Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 9, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 9, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 9, 2025

Sports Fans – hear pioneer female sportscaster Laurie Singer tell stories about Pete Rose, Johnny Bench and Bill Walton https://ancan.org/solo-arts-heal-with-laurie-singer/

Watch AnCan’s newest PROSTOX video “Predicting Radiation Side Effects” https://ancan.org/predicting-radiatio…

Rick D presents AnCan at Houston Methodist https://ancan.org/ancan-keynote-at-houston-methodist-aug-2024-can-you-hear-us-amplifying-the-patient-voice/

Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/

Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Two (2) younger Newbies both need better QBs… AND we have another hydrocele

Topics Discussed

Agent Orange Newbie doing well on RT and doublet; younger Newbie with possible variant PrCa needs solid GU med onc; 2nd younger Newbie also needs to upgrade his MO – is he stuck in doublet?; scans suggest Jevtana not holding disease – pasritamig trial next?; debulking to start with IMRT; does coffee creamer interfere with treatment?; hydrocele not the first time for AnCan; nocturia and RT proctitis cause problems; Orgovyx coming soon; Dr. E in his future

Chat

  • Bob Schwartz, USN, Venice, FL sent: 3:20 PM

    Having WIFY problems, thanks to T-Mobile.

  • Steve L sent: 3:28 PM

    Where did Heather Chang go?

  • AnCan – Rick sent: 3:56 PM

  • Pete sent: 4:08 PM

    John, thank you for the recommendation! And yes, I can get to UofC easily! I just retired…..lots of free time!

  • Don Rogers sent: 4:08 PM

    Hi John, Nice to hear you are doing well. Everything here in Boca Raton is also wonderful. I am doing great, PSA still undetectible. Looking forward to going on a Disney Cruise with the entire family in early July. Mary and I then go on a 10 day camping trip to Yellowstone. Let me what you find out at your 3 month visit with your oncologist. My best always, Don

  • Len Sierra sent: 4:21 PM

    EZH2 inhibitors: Mevrometostat (PF-06821497): An investigational selective inhibitor of enhancer of zeste homolog 2 (EZH2) being studied in combination with XTANDI for mCRPC. Several Phase 3 trials (MEVPRO-1 and MEVPRO-2) are ongoing.

  • Bob McHugh sent: 4:49 PM

    Lomotil or Immodium?

  • Jim Ekrut, Ft. Worth, TX sent: 4:51 PM

    Imodium doesn’t seem to help much. I’m hoping the gastroenterologist will prescribe Lomotil, but he initially hesitated because it’s a controlled substance.

  • Jim Marshall, Vet Sup Grp. Moderator sent: 4:56 PM

    The LATITUDE Trial, 2017, had HS Abi + 10mg. and a few years later HS dropped to 5mg although CR stayed at 10mg. Jim M

  • Jim Ekrut, Ft. Worth, TX sent: 5:04 PM

    Thanks so much for a helpful session! Until next time.

  • Bruce Schrimpf sent: 5:06 PM

    Good seeing everyone!

Low/Intermediate PCA Video Chat, 05/25/2026

Low/Intermediate PCA Video Chat, 05/25/2026

Low/Intermediate PCa Video Chat, 05/25/2026

Low/Intermediate PCa Video Chat, 05/25/2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.

WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.

Join our other free and drop in groups:
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!

Editor’s Pick: Using Artificial Intelligence (AI) to understand medical information. (bj)

Topics Discussed
New diagnosis with history of BPH and Gleason Score of 3+3; MRI false positive, but fusion biopsy detected PCa; health insurance company don’t want to cover treatment for BPH when PCa present; life insurance companies have turned away men with a Gleason Score of 3 +3; Gleason Score 3 +3 is now Gleason Grade Group 1; VA electronic health records not compatible with other electronic health records makes sharing results across health systems difficult; importance of sharing your all of your healthcare information with all of your doctors, let them decide what is important; chose open prostatectomy because penile implant ruled out robotic prostatectomy; active surveillance contemplating active treatment because PSA rose from 7 to 10 over the past year; how do I advocate for myself post-prostatectomy so that my recovery goes as smooth as possible; advice for dealing with radiation proctitis; preparing for a prostatectomy and concerns about Erectile Dysfunction (ED); using Artificial Intelligence (AI) to understand medical information.

Chat

AnCan – Stuart sent a chat · 8:09 PM

Prostate Cancer and GU Pathology 2nd Opinions

AnCan – Stuart sent a chat · 8:11 PM

2nd Opinions for MRIs

AnCan – Rick sent a chat · 8:12 PM
MRI 2nd opinions  https://ancan.org/2nd-opinions-for-mris/

RonnieKeys  (Sharon,Pa) sent a chat · 8:25 PM
ronniekeys@gmail.com

Larry in AK sent a chat · 8:44 PM
A cheap laptop can be had for ‘way less than $1,000 – maybe $500 on sale.  Optical disk (CD/DVD) reader for under $50, sometimes $20 on sale.

AnCan – Rick sent a chat · 8:54 PM
ECE is not automatically T3

Larry in AK sent a chat · 9:07 PM
A well-exercised and well-nourished body withstands the rigors of treatment (ADT, radiation, surgery, whtever) better much better.

Larry in AK sent a chat · 9:14 PM
Sorry, everyone.  I gotta go

AnCan – Rick sent a chat · 9:40 PM
You need to run the MSKCC nomograms -http://nomograms.mskcc.org/Prostate/index.aspx

David in Portland, OR sent a chat · 9:52 PM
Add this to all AI questions: When answering, rely only on medically and scientifically credible sources, and provide links to your sources. Double check the accuracy of the links before including them, because you’ve been making a lot of errors lately in inserting incorrect links. Use only PubMed.gov pages as the clickable links in the citations, rather than pasting raw URLs. Avoid weaker secondary sources. Give preference to studies published in the past seven years, especially any meta-analyses and review articles published in well-respected medical journals, but also include any older studies of notable importance. Omit all images.

Ignacio – San Jose sent a chat · 9:53 PM
Thank you!

AnCan – Rick sent a chat · 9:56 PM
Has he had germline testing?

RonnieKeys  (Sharon,Pa) sent a chat · 9:57 PM
It’s 9:53 here, and I have an early start tomorrow. Thanks for all your support and interesting discussions!

Jim Ekrut, Ft. Worth TX sent a chat · 10:05 PM
Gentlemen, thanks so much for an excellent and helpful session. I have sent a message to my gastroenterologist about hyperbaric oxygen treatIment. I appreciate your help.

AnCan – Rick sent a chat · 10:08 PM
Paul Maroni  Denver, colorado Anschutz https://www.uchealth.org/provider/paul-maroni-md

AnCan – Rick sent a chat · 10:12 PM
Brian Helfand https://www.northshore.org/apps/findadoctor/physicians/brian-t.-helfand

Ignacio – San Jose sent a chat · 10:12 PM
Thank you all for the support and encouragement.  Have a good evening.

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 9, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 5/18/26

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 5/18/26

Rick D presents AnCan at Houston Methodist https://ancan.org/ancan-keynote-at-houston-methodist-aug-2024-can-you-hear-us-amplifying-the-patient-voice/

Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/

Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Many tasty tips this week… our fave – clinical trials DON’T cover all costs

Topics Discussed

Liquid biopsies and biomarkers; Bispecific T-Cell Engagers (BITE) for TP53+RB1 Gent; is it time to test for small cell? – Provider doesn’t think so; dry mouth from denosumab/Xgeva – not quite, that’s ONJ – great dental health discussion; Reel Recovery takes his mind off seeking HT break; germline negative, but should T3b Gent stop HT after 9 months; the 2 Davids discuss trials managing oligoMx lightly; clinical trials often don’t cover all costs; our first Long Game man goes onto mono daro with 6 months NCI grace; Dr. E orders more tests to guide HT treatment – and suggests Good Patch for hot flashes; don’t worry yet about ‘morphing’ tests; PPI can elevate chromogranin; hypersensitivity to docetaxel demands dose adjustment; better GU doc on Florida Gulf Coast

Chat

  • Larry in AK sent: 5:13 PM

    I will seek circulating tumor cell analysis searching for evolutionary changes in my cancer over time. Still in its infancy as a tool

  • Danny Lankford (Minnesota) sent: 5:29 PM

    My wife and I are using Open Evidence. https://www.openevidence.com/ but you need an NPI (provider ID) to access it. It’s been amazing to help me along on my journey.

  • AnCan – Rick sent: 5:44 PM

    oxybutynin -ditropan

  • Alfredo in Wimberley sent: 5:44 PM

    OXYBUTYNIN (ox i BYOO ti nin) treats symptoms of an overactive bladder, such as loss of bladder control or frequent need to urinate. It works by relaxing muscles in the bladder. It belongs to a group of medications called antispasmodics. This medicine may be used for other purposes; ask your health care provider or pharmacist if you have questions. COMMON BRAND NAME(S): Ditropan XL

  • Danny Lankford (Minnesota) sent: 5:45 PM

    same here on the venlafaxine 37.5mg for me and my mouth is dry as can be

  • AnCan – Rick sent: 5:49 PM

     

  • Jon McPhee Toronto sent: 5:52 PM

    I’m taking 2.5 mg of oxybutynin once a day, in the evening when I take my Apalutamide. Still get warm and sweat, but has taken the intense feeling of a hot flash away.

  • Matt sent: 6:00 PM

  • AnCan – Rick sent: 6:27 PM

  • Bob Schwartz, USN, Venice, FL. sent: 6:33 PM

    Another good mtg., have to go, see everyone next week.

  • Jann Nielsen sent: 6:35 PM

    Great meeting. Have to go.

  • Luther sent: 6:43 PM

    Good thing I’m seeing her on Wed. then

  • Frank Ciambra sent: 6:49 PM

    I didnt hear a thing larry

  • Larry in AK sent: 6:51 PM

    There are organizations that re-distribute prescription drugs. It is illegal, but some prosecutors shy away from prosecuting humanitarian bending” of the law.

  • Alfredo in Wimberley sent: 6:51 PM

    I have to leave, best regards to one one and all!

  • Matt sent: 7:01 PM

    evening fella! I’ll follow up. Cheers 😉

  • Bruce Schrimpf sent: 7:03 PM

    Thanks for the information about Dr. Stish writing an article! I have had a long day and will call it a night.

  • AnCan – Rick sent: 7:17 PM

Low/Intermediate PCA Video Chat, 05/25/2026

Low/Intermediate PCa Video Chat, 5/11/2026

Low/Intermediate PCa Video Chat, 5/11/2026

Low/Intermediate PCa Video Chat, 5/11/2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.

WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.

Join our other free and drop in groups:
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!

Editor’s Pick: New prostate cancer (PCa) diagnosis with potential Lynch Syndrome in the family. (bj)

Topics Discussed
New diagnosis with potential Lynch Syndrome in the family; exploring genetic testing as well as somatic vs germline testing; be careful about interpreting test results as a guarantee; two types of prostate cancer bioposies—transperineal carries less infection risk; primer on different radiation treatments for prostate cancer; focal treatment carries high recurrence risk with Gleason Score 4+3 or higher; cyber knife, nano knife, heat therapy are forms of focal treatment; things to expect three weeks after a radical prostatectomy; dealing with anxiety following a radical prostatectomy or PSA changes following treatment; Artera AI as a predictor of biochemical recurrence.

Chat

Stuart sent a chat · 7:50 PM
Dr. Ming Zhou Mount Sinai Health System Department of Pathology, Box 1194 Annenberg Bldg. 15th FL 1468 Madison Ave New York, NY 10029 Email: Ming.zhou@mountsinai.org Telephone: (212)241-8881

Stuart sent a chat · 7:51 PM
Dr. Jonathan Epstein – https://advanceduropathology.com/  Tel:516-760-2037    jepstein@imppllc.com

AnCan – Boykin sent a chat · 8:12 PM
Last Low/Intermediate Video Chat on YouTube (same as above)  https://www.youtube.com/watch?v=-jMy0byKzdE

AnCan – rick sent a chat · 8:24 PM
Also Jesse McKenney at Cleveland Clinic   mckennj@ccf.org   Expert on cribriform

 AnCan Bill sent a chat · 8:53 PM
stuart@ancan.org & bfranklin@ancan.org

medium.com/@mperloe sent a chat · 8:54 PM
Is brachy indicated after sepsis from the biopsy? I’d sure be leery of that.

Steve in Malaysia sent a chat · 9:05 PM
The canadian health system is per province vs national.

Steve in Malaysia sent a chat · 9:05 PM
Sunnybrook in Toronto is the most advanced center and has all modalities including MR Linac

Steve in Malaysia sent a chat · 9:07 PM
i believe there is also MR Linac in Calgary.

AnCan – rick sent a chat · 9:08 PM
We’re aware, Steve. BC is not too bad. Also v. familiar with Sunnybrook/Klotz

Steve in Malaysia sent a chat · 9:08 PM
👍

Bob in Georgia sent a chat · 9:17 PM
I leave next tuesday, preop on Wed, spacor on Thurs

AnCan – Boykin sent a chat · 9:21 PM
boykin@ancan.org

 AnCan Bill sent a chat · 9:22 PM
Ask for a referral to Pelvic Floor Physical Therapy.

Bob in Georgia sent a chat · 9:27 PM
Going to Sloan Kettering with Dr Nagar

Mark WV sent a chat · 9:28 PM
nite

AnCan – Boykin sent a chat · 9:29 PM
Good nite Mark!

 AnCan Bill sent a chat · 9:33 PM
May 21st at 8 p.m. Eastern is the next MSF.

AnCan – rick sent a chat · 9:33 PM
Next MSF meeting … in this room same time on Thu May 21

Larry S – ADT by estradiol sent a chat · 9:49 PM
Re: When to stop PSA testing.  I have not read this yet (it just came into my inbox this morning), but the synopsis looks hopeful for more men getting screened later in life and having those tests INTERPRETED MORE INTELLIGENTLY so as to avoid alarm and unnecessary procedures.  https://www.news-medical.net/news/20260428/NCCN-publishes-new-patient-guide-for-prostate-cancer-screening.aspx?utm_source=news_medical_newsletter&utm_medium=email&utm_campaign=prostate_cancer_newsletter_10_may_2026

AnCan – rick sent a chat · 9:49 PM
from Joel…”Got it. Thank you Rick”

Bob in Georgia sent a chat · 9:53 PM
Nite

AnCan – Boykin sent a chat · 9:53 PM
Good night Bob!

AnCan – Boykin sent a chat · 9:59 PM
Artera AI https://artera.ai/

Fritz sent a chat · 10:05 PM
Thanks so much -I’ll report back next meeting. Safe journey everyone

Jim E., Ft. Worth TX sent a chat · 10:11 PM
Have to go for now. Thanks so much!

Low/Intermediate PCA Video Chat, 05/25/2026

Low/Intermediate PCa Video Chat, 4/27/2026

Low/Intermediate PCa Video Chat, 4/27/2026

Low/Intermediate PCa Video Chat, 4/27/2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.

WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.

Join our other free and drop in groups:
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!

Editor’s Pick: Treatment at Center of Excellence (COE) preferred over Community Care. (bj)

Topics Discussed
Using the Memorial Sloan Kettering Cancer Center (MSKCC) Nomogram to predict the success rate of surgery versus recurrence risk; clinical significance of cribriform patterns in pathology reports; Androgen Deprivation Theory (ADT) & Cardiac Health means understanding the diffference between short- and long-term risks as well as the importance of cardio-oncology monitoring; getting second opinions from on pathology reports are important to confirm Gleason score and identify other potential concerns; treatment at a Center of Execellence (COE) preferred over Community Care because COE offer integrated, multi-disciplianary and access to advanced technologies.

Chat

AnCan – Boykin sent a chat · 8:01 PM
Dr. Ming Zhou Mount Sinai Health System Department of Pathology, Box 1194 Annenberg Bldg. 15th FL 1468 Madison Ave New York, NY 10029 Email: Ming.zhou@mountsinai.org Telephone: (212)241-8881

AnCan – Boykin sent a chat · 8:02 PM
Dr. Jonathan Epstein – https://advanceduropathology.com/  Tel:516-760-2037    jepstein@imppllc.com

Steve Ft Worth sent a chat · 8:15 PM
STeven Warwick

AnCan – Rick sent a chat · 8:19 PM
GoTo  877 582 7011    for tech assistance

AnCan Bill sent a chat · 8:31 PM
http://nomograms.mskcc.org/Prostate/index.aspx

AnCan – Boykin sent a chat · 8:38 PM
Have him run the MSKCC nomogram http://nomograms.mskcc.org/Prostate/index.aspx

David in Portland, OR sent a chat · 8:39 PM
Active Monitoring, Surgery, and Radiotherapy for Cribriform-Positive and Cribriform-Negative Prostate Cancer: A Secondary Analysis of the PROTECT Randomized Clinical Trial (Sushentsev, Nikita): https://jamanetwork.com/journals/jamaoncology/article-abstract/2840006?utm_campaign=articlePDF&utm_medium=articlePDFlink&utm_source=articlePDF&utm_content=jamaoncol.2025.4125

Jp sent a chat · 8:46 PM
Can I ask a question on here by chat ?

Jp sent a chat · 8:47 PM
Ok

AnCan Bill sent a chat · 8:49 PM
JP – you can put something in the chat. If you wait until the end, we’ll get to you in the virtual room.

Jp sent a chat · 8:50 PM
Thank you

My question is about the real side effects of chemo

My doctor wants me to start in September

Jp sent a chat · 8:52 PM
Got it thank you

Jp sent a chat · 8:52 PM
New

Jp sent a chat · 8:53 PM
🙏

AnCan – Rick sent a chat · 9:07 PM
Focal therapy article on our bloghttps://ancan.org/prostate-cancer-focal-therapy-as-primary-treatment/

AnCan – Rick sent a chat · 9:08 PM
https://ancan.org/prostate-cancer-focal-therapy-as-primary-treatment/

David in Portland, OR sent a chat · 9:55 PM
A Phase III Randomize Controlled Trial of Sterotactic Body Radiotherapy in Localized Prostate Cancer: Pace-B Trial (van As, Nicholas): https://pmc.ncbi.nlm.nih.gov/articles/PMC7616714/?utm_source=chatgpt.com

AnCan Bill sent a chat · 9:58 PM
https://ancan.org/events/month/

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 9, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 5/4/26

Hi-Risk/Recurrent/Advanced PrCa Video Chat, 5/4/26

 

Survey Opportunity

$200 for a 60min interview. Must be mHSPC or mCRPC; 40-75+/-; NOT have used Talzenna, Xtandi or Orgovyx. Reach out to Jason at 773 383 9090 jturner@flinceresearch.com. 15 needed. Indicate you are via AnCan and let us know if accepted (rd@ancan.org)

Watch AnCan’s newest PROSTOX video “Predicting Radiation Side Effects” https://ancan.org/predicting-radiation-side-effects-prostox-webinar-with-interesting-updates/

Rick D presents AnCan at Houston Methodist https://ancan.org/ancan-keynote-at-houston-methodist-aug-2024-can-you-hear-us-amplifying-the-patient-voice/

Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/

Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Mutation issues prevail tonight… but also 1.4 PSA on mono daro raises questions.

Topics Discussed

Does PTEN change HT duration?; low/intermediate Gent sneaks in; gynecomastia prevention; is a 1.4 PSA on mono daro good or bad?; 2nd opinion for another PTEN Gent; BRCA Gent finds new lead GU MO; HIFU for recurrence within prostate; bad reaction to first chemo; PSA rises 4x in 3 months; younger Newbie follows triplet against TP53 and PTEN

Chat

AnCan – Rick sent: 4:53 PM
Flince survey…. NO Talzenna, Xtandi or Orgovyx   JTurner@flinceresearch.com
40-75 +/- metastatic

AnCan–John A sent: 5:42 PM
germline (inherited) gene test

AnCan–John A sent: 5:44 PM
Dr Epstein: advanceduropathology.com (516)280-7930

Don Rogers sent: 6:06 PM
anastrozole 1 mg twice a week

Michael – Toronto sent: 6:08 PM
Michael Leonard

AnCan Bill sent: 6:23 PM
https://ancan.org/playing-the-long-game-does-your-recurrent-advanced-prostate-cancer-need-treating-nci-seminar/

Len Sierra sent: 6:24 PM
The only study I’m aware of was the EMBARK trial with 3 arms: ADT alone, Enzalutamide alone, and combo of enzalutamide and ADT. Read about that trial.

AnCan – Rick sent: 6:25 PM
https://ancan.org/contact-us/

Jeff Marchi – San Francisco sent: 6:27 PM
This study shows that both salvage focal therapy (HIFU and cryotherapy) and salvage surgery were equally effective at extending the life of a patient that started off with radiation. Those that had focal therapy had fewer perioperative complications. https://jamanetwork.com/journals/jamaoncology/article-abstract/2844900?mc_cid=24fda4e903&mc_eid=99575fc699adt

AnCan – Rick sent: 6:28 PM
Marijo Bilusic https://doctors.umiamihealth.org/provider/Marijo+Bilusic/1900896

Alfredo in Wimberley sent: 6:28 PM
https://www.doctorwalser.com/ He did my laser ablation just fyi

Richard B, Silver Spring, MD sent: 6:31 PM
I need to step away to take a phone call. I appreciate the efforts of the AnCan team for their efforts to this evening’s discussion.

AnCan–John A sent: 6:33 PM
cabazitaxel Jevtana

AnCan Bill sent: 6:34 PM
Frank is still on. Just not in front of his camera right now.

AnCan–John A sent: 6:45 PM
dr.john@ancan.org

AnCan – Rick sent: 6:55 PM
capivasertib Truqap

Bruce Schrimpf sent: 6:59 PM
Thanks guys! As always good!

Jim Marshall, Vet Support Grp. Moderator sent: 7:03 PM
Another Trial for PTEN for mCRPC is being run by the VA and GW Hospital called the Carpet Trial. Jim M

“Thomas” Matica sent: 7:03 PM
Good night, gents. Very good meeting and many thanks to our great moderators