Hi-Risk/Recurrent/Advanced PCa Video Chat, Mar 26, 2024
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.
View AnCan’s patient-centered selection of papers and presentations from ASCO GU 2024, one of the top conferences on prostate cancer treatment: • ASCO GU 2024 conference highlights https://www.youtube.com/watch?v=YweU8hjA0Lw&t=2s
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s Pick: The new hot flash drug for women works for one of our guys, too. (bn)
Chat Log
Unknown · 6:23 PM PROMISE link – just clck on this https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
Steve Roux, MI · 6:31 PM Promise sent me a free DNA “Color” test kit and I sent the kit back. They say it will be 30 days to get results.
Jim Marshall, Alexandria, VA · 6:45 PM Did Abiraterone for 5 years with Prednisone & lupron and did aerobic exerices most days and tolerated it prety well as long as i exercised.
Unknown · 6:49 PM thanks for all your input and information, guys
Bob McHugh · 6:53 PM I had Axumin at .5 PSA . Found a quarter sized lesion in the prostate bed.
AnCan – rick · 6:57 PM To Join Solo Arts Heal with Beth Horner tomorrow at 7.30 pm Pacific Join from the link below https://themarsh.org/soloartsheal
Len Sierra · 7:02 PM Got to leave, Gents. See you next week.
Bob McHugh · 7:17 PM Where was the cardiac cath done, if I may ask?
Bob McHugh · 7:18 PM Three stents here.
Richard Tolbert · 7:18 PM Jim Ma
Bob McHugh · 7:22 PM Is an EKG advisable?
Kirt Schaper · 7:31 PM I have to go.
Unknown · 7:32 PM An echocardiogram can test your hearts function and structure.. it can find many issues
Jim Marshall, Alexandria, VA · 7:34 PM Had the echocardiogram and it did not show anything. I went to the Nuc;lear Stress test which showed 2 Stents surely needed. Jim
Jim Marshall, Alexandria, VA · 7:36 PM Liptor did no good for me along with Crestar. But later and been on Pravastatin knocked it down to 142 with HDL up and LDL down below recommended. jim
Wang Gao Shan – PANAMA · 7:36 PM Thanks Everyone… I have to go.
Unknown · 7:40 PM Thanks Jim
Dr. Jeff · 7:42 PM Arterioscler Thromb Vasc Biol. 2020;40:e55–e64. DOI: 10.1161/ATVBAHA.119.313046
Unknown · 7:44 PM Statins make me weak, my cholesterol has always been low but my PCP recommended a statin, took me months to figure out how weak they made me. My oncologist figured out that the statin was the cause.
Steve Roux, MI · 7:54 PM yes. need to ask about firmagon. My insurance denied the orgovyx.
Dr. Jeff · 8:01 PM Russ Hoover: I had frequent hot flashes on Firmagon and Abiraterone. I eat tofu and ground flax seeds daily and the hot flashes are markedly reduced.
David M · 8:05 PM I have to roll guys.
David M · 8:06 PM Great meeting as always
marc valens · 8:07 PM I’m still getting Lupron shot in the butt every 3 months.
Unknown · 8:07 PM Thanks guys
Jim Marshall, Alexandria, VA · 8:14 PM May the Lupron Supply chain is stocked until it runs out. ABBvie stopped production last year. Jim
Larry Fish · 8:15 PM whats the name of the new drug for hot flashes?
Jim Marshall, Alexandria, VA · 8:15 PM Maybe UPS directly to Dr E.
Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 15, 2024
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.
Welcome AnCan’s first 2024 webinar with two blockbuster headliners — GU med onc Dr. Oliver Sartor and nuclear medicine pioneer Dr. Phillip H. Kuo — “Radionuclide Diagnostics & Theranostics – Theory and Clinical Practice Meet!” Register now at https://tinyurl.com/radionuclide – free as always. Two globally recognized experts introduce us to radionuclide scans and treatment, and help us understand how best to coordinate our care team.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s Pick: Four new men give us plenty to talk about. (bn)
Topics Discussed
With “innumerable” metastases, he braces for chemotherapy; urologist blames the patient for ADT mood swings, and also fails to prescribe second-line drug; focal therapy might be right for post-radiation recurrence; PSA nearly 50 but biopsy claims he’s Gleason 6 — prostatectomy proves otherwise; colon cancer’s genetic tie-in with prostate cancer; drug holiday’s an option, but keep calm when PSA creeps up; “I’ve been to the four corners of the United States” seeing doctors — Dr. E is next; don’t put off somatic testing, and consider abiraterone monotherapy; let precision medicine target your BRCA before considering a clinical trial; vomiting worsens with with each Pluvicto round — seek palliative care!; wobbly testosterone recovery; even without testosterone, getting stronger through exercise.
Chat Log
Peter Kafka – Maui · 8:23 PM
somatic genetic testing
AnCan – rick · 8:28 PM
Men Speaking Freely https://ancan.org/men-speaking-freely/ Thursday, 8.00 pm Eastern in this room. Just drop-in
AnCan – rick · 8:37 PM
Genitourinary Medical Oncologist
Peter Kafka – Maui · 8:39 PM
peterk@ancan.org
AnCan – rick · 8:46 PM
Channing Paller https://www.hopkinsmedicine.org/profiles/results/directory/profile/3138167/channing-paller
AnCan – rick · 8:50 PM
PROMISE https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar
AnCan – rick · 8:54 PM
Steven don’t forget Men Speaking Freely on Thursday
dennis NJ · 9:10 PM
Thank you everyone
AnCan – rick · 9:17 PM
Elisabeth Heath https://www.karmanos.org/karmanos/karmanos-physician-directory/heath-elisabeth-8225
Frank Fabish Columbus OH · 9:39 PM
Thanks everyone. got to go.
Gary – New Jersey · 9:41 PM
Thank you everyone for the discussion and your suggestions. Have to go now.
“Thomas” Matica WA · 9:52 PM
Thanks, Len. I’ll look it up.
Len Sierra · 9:54 PM
HK2 : Human kallikrein-related peptidase 2 (hK2) is a tumor-associated member of the kallikrein family that shares significant homology to prostate-specific antigen and is minimally expressed in normal non-prostate tissues.
Jeff betz · 10:02 PM
Gotta go guys thank you!
AnCan – rick · 10:08 PM
https://ancan.org/your-dental-health/ Dental Posts
Len Sierra · 10:12 PM
Phase 2 study suggests that Abi monotherapy may be as effective as Abi + ADT. Published in journal Nature. https://www.nature.com/articles/s41391-022-00533-6
Steven Roberts · 10:13 PM
ok, fellas I got to drop….talk to you all next week and thanks
Hi-Risk/Recurrent/Advanced PCa Video Chat, June 27, 2023
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
WEBINAR this week … PARP-Inhibitors and their role treating Prostate Cancer. Who saw the FDA approval for Talapro + Xtandi this week? Hear one of the investigators talk about this combo on Thu June 29. Register at https://tinyurl.com/ancanparpwebinar
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s pick:Where next when standard treatments are behind you? (bn)
Topics discussed
Chance a risky trial hundreds of miles away?; think ahead before firing the last bullet; mixed reviews of Cancer Commons; “too old for a PSA test” and now metastatic; what’s “Pluvicto” in Canadian?; one man, two dueling prostate cancers; making it through Pluvicto; check for PSMA avidity before a pricey treatment; will Pluvicto last?; facing chemo after six lucky years on ADT; after success with triplet therapy, time for drug holiday?; new man starting Keytruda; bad cancer + low PSA?; shrinking the unshrinkable prostate; turned away at OHSU and seeking something comparable; magnesium for neutropenia; BAT is no home run; what counts as exercise?
Chat Log
Mark Finn · 7:06 PM
Rick – finishing up packing for camping trip. Will have to depart soon.
David Muslin · 7:07 PM
Have fun Mark Finn
Ben Nathanson · 7:19 PM
Pluvicto – generic “lutetium Lu 177 vipivotide tetraxetan” – formerly “Lu-177 PSMA-617”
Frank Fabish Columbus OH · 7:32 PM
Got to go guys. Thanks again for good info. see you next Monday.
David Muslin · 7:48 PM
Got to roll men. See y’all next week.
AnCan – rick · 7:49 PM
646-749-3129 222 583 973
Steve Schuler · 7:49 PM
I think my laptop needs a reboot
Steve Schuler · 7:50 PM
My question was really simple actually: any suggestions in the northwest for good med oncologists for second opinions?
Bob G · 7:50 PM
Gotta go. Fatigue kicking in.
Steve Schuler · 7:51 PM
Yes, I’ve tried both the ear buds and now the laptop microphone, and neither is working for the microphone
Steve Schuler · 7:53 PM
Washington, Oregon, or I am also looking now at CA (San Francisco). I am willing to travel some. I am in Seattle
AnCan – rick · 7:53 PM
I’ll ask ….
Julian – Houston · 7:54 PM
Go to go – see you next week!
Hi-Risk/Recurrent/Advanced PCa Video Chat, June 13, 2023
AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant & Telix
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/
Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Editor’s pick: Prostatectomy after 70. Also: Pluvicto wiped out 99% of his cancer — time for a jig! (bn)
Topics Discussed
Metformin’s faded glory in PCa treatment; grateful for heads-up on Xgeva with radium-223; statins and PCa — still anybody’s guess; darolutamide monotherapy might cut fatigue; curious about new hot-flash drug for women; experience with Onco360 pharmacy; when will white blood cells rebound from radiation; bike seats and PCa; seeing metastasis in lymph nodes that radiation skipped; dry mouth and depression overshadow wild Pluvicto success; too old for prostatectomy?; Keytruda and more Keytruda.
Chat Log
Steve in MI · 6:09 PM
Suttons Bay is nice; my wife has a few properties she manages up there. We get to Interlochen at least 2 or 3 times during the summer for concerts. Styx is the next one.
Steve in MI · 6:13 PM
There is a few up around here in the summer: Charlevoix, Fish Town, Elk Rapids. Ours is in August I think.
Julian – Houston · 6:18 PM
stopped taking because it made my bones ache!
Gary P · 6:20 PM
While not actually diabetic, I was put on Metformin after my blood sugar levels went up significantly on Abiraterone.
Julian – Houston · 6:24 PM
Same here, Gary. Took for awhile and my A1C came down.
AnCan – rick · 7:33 PM
“Patients received Pluvicto 7.4 GBq (200 mCi) every 6 weeks for up to a total of 6 doses plus BSoC or BSoC alone.”
BSoC = best standard of care
Tom Maloney · 7:34 PM
The recommended Pluvicto dose is 7.4 GBq (200 mCi) intravenously every 6 weeks for up to 6 doses, or until disease progression or unacceptable toxicity.
Tom Maloney · 7:34 PM
up to 6 doses, not requiring 6 doses.
AnCan – rick · 7:34 PM
The trials all gave 6 doses
Len Sierra · 7:36 PM
Tom, the dry mouth usually resolves by itself soon after your treatment is complete.
AnCan – rick · 7:38 PM
We do not know anyone who did less than 5 doses by choice. Doesn’t mean there aren’t any. However your doc is recommending you finish up.
AnCan – rick · 7:39 PM
We’ve seen less than 6 doses but only where blood counts or other markers have been compromised.
AnCan – rick · 7:45 PM
Xgeva = denosumab
Steve in MI · 7:52 PM
Keep coming back Spencer.
? · 7:52 PM
Thank you to everyone for excellent advise.
Joe (Dubois WY) · 7:59 PM
keytruda
Julian – Houston · 7:59 PM
Keytruda
Julian – Houston · 8:00 PM
Thanks guys. Another great session.
Dr. Donald Abrams (Head of the Osher Integrative Cancer Center at UCSF and former Chief Oncologist at Zuckerberg San Francisco General) presented a webinar on June 24th titled “Prostate Cancer Prevention and Treatment: An Integrative Approach“
This webinar is wide reaching and covers a variety of topics, such as diet, exercise, stress, supplements, medical marijuana (he was an early proponent), and much more.
Here is what Rick Davis has to say about Dr. Abrams
I know Dr. Abrams for many years – we have worked a couple of panels together, and Dr. A has been a member of treating teams for men with advanced disease that AnCan has supported.
