Hi-Risk/Recurrent/Advanced PrCa Video Chat, Aug 25, 2026

by | Aug 26, 2026 | High Risk/Recurrent/Advanced, High Risk/Recurrent/Advanced Prostate Cancer, mCRPC, mHSPC, Prostate Cancer, Recorded Groups, Uncategorized

Intermediate Risk Prostate Cancer Graphic

Hi-Risk/Recurrent/Advanced PrCa Video Chat, Aug 25, 2026

Substack is coming to AnCan… or maybe AnCan is coming to Substack. We’ll be posting the best of all our Reminders. Watch our for more details.

COMING IN SEPTEMBER… AnCan Heart Group – new support group for all things cardio and open to all! To sign up for Reminder at https://ancan.org/contact-us/. For ProsCard mailing list, please write to  rd@ancan.org.

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room

Editor’s Pick: We burst his bubble that advanced prostate cancer can be cured! 😕

Topics Discussed

Newbie #1 skirts triplet but discuss debulking; Newbie #2 encouraged to rethink surgery decision; PSA falls from HT and RT right ahead; whaddya mean, there’s no cure!?!; RT ‘torture’ (really???) vs ADT for life; GUMO will consider E2; weird disease needs a 2nd opinion; Orgovyx not worth $700 for this Gent; walking helps restore muscle loss; Orgovyx produces different hot flashes; changing ARSI before Pluvicto may rock the boat; personal evaporative cooler demo

Chat

  • AnCan Barniskis – rick sent: 3:10 PM

    Dr. John is at a medical appointment, and Len is on his way home.

  • AnCan Barniskis – rick sent: 3:28 PM

    Orgovyx

  • AnCan Barniskis – rick sent: 3:35 PM

    in that case, we won’t add you to the heart group unless you wish?

  • AnCan Barniskis – rick sent: 3:56 PM

    http://nomograms.mskcc.org/Prostate/index.aspx MSKCC nomogram

  • Jeff Marchi – San Francisco sent: 3:57 PM

    Retzius surgery to preserve function

  • Alfredo in Wimberley, TX sent: 3:57 PM

    https://www.mdanderson.org/cancerwise/how-retzius-sparing-prostatectomy-helped-a-prostate-cancer-patient.h00-159538167.html

  • Alfredo in Wimberley, TX sent: 3:59 PM

    Here is a more recent reference https://mydoctor.kaiserpermanente.org/mas/news/a-new-era-in-prostate-cancer-surgery-retzius-sparing-technique-delivers-life-changing-results-2941449

  • Jeff Marchi – San Francisco sent: 3:59 PM

    Thanks Alfredo

  • Alfredo in Wimberley, TX sent: 4:04 PM

    Duke urologists, just fyi https://urology.duke.edu/faculty

  • Jim Marshall, Vet Sup Grp. Moderator sent: 4:07 PM

    Did 5 years of ADT + Abiraterone and tolerated it quite well. jim

  • Alfredo in Wimberley, TX sent: 4:09 PM

    What did the recent JAMA Oncology ProtecT study show? A 2025 secondary analysis looked at 15-year outcomes in men with localized prostate cancer and compared those with cribriform-positive disease to those with cribriform-negative disease. I The findings were important: Among men with cribriform-positive prostate cancer, the 15-year risk of metastasis was 25% with active monitoring, 26% with surgery, and 8% with radiotherapy plus short-term hormone therapy. Among men with cribriform-negative disease, the metastasis rates were much lower: 7% with active monitoring, 4% with surgery, and 3% with radiotherapy. Overall, cribriform-positive disease was linked to a significantly higher risk of metastasis, while outcomes for cribriform-negative disease were favorable across treatment groups.

  • Bill Lawler sent: 4:45 PM

    Dr. Atish Choudury, Dana Farber

  • Bill Lawler sent: 4:49 PM

    What time?

  • Jeff Marchi – San Francisco sent: 4:49 PM

    3pm pacific

  • Robert sent: 4:53 PM

    My update is not critical I can wait til next week.

  • TonyFig sent: 4:56 PM

    lost internet connection

  • Robert sent: 5:01 PM

    I need to run, Thanks for a great meeting

  • AnCan Barniskis – rick sent: 5:03 PM

    Lazarex Foundation https://lazarex.org/

  • Mike sent: 5:06 PM

    Thank you to all. Very grateful to have found this group. I’ll be back. 🙂

  • Julian – Houston sent: 5:09 PM

    Thanks for the great discussion – my update can wait for next time,

  • “Thomas” Matica sent: 5:09 PM

    Good night , gents.

  • Bill Lawler sent: 5:17 PM

    If it works, stick with it!!!

  • AnCan Barniskis – rick sent: 5:17 PM

    https://ancan.org/keeping-cool-in-the-heat-of-summe