Hi-Risk/Recurrent/Advanced PrCa Video Chat, 4/20/26
Survey Opportunity
$200 for a 60min interview. Must be mHSPC or mCRPC; 40-70yr; NOT have used Talzenna, Xtandi or Orgovyx. Reach out to Jason at 773 383 9090 jturner@flinceresearch.com. 15 needed. Indicate you are via AnCan and let us know if accepted (rd@ancan.org)
Rick D presents AnCan at Houston Methodist https://ancan.org/ancan-keynote-at-houston-methodist-aug-2024-can-you-hear-us-amplifying-the-patient-voice/
Listen to our recent Estradiol discussion https://ancan.org/learn-from-ancans-emperors-of-estradiol-021626/
Recent article on AnCan in Rarity life. https://ancan.org/rarity-life-magazine-featuring-rick-davis/
Hear Founder, rick davis talk about how AnCan came to be in this 20-min podcast dropped this week on Empowered Patient Radio http://empoweredpatientradio.com/virtual-support-groups-remove-barriers-encourage-sharing-honest-experiences-to-fight-misinformation-with-rick-davis-ancan
AnCan thanks the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: What to do when assigned control arm in a trial
Topics Discussed
Germline BRCA2 Gent graduates to this group 6 mo. post surgery; heart issues arise – at 87! Can E2 worsen cardiac condition?; entering “Long Game’ trial but wants a GU MO; assigned control in Xalirutamig trial, and seeking alternatives – MSKCC 2nd opinion; embarking on IHT, but very low pulse requires investigation; why’s he getting a PSMA with undetectable PSA – new GU MO could be in order; PSMA and PSA stable – time to debulk?; change HT to daro one year out?; ongoing fatigue – try Wellbutrin; accepted to Long Game, but PSA doubling fast; recurrent Mx Gent finds he’s germline BRCA2 on AnCan’s pushing
Chat
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AnCan – Rick sent: 5:10 PM
GoTo 877 582 7011
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david opp sent: 5:25 PM
What is the email for rick davis?
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Len sent: 5:26 PM
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Jeff Marchi – San Francisco sent: 5:37 PM
here is info on the study of Sarupari
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AnCan – Rick sent: 5:56 PM
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Julian-Houston sent: 6:09 PM
Another great conversation! Thanks Jack – you are a true trailblazer!!!
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AnCan – Rick sent: 6:09 PM
Enolen
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Jim Stewart Reno, NV sent: 6:12 PM
have to pick up grandkids…good night all!
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Alfredo in Houston sent: 6:17 PM
six-transmembrane epithelial antigen of the prostate 1 (STEAP1)
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AnCan – Rick sent: 6:25 PM
Dana Rathkopf http://www.mskcc.org/cancer-care/doctor/dana-rathkopf
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Bruce Schrimpf sent: 6:57 PM
Construction at Mayo Rochester. Been there and saw it. It drove me nuts! Trying to avoid it.
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Barry Blomquist sent: 7:14 PM
Thanks all, great session! Have to jump.
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Jeffrey G sent: 7:18 PM
Adios guys. Always appreciate your input. My BRCA2 came back positive last wk. Will do appropriate research. Thanks guys.
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“Thomas” Matica sent: 7:21 PM
Good evening. Great meeting.
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Eric Curtis sent: 7:27 PM
Gotta run. Thanks guys
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Shirrell Roberts sent: 7:31 PM
Good session tonight! Be safe everyone. Thank you
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Bob Schwartz, USN, Venice, FL. sent: 7:34 PM
Have to go, take care.
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Gary Martin sent: 7:39 PM
Yes I used cryotherapy too – multiple gel pack frozen gloves and socks essential to avoid neuropathy.. can get them from amazon
For 1 hour docetaxel infusions, did 15 minutes before, during, and 15 minutes after. Used digital thermometers to track temps in hands and feet.
no total 1.5 hours total
start 15 minutes before infusion, end 15 minutes after infusion
Yes found some research supporting cryotherapy benefits.
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Frank Ciambra sent: 7:51 PM
Thank you
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Bruce Schrimpf sent: 7:53 PM
Thanks guys see you next week GOOD LORD WILLING!