Hi-Risk/Recurrent/Advanced PrCa Video Chat, July 28, 2026
AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.
AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups:
Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/
Veterans Healthcare Navigation… 1st & 3rd Tuesdays @ 8.00 pm Eastern Schmier Room https://ancan.org/veterans/
Veterans Speaking freely… 4th Tuesday @ @ 8.00 pm Eastern Schmier Room
Editor’s Pick: Dr. Paul allowed PSA to rise to 160, and then kept 3x Pluvicto back that he now plans to use!
Topics Discussed
Newbie has local care that is not up to SoC; “Oldie” needs to replace Dr. E; how frequently and which scans when monitoring during drug holiday; successful AUS installation; Gent is successfully post RT/HT but when will T. return?; v. high cholesterol calls for statins – don’t fuss about fatigue side effects; mirabegron has few side effects for our user; clinical trial delay is a stressor; PSMA scan has great results… but cardio issues are for another group; remaining Pluvicto sessions preferred to SBRT; PSA got to 160 on drug vacation; E2 discussion featuring Dr. Paul coming soon – see Reminder;
Chat
-
AnCan – rick sent: 3:08 PM
The E2 Session with Dr. Paul is on Thu Aug 20. My apologies for the error.
-
Bob Schwartz, USN, Venice, FL. sent: 3:09 PM
No apologies necessary. Nice to see that your Human.
-
Jim Marshall, Vet Sup Grp. Moderator sent: 3:28 PM
Dr Channing Paller, Sibley Hospital, Johns Hopkins. Wash DC
Federal Blue Cross Insurance is top notch.
-
Morgan Brooke sent: 3:30 PM
Can Rick speak more about what is wrong with the 6-month Eligard shot?
I believe the Predinsone is to assist with controlling blood pressure
-
Jeff Marchi – San Francisco sent: 3:32 PM
the prednisone is to restore cortisol which zytiga stops production of without cortisol you have severe fatigue
-
Wes – San Diego sent: 3:33 PM
PSMA could have a false positive for the shoulder, but that might depend where the other sites are.
-
Jeff Marchi – San Francisco sent: 3:34 PM
rick does not feel the 6 month shot lasts the full 6 months (Ed: ‘may not’)
-
Morgan Brooke sent: 3:35 PM
okay.
-
AnCan – rick sent: 3:35 PM
-
Jeff Marchi – San Francisco sent: 3:37 PM
I had a 6 month shot for 6 years, had testosterone tests every month had it stayed undetectable the whole 6 months results may vary
-
Wes – San Diego sent: 3:38 PM
I was on federal BC/BS, and was on Orgovyx.
-
Bob Faulkner sent: 3:38 PM
I am a new member also Bob Faulkner
-
AnCan – rick sent: 3:41 PM
Bob – we can’t assure new men of time unless here in the first 5 minutes. Either we may be able to take you at the end, or we can definitely do an intake next week.
-
Wes – San Diego sent: 3:53 PM
Orgovyx and other ADT have potential cardio side effects, lengthened ST being one. I chose Orgovyx because I had cardio issues, and Orgovyx had fewer issues than Firmagon. Ironically, PSA did not drop sufficiently, so after about 6 weeks, I switched to Firmagon.
-
Rick S sent: 3:54 PM
I have a lot to learn!
-
Pierre D., Olean, NY sent: 3:56 PM
Another advantage of Orgovyx over the injectables is if you do develop side effects from Orgovyx you can stop it and it’l clear out of your system within weeks not months.
-
Wes – San Diego sent: 3:57 PM
V true; Firmagon has 1/2 life of 53 days.
-
Jeff Marchi – San Francisco sent: 4:03 PM
Orgovyx half life is 25 hours
-
AnCan – ricksent: 4:11 PM
Artificial Urinary Sphincter AUS
-
Morgan Brooke sent: 4:14 PM
Thank you all for your time. I need to run. I’ll to join more often.
-
Wes – San Diego sent: 4:17 PM
-
Jeff Marchi – San Francisco sent: 4:24 PM
From PCa commentary – After 3 – 9 months of ADT nearly all men fully recover by about 10 months; – After 18 – 24 months of ADT only 60% fully recover by about 3 years; and – After 36 months of ADT exposure only 50% fully recover by ~ 5 year
-
Wes – San Diego sent: 4:31 PM
Thanks Jeff, that conforms to my experience after 8 months on Orgovyx and Firmagon. After about 60 days being off, I felt substantially better (feel more like myself, peripheral vision is better, libido slowly coming back)
Repatha has far fewer side effects than statins. Repatha is remarkably expensive.
-
Alfredo in Sacramento sent: 4:33 PM
yes, my wife had bad reaction to Repatha but does fine on Praluent
-
Wes – San Diego sent: 4:35 PM
I had a bit of not having land legs on Repatha; not bad, but dropped LDL from 100+ to 30.
-
Steve Roux, Up North, Michigan sent: 4:41 PM
I need to run. As usual – GREAT meeting gang! See all of you next week.
-
Alfredo in Sacramento sent: 4:41 PM
my wife had total cholesterol of 309 mg/dl 5 years ago (did not tolerate any of several different statins); 180 mg/dl 2 weeks ago on Praluent . we believe she has Familial (inherited) hypercholesterolemia
-
Jeff Marchi – San Francisco sent: 4:46 PM
I have low cholesterol and my doctor put me on a statin and it crippled me. added at least 10 years to my life while on it. Friends asked my wife if I had much more time.
-
Wes – San Diego sent: 5:04 PM
Bye folk; well done again.
-
Thomas” Matica sent: 5:05 PM
Good evening, gents.