Hi-Risk/Recurrent/Advanced PrCa Video Chat, Aug 11, 2026

by | Aug 12, 2026 | High Risk/Recurrent/Advanced, High Risk/Recurrent/Advanced Prostate Cancer, Inherited Mutations, mCRPC, mHSPC, Prostate Cancer, Recorded Groups, Uncategorized

Intermediate Risk Prostate Cancer Graphic

Hi-Risk/Recurrent/Advanced PrCa Video Chat, Aug 11, 2026

Substack is coming to AnCan… or maybe AnCan is coming to Substack. We’ll be posting the best of all our Reminders. Watch our for more details.

COMING IN SEPTEMBER… AnCan Heart Group – new support group for all things cardio and open to all! To sign up for Reminder at https://ancan.org/contact-us/. For ProsCard mailing list, please write to  rd@ancan.org.

AnCan thanks the following sponsors for making this recording possible: Novartis, Blue Earth Diagnostics and Foundation Medicine.
Views expressed in this Recording are solely the opinion of AnCan Foundation, our Moderators and Participants.

AnCan does not accept sponsored promotion. Any drugs, protocols or devices discussed are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

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Editor’s Pick: Toss up between the silver lining in HT treatment, and slow T recovery.

Topics Discussed

Originally AS Newbie graduates to T3 maybe T4 treatment; mono daro working but dental issues arise; Alaska doc needs a solid GU QB; pros and cons of tolerating hormone therapy; post-RP PSA still going down; … and post RT/HT PSA declining for our Poet; whole body MRI vs PSMA scans for monitoring; still getting the runaround for GU MO at Sibley – but RO set; follow up PSMA now negative for younger Gent; leg pain and fatigue likely not from HT drugs; MRI on T10 prior to spot RT; heavy brain fog suggests switching ARSI but Pluvicto follows; T recovery slow but after 7 months – don’t panic

Chat

  • Steve Schuler (Seattle) sent: 3:30 PM

    My Rad Onc at Fred Hutch was Jonathan Chen, and I felt like he provided competent care. My oncologist was Evan Yu; he’s been bumped up, and now it is Rajitha Sunkara. I like her.

  • Jim Ekrut, Ft. Worth TX sent: 3:33 PM

    I recommend Biologics by McKesson or Onco360 as specialty pharmacies with access to financial aid. I received a grant from PAN through Biologics that covered all costs for one year of Orgovyx.

  • Steve L sent: 3:36 PM

    UW Northwest is the location for Proton Therapy. They may also do other radiation treatment.

  • Steve Schuler (Seattle) sent: 3:45 PM

    I talked to my oncologist (Rajitha Sunkara). and referenced the PATCH study.

  • AnCan Barniskis Room sent: 3:49 PM

    https://ancan.org/your-dental-health/

  • Jim Marshall, Vet Sup Grp. Moderator sent: 3:58 PM

    CASODEX = Bicalutamide Jim

  • Jim Ekrut, Ft. Worth TX sent: 4:12 PM

    I finished eighteen months of Orgovyx June 19. It did exactly as intended alongside radiation, with my PSA <.01 and testosterone <10 for a full year. My PSA was measured Friday 8/7 , almost seven weeks post-treatment, still <.01 but testosterone has risen to 48. That said, I experienced every side effect listed on the Orgovyx website and more.

    Sorry to leave, but I have another meeting commitment. Thanks for the support. All the best!

  • Jeffrey G sent: 4:21 PM

    How old is he?

  • AnCan–John A sent: 4:21 PM

    64

  • Dave Lied – Pittsburgh sent: 4:23 PM

    Thank you all for the informative discussion tonight. Sorry to leave early.

  • AnCan Barniskis Room sent: 4:24 PM

    Kishan Spratt https://jamanetwork.com/journals/jamaoncology/article-abstract/2841671

  • Bruce Schrimp sent: 4:27 PM

    Thank you for the ADT article!

  • Pierre D., Olean, NY sent: 4:46 PM

    How reliable are PSMA PETS if PSA is undetectable?

  • AnCan Barniskis Room sent: 4:50 PM

    Dr. P…. not that reliable if recurrent; may be reliable if you know you have a tumor burden

  • AnCan Barniskis Room sent: 5:03 PM

    dr.john@ancan.org

  • Jim Marshall, Vet Sup Grp. Moderator sent: 5:12 PM

    Was on ADT for 5 years, did not budge for 3+ years. Then and now less than 50, Jim

  • Steve Schuler (Seattle) sent: 5:15 PM

    thank you for the feedback, exactly what I wanted!

  • Barry Blomquist sent: 5:15 PM

    Thanks guys good information – next week.

  • Steve Schuler (Seattle) sent: 5:16 PM

    I had been on Zometa when I had teeth removed, and my oral surgeon gave me Pentoxifylline 400mg + vitamin E 450mg for 60 days, which is apparently a protocol that increases blood flow (perfusion ?) and reduces risk of jaw necrosis

  • Jim Marshall, Vet Sup Grp. Moderator sent: 5:18 PM

    When Abi caused Liver issues, I got dropped from 4 to 3 pills a day and good for the next 5years.

  • Steve Schuler (Seattle) sent: 5:19 PM

    EMBR worked for me moderately well, but I dropped it when I started E2, which was a great help to me