415.505.0924
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Advocating for Rare Diseases
June 30, 2021 @ 8:00 pm - 9:30 pm EDT
REGISTER HERE: https://bit.ly/3j3EVF5
Join us for a virtual discussion with incredible members of the Rare Disease community as they share their own advocacy experiences to make YOU a better advocate for your condition!
Topics to be addressed include:
- What is advocacy?
- How can you advocate for yourself or a loved one?
- How can I advocate for my rare disease?
- And more!