LUPUS
About Us
Welcome all! Our group is peer-led once a month by people living just like you. We are a group for ANYONE living with lupus. We have been through our own triumphs and failures and hope to give you a sense of hope as we all come together monthly.
There are no judgments, discrimination or any negativity in our group. We support all living with lupus. Danielle (aka, Keto Lupie and director
of Laxin’ for Lupus), Dion and Emmitt (co-founders of The Lupus Dream Team) each have their own journey and ways to live it. Where the 3 of them come together is in their positivity and encouragement to empower you. They want you to be the best you can be every single day and will be here supporting you every step of the way!
A few of the topics that may be discussed, but not limited to are:
- Treatments
- How lupus affects you personally
- Friends and family reactions to you day to day
- Coping mechanisms for stress, anger, depression, loss of hope, etc…
- How lupus has changed you as a person
- Intimacy and sexuality
- Diet and lifestyle
- How to become your best advocate
WE truly look forward to meeting you!
When and Where
Our video chat virtual group meets on the 3rd Tuesday of each month at 8 pm Eastern, 7 pm Central, 6 pm Mountain and 5 pm Pacific in the AnCan Schmier Room. You can join online or by phone at +1 646 749 3127 Access # 656-182-845. See the Joining Instructions Panel above right for more information and other Country Access codes.
Partners
AnCan Is proud to partner with Keto Lupie, Laxin’ For Lupus, and The Lupus Dream Team for this virtual support group.
Upcoming Lupus Groups
Instructions for Joining a Group
Scroll Down to "HOW TO JOIN" on this page for link and other instructions.
Click HERE to sign up for email reminders for this, and other groups we offer.
All of our groups are FREE...
and you can drop in at any time!
Meet our moderators
Related Blog posts
Solo Arts Heal with Beth Horner
You’ll love our March guest, Beth Horner! Noted for her vivacious stage presence, comic sensibility and warm, energetic style, Storyteller Beth possesses a repertoire of stories that has been called “heartfelt, articulate and truthful.”
Patient Highlights from the 2024 ASCO GU conference
Patient Highlights from the 2024 ASCO GU conference – hear our Brains Trust present the posters and presentations they think are most relevant to you.
Webinar: Radionuclide Diagnostics & Theranostics – Theory and Clinical Practice Meet!
Nuclear payloads, guided missiles, directed assassinations…not in global conflict or wars, but prostate cancer and what happens inside bodies of men getting radionuclide theranostics (treatment) and diagnostics (scanning) today.
Radionuclide treatment for prostate cancer is at least 10 years old – does that surprise you? Bayer’s Xofigo was approved in 2013 but adoption has been slow until recent FDA approvals of theranostics (treatment) viz. Pluvicto, and diagnostics (scans) like Illucix and Posluma.
Radionuclides are theory-intense with nuclear medicine doctors less exposed to treatment of advanced prostate cancer. Conversely, GU medical oncologists are less familiar with radionuclides than hormone and chemo-therapy.
Two global experts, GU medical oncologist Dr. Oliver Sartor and nuclear medicine guru, Dr. Philip Kuo will introduce radionuclide theranostics and diagnostics and discuss how the clinic and the theory intersect.
Resources
Our services are free, but if you benefit then please consider a tax deductible donation. You can also support us by signing up to Amazon Smile and nominating Answer Cancer Foundation at no cost to you.
AnCan does not provide medical advice – we do empower you to manage your own care.
Our calls are recorded and posted on this website for later listening; please note we are a peer-to-peer support group and not subject to HIPAA compliance.
