Keeping Cool in the Heat of Summer

Keeping Cool in the Heat of Summer

Keeping cool in the heat of Summer… and tackling hot flashes year round

 

We hear it time and time again – keeping cool is not easy.

Many people across our communities complain about how much the heat impacts their ability to function at all – whether it’s from outside heat or internal flashes.

I can talk about this one pretty confidently myself, as I’ve been living with MS for 9 years now (wow!). It’s a known heat and cold -intolerant disease that causes temporary symptom flares known as Uhthoff’s Phenomenon. But I’m not the only one. Heat impacts many of us frequently – especially MS’rs and men on hormone therapy.

It’s a consistent and persistent problem for so many of us, so I’d like to dedicate this blog post to the hot, sweaty, brain-fogged, but brilliant AnCan community.

Below you’ll find some recommendations for cooling products and other resources that we hope will ease your summer; not to mention your Quality of Life all year round.

The first part is a list of specific products that are tried and tested by either myself or someone in one of our community groups – with many of them coming from one of our lead moderators, Kim Stroeh. Thank you, Kim!  Other suggestions come from AnCan Gents wrestling with hot flashes in the prostate cancer world, like Barry Blomquist and Bob Alvord… thank you!

Second is a list of products that we’ve heard about, but so far we don’t know of anyone who’s tried them; also products that maybe we have tried and tested, but don’t really have a specific link for.

Third is small list of tips and resources. I’m going to keep this part relatively small because it will probably need a completely separate blog post. Since Kim and I both have a chronic illness (MS) that makes us much more susceptible to the heat, a lot of our resources come from organizations that deal with it specifically. I’ve included those orgs that may be helpful no matter what our community may be living with.

 

Pro Tip:

Did you know that some insurance companies may cover the cost of a cooling product? That’s because it’s considered a DME (durable medical equipment). It may be tedious, but call them up and ask.

 

 

We don’t get any financial benefit from these products; these are just some things that our community members have recommended because they actually work for them. Hopefully they work for you too!

I’ll be including a lot of links from Amazon because it’s simply easier to see a wider range of products and brands in one spot. I know Amazon may not be everyone’s favorite shopping platform, so feel free to use these ideas as a springboard to your preferred shopping platform or store.

Have a product to add or a link to a product listed below? Email me at Hannah@ancan.org

1. Tried and True

Specific products that are tried and tested by someone in one of our community groups

Cooling Blanket

https://a.co/d/0hJIdVa7

  • I just got one at the start of the summer and I absolutely love it!! I wonder why I didn’t get one sooner. Keeps me cool under the blanket when I move around. When I’m still, it keeps me warm. – Hannah

Portable Rechargeable Neck Fan

https://www.lowes.com/pd/Ropilly-Neck-Fan-Rechargeable-Wearable-Fan-6-Speed-Hands-Free-Portable-Personal-Fan-USB-C-for-Travel-Office-Outdoor/6363936

  • Recommended by Bob Alvord (High Risk Prostate Cancer). See section 3 below for his favorite way to use this rechargeable neck fan when combined with a wet cooling towel!

MIDIAN Air Conditioning Vests

https://a.co/d/048mVjgA

  • An air conditioning vest. Recommendation from Barry Blomquist of our High Risk Prostate Cancer group.

Embr Wave 2

https://embrlabs.com/products/embr-wave-2

 

Cooling Products    

  • these are products that use some kind of gel or other substance sewn into an insert that you tuck into a larger item, such as a vest, hat, etc.

A note from Kim:

“If indoors with extended cooling packs will stay cool for 2-3 hours or longer. Outside, it depends on how hot it is. I think the melting temperature is 72 degrees vs 32 degrees of water. Can become solid again at room temperature if the ambient temperature is cool enough.”

Thermapparel Undercool 3 cooling vest

https://www.thermapparel.com/products/undercool-3?srsltid=AfmBOoqL5mu0GVd1NXc-Sinc_ysIvf0HOF1_I4_493kDiAJNuGncwSGW

  • “Don’t waste your money on slim packs, buy the extended packs and by an extra set so you can switch out in between (you can buy in bundle and save money). The one reason I like this cooling vest is that its cooling packs are only on your back so it weighs around 2 lb versus a prior cooling vest that had them both on the front and the back and weighed 8 lb that was very bulky and made me feel like a bulky football player. For me, heavy weight can make my fatigue worse/drain me faster and that is one of the reasons I did not like the heavier one. I wear this when I need it (now if I am outside for any length of time in summer or attempting to do yard work) and have to wear it when I train with my personal trainer twice weekly at the gym. It is not really noticeable visually wearing under a t-shirt unless it is body hugging, it has a relatively low profile.” – Kim

 

Other Thermapparel Products

https://www.thermapparel.com/collections/all

  • “I feel the grab and go packs are worthless (at least from my needs). But my needs are extreme. :-D” – Kim

 

Adjustable Zipper Cooling Vest with (5-12) 4.5″ x 6″ Kool Max® Packs

https://www.polarproducts.com/polarshop/pc/viewPrd.asp?idproduct=32&idcategory=508

  • “It looks like they changed the design since I bought it so you are using the smaller individual packs versus 4 larger packs. Remember, smaller compartments will melt faster and not last as long. Cooling vests are nice because you stay dry. Store in freezer/fridge so always ready to go.” -Kim

2. Products to Try

A list of products that we’ve heard about, but so far we don’t know of anyone who’s tried them; also products that maybe we have tried and tested, but don’t really have a specific link for.

Please use the search method or store of your choice. You can copy/paste from here to get more targeted results

Folding Hand Fan – the manual kind

  • “Carrying a portable foldable hand fan can go a long way. Incredibly grateful I bought mine into Target field. Lightweight, cheap, takes up little space and easy to transport.” – Kim

Portable Rechargeable Handheld Fan

  • I never use it because – it needs to be charged, bulkier and heavier than the foldable fan. – Kim

Portable Rechargeable Neck Fan     

Click the link here for Bob Alvord’s top choice. Then, scroll down to section 3 to see his genius way of using it.

  • “I am not a fan of the neck fans because they tend to be loud (so harder to hear) and don’t give enough breeze for me to be very effective. May be effective for others that are not as extreme as me.” – Kim
  • I have one that I use on occasion. It’s a cheap one. I like it well enough to bring with me on the rare summer hike, but not enough to recommend a specific one. It’s a little bulky and makes my neck sweaty where it hangs on my neck. Can also be a little bit loud, but I don’t usually mind. – Hannah

Cooling wrist wraps

Cooling Bra inserts

Cooling Hats

  • With a built-in fan
  • Water activated
  • Or just the gel inserts

Cooling headband/ wraps – can also search for cooling migraine relief

Cooling Scarves / towels

Cooling Eye Masks – Great for migraines too

Cooling Vests – see above for specific products

Cooling Pad for Car

  • Gel seat pads
  • Electric car seat covers

Cooling Pad for Seat– This set of search terms brings up a lot of the same links as above

Cooling pillowcases – side note- this will be my next purchase after the success of the cooling blanket I recently purchased! – Hannah

Cooling pillows

Cooling mattress

Cooling mattress topper

Cooling blanket

Bamboo sheets and bamboo pajamas

  • “If have issues being overheated while sleeping, I highly recommend getting both bamboo sheets and pajamas. They not only keep you cooler but will help wick away the moisture so you don’t feel drenched when you wake up.” – Kim

 

REON POCKET PRO Plus

Not yet on the market, but Barry Blomquist (Prostate Cancer community) mentioned it. Sensors actively adjust to temperature shifts maintaining your personalized comfort, while dual thermo-modules deliver efficient on-the-go cooling and warming.

https://electronics.sony.com/t/reonpocket

 

 

3. Resources

I’ve included those orgs that may be helpful no matter what our community may be living with. Just good, practical advice to beat the heat.

 

MS Society

https://www.nationalmssociety.org/managing-ms/living-with-ms/diet-exercise-and-healthy-behaviors/heat-temperature

  • You’ll find tips + even more links to cooling products they recommend (including cooling bra inserts, eco- friendly products, cooling hats & wrist wraps, & others). Some even come with discount codes!

 

Tips for staying cool

https://www.nationalmssociety.org/news-and-magazine/momentum-magazine/living-well/20-ways-to-survive-summer

  • Good, practical advice that seems a little bit obvious at times, but there’s some surprising tips in there as well.

https://msfocus.org/Magazine/Magazine-Items/Posted/Sound-Summer-Sleep-with-MS.aspx

  • Advice for sleeping at night. Lots of mention of products that I’ve listed above

 

Tips for Sleep

“The ceiling fan is your friend. I have also learned I need to turn the air down to 70 degrees from 72 degrees when I sleep because it is still too hot where my body touches the mattress.” – Kim

I use a slim floor fan, but have it set up on top of a nightstand at the foot of my bed. I also turn the AC down to 71F at night. I also make it a habit to use lotion on my feet and legs right before I get into bed. It has a soothing, cooling effect that keeps the heat away for a while – especially with the fan blowing directly on me. – Hannah

 

Tips & Habits to Sprinkle Throughout Your Day

“Drinking heavily iced water/beverages or frozen food can go a long ways. Most metal water bottles the ice will last most of the day.” – Kim

“I use floor fans when I am hanging outside on the highest setting. Helps keep bugs away too. Need outlet/extension cord available to access electricity. Can be kinda loud.” – Kim

 

Kim’s Ice Crown 

  • “A new thing I tried 3 weeks ago because using the cooling vest, heavy iced drinking water, and a spray bottle/fan that I keep in the fridge and add ice cubes before I left the house was not enough to keep my cool enough while training for 30min (I told you it was extreme!) I take bandana, open it up, line up ice cubes to two opposite diagonal corners (10-12 ice cubes for me from my ice maker), roll it up and tie around my head or neck. Will last about 30 -45 min wearing indoors. You will be wet from it and dripping with water and your t-shirt will get wet but that is okay for me during the summer. Store in ziplock bag when traveling with it and make ahead of time and store in freezer. I have it my thermapparel cooler when transporting so it doesn’t melt until I put it on. I call it my ice crown. Leave some space at the ends so you can tie it around your head or neck. Also rewetting bandana with icy water if hiking, etc helps after ice cubes melt. Cheap if you have ice maker but you will get wet from the chest up and doesn’t last as long as a cooling vest.”

 

Bob Alvord’s (High-Risk Prostate Cancer community) neck fan- towel combo

Image of Bob Alvord with his cooling towel and rechargeable neck fan combo

Bob Alvord with his cooling towel and rechargeable neck fan combo

Image of Bob holding his neck fan up so we can see it

“… I use a well hydrated cooling towel, large one and a wearable neck fan to alleviate hot flashes.  You wear the fan around your neck and then place the cooling towel over the fan. This system greatly lowers the towel temperature. My measurement of the towel with the fan is around 65 degrees, using a thermometer. Placing the towel against your corotid, with a 65 degree temperature source is enough to lower exposure to heat. ”

 

 

 

Have a product, tip or URL to recommend? Email me at Hannah@ancan.org

We’ll update this post as needed

Hi-Risk/Recurrent/Advanced PrCa Video Chat, July 20, 2026

Hi-Risk/Recurrent/Advanced PrCa Video Chat, July 20, 2026

Hi-Risk/Recurrent/Advanced PrCa Video Chat, July 20, 2026

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Reel Recovery is much more than catching a fish! https://reelrecovery.org

Topics Discussed

This newbie MD lacking his own records; starting HT may cause inflammation and urinary issues; side effects from salvage RT; high liver markers persist but fall with pause in HT; medical leave makes all the difference; addressing hot flashes; Reel Recovery gets more AnCan accolades; alternating annual whole body MRI and PSMA scan when stable; 6 month shot with no buffer administered???; successful video chat with dr. E; maybe mono daro may be easier to follow than switching Orgovyx to E2; consider wide boar or open MRI if claustrophobic

Chat

  • Ancan sent: 5:13 PM

    I have a nutrition question about eggs and poultry skinless. Choline causing aggressive prostrate cancer or recurrence according to pumped.

  • Jim Marshall, Vet Sup Grp. Moderator

    sent: 5:32 PM

    meeting 1st & 3rd Mondays at 08:00pm ET – 2nd & 4th Tuesdays at 06:00pm ET. Jim

  • AnCan – Bill sent: 5:41 PM

  • AnCan–John A sent: 5:45 PM

    dr.john@ancan.org

  • Bob Schwartz, USN, Venice, FL.

    sent: 6:09 PM

    Jimmy G., thank you for sharing, very much appreciated.

  • Hank Zajic Springfield VA sent: 6:41 PM

    thank you all for the meeting today gents! I appreciate you all. Gotta go though. 4:30 reveille tomorrow! Hank

  • AnCan – Rick sent: 6:44 PM

  • David D Seattle sent: 6:44 PM

    It may be coincidence but my hot flashes increased in intensity and frequency after adding Nubeqa to Orgovyx. I had been on Orgovyx only for 7 months prior.

  • Jim Stewart Reno, NV sent: 6:46 PM

    signing off, thanks again for all the input!!!!

  • Stan Friedman sent: 6:48 PM

    where was this?

  • Jeffrey G sent: 7:11 PM

    Hey – I didn’t ask for time. It must have been the other Jeff

  • Eric Curtis sent: 7:14 PM

    Thanks again guys. Catch you next time Monday roles around.

  • Bob Rieder – Eden Prairie, MN sent: 7:21 PM

    Thanks to everyone for the discussion tonight! Signing off for this session.

  • Barry Blomquist sent: 7:21 PM

    Good meet

  • Peter M sent: 7:23 PM

    Good night gents! Great meeting!

Hi-Risk/Recurrent/Advanced PrCa Video Chat, July 20, 2026

Hi-Risk/Recurrent/Advanced PrCa Video Chat, July 14, 2026

Hi-Risk/Recurrent/Advanced PrCa Video Chat, July 14, 2026

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: If radiation forces a catheter, do you continue with the treatments?

Topics Discussed

Newbie hangs up on us; how frequently do you need a PSMA scan’; make your personal evaporative cooler; switching to estrogen or adding patch for hot flashes; rash from apalutamide; MSKCC comes up with options – RLT, chemo or more HT; bicalutamide tides Gent over to RT + Lupron but Flomax needed; moving to 1/4 dose abi protocol; curious response to DEXA scan; PSA holding low after RP and pre RT; holding steady but more spot RT needed for shoulder; debulk RT calls for catheter after – check with GU MO before continuing

Chat

  • Barry Blomquist sent: 3:15 PM

    How you doing?

  • Jeff Marchi – San Francisco sent: 3:17 PM

    hey Barry, who you asking

  • Barry Blomquist sent: 3:26 PM

    Sorry

  • Ancan sent: 3:26 PM

    Lol

  • Jim Marshall, Vet Sup Grp. Moderator sent: 3:38 PM

    Have a Vet retired over in Estonia, Stage IV who has been on Double Dose Bicalutamide for many years. He is happy with it, have explained the alternatives but he is happy with how he is being treated. Jim Marshall.

  • Jeff Marchi – San Francisco sent: 3:47 PM

    I know a guy that used casodex on and off for 5 years. would stop and PSA would rise and he would go back on Eventually needed an ARPI

  • Jay in MN sent: 3:58 PM

    I cool off by jumping in the lake in MN🤪

  • Steve L sent: 4:03 PM

    The Armstrong Study only address patients with nmCRPC and mCRPC. I am mCRPC which is not part of the conclsion of the analysis. Are there any studies appropriate for me

    correction follows

    Armstrong study is of mHSPC ans nmCRPC.

    Copy of Conclusion of Armstrong Study follows “Given the frequent discordance and poor prognosis of imaging-based progression in the absence of PSA changes during enzalutamide treatment in mHSPC and nmCRPC, periodic surveillance using imaging is recommended.”

  • AnCan – Bill sent: 4:08 PM

    Dr. Paul Schellhammer, Urologist Shares His 20 #ProstateCancer Journey (https://www.youtube.com/watch?v=DcClbBTl33I)

  • Jeff Marchi – San Francisco sent: 4:39 PM

    Decipher cost $3,800-$6,000 without insurance

  • Wes – San Diego sent: 4:52 PM

    Argh, thought this was 8 pm EDT.

  • Len Sierra sent: 4:53 PM

    Monday mtgs are at 8pm Eastern.

  • Len Sierra sent: 4:55 PM

    I need to jump onto another Zoom session at 8p Eastern. Good night, fellas.

  • Wes – San Diego sent: 4:56 PM

    Damn, figured this out; long time; got an update, mostly all good; maybe next week.

  • Wes – San Diego sent: 5:02 PM

    Curious to see why radiation to help issues of bladder/colon; sounds counter-intuitive.

  • Bob Alvord sent: 5:12 PM

    Thank you for time to discuss my situation. Gotta run now and see you next week.

  • phil sent: 5:16 PM

    Thank you for taking time for me and good advice. Planning on getting more radiation, hopefully at least 5 more sessions on shoulder. if more needed will follow up. Thanks again. and also staying on until clean

Hi-Risk/Recurrent/Advanced PrCa Video Chat, July 20, 2026

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 23, 2026

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 23, 2026

COMING SOON… AnCan Heart Group – new support group for all things cardio and open to all!

Sports Fans – hear pioneer female sportscaster Laurie Singer tell stories about Pete Rose, Johnny Bench and Bill Walton https://ancan.org/solo-arts-heal-with-laurie-singer/

Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Ask for an EKG if you’re on hormone therapy – Dr. Alfredo says it’s cheap!

Topics Discussed

Newbie switches ADT after EKG; wearing a Holter patch; white diet during radiation; AnCan’r signs up for ANDROMEDA; 8 lesions but all above the pelvis call for new QB; no treatment for 12 mo. more, so why worry about what’s available; T returns and PSA says low; Axumin may find what PSMA does not; dental issue; insist on regular DEXA and PSMA scans during treatment; PTEN and TP53 somatic emerge – will it change treatment?; MSKCC doc drops the ball; steady as she goes on mono daro at 89; E2 needs name for its newsletter

Chat

  • Billy Ingersoll sent: 3:23 PM

    QTC 482 from 420/437

  • Alfredo in Sacramento sent: 3:26 PM

    Medicare covers 72% of the EKG (Electrocardiogram) cost. Beneficiaries should budget approximately $4 in out-of-pocket costs. EKG (Electrocardiogram) costs vary 37% across states: from $12 in Arkansas to $17 in Alaska. At $15 nationally, EKG (Electrocardiogram) is a low-cost procedure. For most Medicare beneficiaries, the coinsurance will be under $50. The patient cost of $4 is within the annual Part B deductible ($257), making this relatively affordable for Medicare beneficiaries.

  • Jim Marshall, Vet Sup Grp. Moderator sent: 3:46 PM

    There is GOTO Help. 877-582-7011 if want to ask why. Jim

  • Avery Becton sent: 3:46 PM

    ok. thx

  • Avery Becton sent: 3:51 PM

    Finally I can hear the group on my PC

  • Bob Schwartz, USN, Venice, FL. sent: 3:58 PM

    Great mtg., see everyone next mtg., have to go.

  • Alfredo in Sacramento sent: 3:58 PM

    Gotta go now, best wishes to all.

  • AnCan–John A sent: 4:11 PM

    next-generation sequencing or genomic or somatic test .on the biopsy sample

  • Jim Marshall, Vet Sup Grp. Moderator sent: 4:12 PM

    Genitourinary Medical Oncologist

  • David D Seattle sent: 4:51 PM

    I have to run to another meeting. Have a good evening all.

  • Alan Moskowitz sent: 4:56 PM

    bye all

  • J. Ward sent: 4:59 PM

    What was the date of Len’s write-up again, please?

  • AnCan – Rick sent: 5:10 PM

    From ARCHES paper “In ARCHES, 3.5% and 8.5% of 574 patients with mHSPC” https://ascopubs.org/doi/full/10.1200/JCO-24-02829?bid=605045108&md5=efb3c3159aa147415d4f2ded3334efa3&cid=DM28252

  • J. Ward sent: 5:11 PM

    Thanks for the above!

  • Pierre D., Olean, NY sent: 5:29 PM

    Good meeting. Good night

  • Larry in AK sent: 5:31 PM

    I wanted to ask for feedback on the name of a potential newsletter associated with the estradiolinitiative.org. Need to ask your permission.

  • Herb Courtney Oxnard, CA sent: 5:33 PM

    Company just arrived. See you all next time.

Hi-Risk/Recurrent/Advanced PrCa Video Chat, July 20, 2026

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 9, 2025

Hi-Risk/Recurrent/Advanced PrCa Video Chat, June 9, 2025

Sports Fans – hear pioneer female sportscaster Laurie Singer tell stories about Pete Rose, Johnny Bench and Bill Walton https://ancan.org/solo-arts-heal-with-laurie-singer/

Watch AnCan’s newest PROSTOX video “Predicting Radiation Side Effects” https://ancan.org/predicting-radiatio…

Rick D presents AnCan at Houston Methodist https://ancan.org/ancan-keynote-at-houston-methodist-aug-2024-can-you-hear-us-amplifying-the-patient-voice/

Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/

Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/

Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: Two (2) younger Newbies both need better QBs… AND we have another hydrocele

Topics Discussed

Agent Orange Newbie doing well on RT and doublet; younger Newbie with possible variant PrCa needs solid GU med onc; 2nd younger Newbie also needs to upgrade his MO – is he stuck in doublet?; scans suggest Jevtana not holding disease – pasritamig trial next?; debulking to start with IMRT; does coffee creamer interfere with treatment?; hydrocele not the first time for AnCan; nocturia and RT proctitis cause problems; Orgovyx coming soon; Dr. E in his future

Chat

  • Bob Schwartz, USN, Venice, FL sent: 3:20 PM

    Having WIFY problems, thanks to T-Mobile.

  • Steve L sent: 3:28 PM

    Where did Heather Chang go?

  • AnCan – Rick sent: 3:56 PM

  • Pete sent: 4:08 PM

    John, thank you for the recommendation! And yes, I can get to UofC easily! I just retired…..lots of free time!

  • Don Rogers sent: 4:08 PM

    Hi John, Nice to hear you are doing well. Everything here in Boca Raton is also wonderful. I am doing great, PSA still undetectible. Looking forward to going on a Disney Cruise with the entire family in early July. Mary and I then go on a 10 day camping trip to Yellowstone. Let me what you find out at your 3 month visit with your oncologist. My best always, Don

  • Len Sierra sent: 4:21 PM

    EZH2 inhibitors: Mevrometostat (PF-06821497): An investigational selective inhibitor of enhancer of zeste homolog 2 (EZH2) being studied in combination with XTANDI for mCRPC. Several Phase 3 trials (MEVPRO-1 and MEVPRO-2) are ongoing.

  • Bob McHugh sent: 4:49 PM

    Lomotil or Immodium?

  • Jim Ekrut, Ft. Worth, TX sent: 4:51 PM

    Imodium doesn’t seem to help much. I’m hoping the gastroenterologist will prescribe Lomotil, but he initially hesitated because it’s a controlled substance.

  • Jim Marshall, Vet Sup Grp. Moderator sent: 4:56 PM

    The LATITUDE Trial, 2017, had HS Abi + 10mg. and a few years later HS dropped to 5mg although CR stayed at 10mg. Jim M

  • Jim Ekrut, Ft. Worth, TX sent: 5:04 PM

    Thanks so much for a helpful session! Until next time.

  • Bruce Schrimpf sent: 5:06 PM

    Good seeing everyone!

Low/Intermediate PCA Video Chat, 05/25/2026

Low/Intermediate PCA Video Chat, 05/25/2026

Low/Intermediate PCa Video Chat, 05/25/2026

Low/Intermediate PCa Video Chat, 05/25/2026

AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.

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Editor’s Pick: Using Artificial Intelligence (AI) to understand medical information. (bj)

Topics Discussed
New diagnosis with history of BPH and Gleason Score of 3+3; MRI false positive, but fusion biopsy detected PCa; health insurance company don’t want to cover treatment for BPH when PCa present; life insurance companies have turned away men with a Gleason Score of 3 +3; Gleason Score 3 +3 is now Gleason Grade Group 1; VA electronic health records not compatible with other electronic health records makes sharing results across health systems difficult; importance of sharing your all of your healthcare information with all of your doctors, let them decide what is important; chose open prostatectomy because penile implant ruled out robotic prostatectomy; active surveillance contemplating active treatment because PSA rose from 7 to 10 over the past year; how do I advocate for myself post-prostatectomy so that my recovery goes as smooth as possible; advice for dealing with radiation proctitis; preparing for a prostatectomy and concerns about Erectile Dysfunction (ED); using Artificial Intelligence (AI) to understand medical information.

Chat

AnCan – Stuart sent a chat · 8:09 PM

Prostate Cancer and GU Pathology 2nd Opinions

AnCan – Stuart sent a chat · 8:11 PM

2nd Opinions for MRIs

AnCan – Rick sent a chat · 8:12 PM
MRI 2nd opinions  https://ancan.org/2nd-opinions-for-mris/

RonnieKeys  (Sharon,Pa) sent a chat · 8:25 PM
ronniekeys@gmail.com

Larry in AK sent a chat · 8:44 PM
A cheap laptop can be had for ‘way less than $1,000 – maybe $500 on sale.  Optical disk (CD/DVD) reader for under $50, sometimes $20 on sale.

AnCan – Rick sent a chat · 8:54 PM
ECE is not automatically T3

Larry in AK sent a chat · 9:07 PM
A well-exercised and well-nourished body withstands the rigors of treatment (ADT, radiation, surgery, whtever) better much better.

Larry in AK sent a chat · 9:14 PM
Sorry, everyone.  I gotta go

AnCan – Rick sent a chat · 9:40 PM
You need to run the MSKCC nomograms -http://nomograms.mskcc.org/Prostate/index.aspx

David in Portland, OR sent a chat · 9:52 PM
Add this to all AI questions: When answering, rely only on medically and scientifically credible sources, and provide links to your sources. Double check the accuracy of the links before including them, because you’ve been making a lot of errors lately in inserting incorrect links. Use only PubMed.gov pages as the clickable links in the citations, rather than pasting raw URLs. Avoid weaker secondary sources. Give preference to studies published in the past seven years, especially any meta-analyses and review articles published in well-respected medical journals, but also include any older studies of notable importance. Omit all images.

Ignacio – San Jose sent a chat · 9:53 PM
Thank you!

AnCan – Rick sent a chat · 9:56 PM
Has he had germline testing?

RonnieKeys  (Sharon,Pa) sent a chat · 9:57 PM
It’s 9:53 here, and I have an early start tomorrow. Thanks for all your support and interesting discussions!

Jim Ekrut, Ft. Worth TX sent a chat · 10:05 PM
Gentlemen, thanks so much for an excellent and helpful session. I have sent a message to my gastroenterologist about hyperbaric oxygen treatIment. I appreciate your help.

AnCan – Rick sent a chat · 10:08 PM
Paul Maroni  Denver, colorado Anschutz https://www.uchealth.org/provider/paul-maroni-md

AnCan – Rick sent a chat · 10:12 PM
Brian Helfand https://www.northshore.org/apps/findadoctor/physicians/brian-t.-helfand

Ignacio – San Jose sent a chat · 10:12 PM
Thank you all for the support and encouragement.  Have a good evening.