3% is presumed unreasonable VA can reduce the fee if it’s excessive  4. 0% Upfront You never pay a retainer You never pay hourly You only pay if you win

Danny Lankford (Minnesota)) sent a chat · 8:52 PM
Is this legit?

Danny Lankford (Minnesota)) sent a chat · 8:52 PM
VA site

AnCan – Boykin sent a chat · 9:10 PM
VFW Eligibility https://www.vfw.org/join/eligibility

Mark WV sent a chat · 9:41 PM
good nite everyone

AnCan – Boykin sent a chat · 9:41 PM
good nite Mark!

Danny Lankford (Minnesota)) sent a chat · 9:45 PM
Thanks ya’ll for the help. I’ll just get it started

AnCan – Boykin sent a chat · 10:02 PM
www.ancan.org/veterans

Veterans Video Chat, 06/02/2026

Veterans Video Chat, 4/21/2026

Veterans Video Chat, 4/21/2026

Veterans Video Chat, 4/21/2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics, and Foundation Medicine.

If you missed any recent recordings, you’ll find the full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/. Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/.

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.

AnCan  cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.

All AnCan’s groups are free and drop-in … join us in person sometime!

Join our other free and drop in groups:

Editor’s Pick: Small acts of kindness go a long way. (bj)

Topics Discussed
Correcting your VA claim record when the VA thinks you stopped medical treatment; obtaining your medical records from the VA requires a FOIA request; work the AnCan network people in the group are willing to help you outside of AnCan sessions; when people go out of their way to help you find a positive way to thank them — small acts of kindness go a long way; in-person visits can produce better outcomes than phone or online interactions; ALS is considered to presumptive by the VA; understanding Special Monthly Compensation (SMC) Subsection S (SMC-S) housebound benefits.

Chat

AnCan – Boykin sent a chat · 8:14 PM
veterans@ancan.org

AnCan – Boykin sent a chat · 8:17 PM
YouTube Channel https://www.youtube.com/@ancanfoundation/playlists

Israel sent a chat · 8:40 PM
VSO

Israel sent a chat · 8:40 PM
Another benefit og going to your local VA office in person is that they usally have VSO offices in the same building.

Hank Zajic  Springfield VA sent a chat · 9:07 PM
I have to head off.  Best regards to all and thank you for a great meeting Capt Jim!

Bruce Schrimpf sent a chat · 9:10 PM
If any VA intake person who is a male wants to argue that getting a shot in the penis is not really a disability, let that goof be the first to volunteer for the proceedure!

Eric Baker – Lafayette sent a chat · 9:18 PM
I am going to sign off for the night!  Thank you everyone!

AnCan – Boykin sent a chat · 9:19 PM
Good night Eric!

Bruce Schrimpf sent a chat · 9:54 PM
Bruce is 80

Bruce Schrimpf sent a chat · 9:59 PM
Good seeing all if you again.  Great job Jim!

AnCan – Boykin sent a chat · 10:00 PM
veterans@ancan.org

Veterans Video Chat, 06/02/2026

Veterans Video Chat, April 7, 2026

Veterans Video Chat, April 7, 2026

Veterans Video Chat, April 7, 2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics, and Foundation Medicine.

If you missed any recent recordings, you’ll find the full list either on our YouTube Playlist or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/. Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/.

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.

AnCan  cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.

All AnCan’s groups are free and drop-in … join us in person sometime!

Join our other free and drop in groups:

Editor’s Pick: Applying for VA Health Care benefits. (bj)

Topics Discussed
Losing Special Monthly Compensation (SMC) when your treated prostate cancer gets rated on its residual effects; establishing service connection for prostate cancer when you didn’t deploy to Southwest or Southeast Asia; importance of intent to file in establishing your start pay date for a disability claim; applying for VA Health Care benefits; Compensation & Pension (C&P) exam notification informs you which claims are included in the exam; strategies and data gathering to support chronic kidney disease (CKD) claims; linking CKD to radiation treatment residuals or urinary incontience; preparing for Board of Veterans Appeals hearing; understanding the difference between an a formal appeal and supplemental claim; billing questions when the doctor or practice you’re seeing changes under Community Care.

Chat

Eric Baker – Lafayette sent a chat · 9:30 PM
I am going to head out gentlemen, have a great evening and see you all in two weeks!

AnCan – Boykin sent a chat · 9:32 PM
Good night Eric!

Israel sent a chat · 9:48 PM
Sorry, I have to run.  See you next time.

AnCan – Boykin sent a chat · 9:50 PM
Good night Israel

Bruce Schrimpf sent a chat · 9:57 PM
Great meeting!  Learned a lot!

AnCan – Boykin sent a chat · 10:05 PM
veterans@ancan.org