AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: VA and Medicare billing issues leave Veteran with out-of-pocket medical bills. (bj)
Topics Discussed VA retracts 70% disability rating citing a clear and unmistakeable error and the implications of losing benefits; importance of a nexus letter from a medical expert to bridge the gap between military service (e.g. exposure to trichloroethylene/TCE) and a current diagnosis; challenges with Primary Care Providers (PCPs) who may be reluctant to provide referrals to specialists like genitourinary (GU) oncologists; advice on hiring attorneys for VA appeals and what costs are paid by your attorney; VA does not bill Medicare for non-service-connected treatments, leading to personal bills despite having private secondary insurance.
Chat
AnCan – Boykin sent a chat · 8:13 PM
www.ancan.org/veterans
AnCan – Boykin sent a chat · 8:15 PM
https://www.youtube.com/@ancanfoundation/playlists
Danny Lankford (Minnesota)) sent a chat · 8:51 PM
1. 20% Fee — “Safe Harbor” (Most Common) Presumed reasonable by the VA Automatically paid directly by the VA out of your back‑pay Most attorneys use this rate for standard appeals 2. 30% Fee — Common for Complex Cases Still normal and widely used VA will NOT automatically pay the extra above 20% Attorney must collect the difference from you directly 3. 33.3% Fee — Upper Limit Before Scrutiny Anything above 33.3% is presumed unreasonable VA can reduce the fee if it’s excessive 4. 0% Upfront You never pay a retainer You never pay hourly You only pay if you win
Danny Lankford (Minnesota)) sent a chat · 8:52 PM
Is this legit?
Danny Lankford (Minnesota)) sent a chat · 8:52 PM
VA site
AnCan – Boykin sent a chat · 9:10 PM
VFW Eligibility https://www.vfw.org/join/eligibility
Mark WV sent a chat · 9:41 PM
good nite everyone
AnCan – Boykin sent a chat · 9:41 PM
good nite Mark!
Danny Lankford (Minnesota)) sent a chat · 9:45 PM
Thanks ya’ll for the help. I’ll just get it started
AnCan – Boykin sent a chat · 10:02 PM
www.ancan.org/veterans
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics, and Foundation Medicine.
WELCOME all to our newly recorded Low/Intermediate Prostate Cancer Group. To receive notice when new recordings are posted, either follow us on this YouTube Channel or sign up to our Blog via https://ancan.org/contact-us/ – check New Blog box.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Treatment at Center of Excellence (COE) preferred over Community Care. (bj)
Topics Discussed Using the Memorial Sloan Kettering Cancer Center (MSKCC) Nomogram to predict the success rate of surgery versus recurrence risk; clinical significance of cribriform patterns in pathology reports; Androgen Deprivation Theory (ADT) & Cardiac Health means understanding the diffference between short- and long-term risks as well as the importance of cardio-oncology monitoring; getting second opinions from on pathology reports are important to confirm Gleason score and identify other potential concerns; treatment at a Center of Execellence (COE) preferred over Community Care because COE offer integrated, multi-disciplianary and access to advanced technologies.
Chat
AnCan – Boykin sent a chat · 8:01 PM Dr. Ming Zhou Mount Sinai Health System Department of Pathology, Box 1194 Annenberg Bldg. 15th FL 1468 Madison Ave New York, NY 10029 Email: Ming.zhou@mountsinai.org Telephone: (212)241-8881
AnCan – Boykin sent a chat · 8:02 PM Dr. Jonathan Epstein – https://advanceduropathology.com/Tel:516-760-2037jepstein@imppllc.com
Steve Ft Worth sent a chat · 8:15 PM STeven Warwick
AnCan – Rick sent a chat · 8:19 PM GoTo877 582 7011for tech assistance
AnCan Bill sent a chat · 8:31 PM http://nomograms.mskcc.org/Prostate/index.aspx
AnCan – Boykin sent a chat · 8:38 PM Have him run the MSKCC nomogram http://nomograms.mskcc.org/Prostate/index.aspx
David in Portland, OR sent a chat · 8:39 PM Active Monitoring, Surgery, and Radiotherapy for Cribriform-Positive and Cribriform-Negative Prostate Cancer: A Secondary Analysis of the PROTECT Randomized Clinical Trial (Sushentsev, Nikita): https://jamanetwork.com/journals/jamaoncology/article-abstract/2840006?utm_campaign=articlePDF&utm_medium=articlePDFlink&utm_source=articlePDF&utm_content=jamaoncol.2025.4125
Jp sent a chat · 8:46 PM Can I ask a question on here by chat ?
Jp sent a chat · 8:47 PM Ok
AnCan Bill sent a chat · 8:49 PM JP – you can put something in the chat. If you wait until the end, we’ll get to you in the virtual room.
Jp sent a chat · 8:50 PM Thank you
My question is about the real side effects of chemo
My doctor wants me to start in September
Jp sent a chat · 8:52 PM Got it thank you
Jp sent a chat · 8:52 PM New
Jp sent a chat · 8:53 PM 🙏
AnCan – Rick sent a chat · 9:07 PM Focal therapy article on our bloghttps://ancan.org/prostate-cancer-focal-therapy-as-primary-treatment/
AnCan – Rick sent a chat · 9:08 PM https://ancan.org/prostate-cancer-focal-therapy-as-primary-treatment/
David in Portland, OR sent a chat · 9:55 PM A Phase III Randomize Controlled Trial of Sterotactic Body Radiotherapy in Localized Prostate Cancer: Pace-B Trial (van As, Nicholas): https://pmc.ncbi.nlm.nih.gov/articles/PMC7616714/?utm_source=chatgpt.com
AnCan Bill sent a chat · 9:58 PM https://ancan.org/events/month/
Hi-Risk/Recurrent/Advanced PrCa Video Chat, 5/4/26
Survey Opportunity
$200 for a 60min interview. Must be mHSPC or mCRPC; 40-75+/-; NOT have used Talzenna, Xtandi or Orgovyx. Reach out to Jason at 773 383 9090 jturner@flinceresearch.com. 15 needed. Indicate you are via AnCan and let us know if accepted (rd@ancan.org)
AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Mutation issues prevail tonight… but also 1.4 PSA on mono daro raises questions.
Topics Discussed
Does PTEN change HT duration?; low/intermediate Gent sneaks in; gynecomastia prevention; is a 1.4 PSA on mono daro good or bad?; 2nd opinion for another PTEN Gent; BRCA Gent finds new lead GU MO; HIFU for recurrence within prostate; bad reaction to first chemo; PSA rises 4x in 3 months; younger Newbie follows triplet against TP53 and PTEN
Chat
AnCan – Rick sent: 4:53 PM
Flince survey…. NO Talzenna, Xtandi or Orgovyx JTurner@flinceresearch.com
40-75 +/- metastatic
AnCan–John A sent: 5:42 PM
germline (inherited) gene test
AnCan–John A sent: 5:44 PM
Dr Epstein: advanceduropathology.com (516)280-7930
Don Rogers sent: 6:06 PM
anastrozole 1 mg twice a week
Len Sierra sent: 6:24 PM
The only study I’m aware of was the EMBARK trial with 3 arms: ADT alone, Enzalutamide alone, and combo of enzalutamide and ADT. Read about that trial.
Richard B, Silver Spring, MD sent: 6:31 PM
I need to step away to take a phone call. I appreciate the efforts of the AnCan team for their efforts to this evening’s discussion.
AnCan–John A sent: 6:33 PM
cabazitaxel Jevtana
AnCan Bill sent: 6:34 PM
Frank is still on. Just not in front of his camera right now.
Bruce Schrimpf sent: 6:59 PM
Thanks guys! As always good!
Jim Marshall, Vet Support Grp. Moderator sent: 7:03 PM
Another Trial for PTEN for mCRPC is being run by the VA and GW Hospital called the Carpet Trial. Jim M
“Thomas” Matica sent: 7:03 PM
Good night, gents. Very good meeting and many thanks to our great moderators
$200 for a 60min interview. Must be mHSPC or mCRPC; 40-75+/-; NOT have used Talzenna, Xtandi or Orgovyx. Reach out to Jason at 773 383 9090 jturner@flinceresearch.com. 15 needed. Indicate you are via AnCan and let us know if accepted (rd@ancan.org)
AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: PSA rockets to 186 and bone mets are found 5 months after prostatectomy; AND, self-advocacy pays off!
Topics Discussed
Recurrence (salvage) RT success but Newbie is anxious; BRCA germline Newbie in treatment at MSKCC; PSA skyrockets right after surgery and mets are found; treatment doing its work and GU med onc confirms path; great experience with AnCan Advisor Dan Georg who endorses treatment; 2nd opinion where academic conflict of interest is suspected; bad reaction to Zometa; chemo steroids create mega-munchies – GLP1 helps; if enz is not making issues, don’t switch; BRCA gets Gent to finally see a GU med onc; rash from coming off HT meds; self-advocating shortens time on HT doublet
Active Surveillance Prostate Cancer Video Chat, April 22nd, 2026
AnCan is grateful to the following sponsors for making this recording possible: Novartis, Telix, Blue Earth Diagnostics, and Foundation Medicine.
Active Surveillance (AS) for low-risk prostate cancer involves unique challenges compared to other treatments. This online support group is designed for men and their caregivers who are currently on or considering AS. We hold four meetings monthly, recording only the second and fourth sessions. Our discussions cover a wide range of topics, including anxiety management, biopsy experiences, and the decision-making process around continuing or discontinuing AS. Newcomers are given priority to share their experiences, so we encourage you to join us.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussion are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500, https://www.fda.gov/media/76299/download/.
All AnCan’s groups are free and drop-in … join us in person sometime!
Editor’s Pick: Small acts of kindness go a long way. (bj)
Topics Discussed Correcting your VA claim record when the VA thinks you stopped medical treatment; obtaining your medical records from the VA requires a FOIA request; work the AnCan network people in the group are willing to help you outside of AnCan sessions; when people go out of their way to help you find a positive way to thank them — small acts of kindness go a long way; in-person visits can produce better outcomes than phone or online interactions; ALS is considered to presumptive by the VA; understanding Special Monthly Compensation (SMC) Subsection S (SMC-S) housebound benefits.
Chat
AnCan – Boykin sent a chat · 8:14 PM
veterans@ancan.org
AnCan – Boykin sent a chat · 8:17 PM
YouTube Channel https://www.youtube.com/@ancanfoundation/playlists
Israel sent a chat · 8:40 PM
VSO
Israel sent a chat · 8:40 PM
Another benefit og going to your local VA office in person is that they usally have VSO offices in the same building.
Hank Zajic Springfield VA sent a chat · 9:07 PM
I have to head off. Best regards to all and thank you for a great meeting Capt Jim!
Bruce Schrimpf sent a chat · 9:10 PM
If any VA intake person who is a male wants to argue that getting a shot in the penis is not really a disability, let that goof be the first to volunteer for the proceedure!
Eric Baker – Lafayette sent a chat · 9:18 PM
I am going to sign off for the night! Thank you everyone!
AnCan – Boykin sent a chat · 9:19 PM
Good night Eric!
Bruce Schrimpf sent a chat · 9:54 PM
Bruce is 80
Bruce Schrimpf sent a chat · 9:59 PM
Good seeing all if you again. Great job Jim!
AnCan – Boykin sent a chat · 10:00 PM
veterans@ancan.org
