Who Are We?
This support group is for patients and caregivers of a Sarcoidosis patient. We are all patients supporting one another.
Sarcoidosis (pronounced SAR-COY-DOE-SIS) is an inflammatory disease characterized by the formation of granulomas—tiny clumps of inflammatory cells—in one or more organs of the body. When the immune system goes into overdrive and too many of these clumps form, they can interfere with an organ’s structure and function.
This disorder affects the lungs in approximately 90% of cases, but it can affect almost any organ in the body. In some cases, the disease goes away on its own. In others, the disease may not progress but individuals will still suffer from some symptoms that challenge their quality of life. The rest of patients—up to a third of people diagnosed with the disease—will require long- term treatment. Sarcoidosis is considered chronic in people whose disease remains active for more than 2-5 years; in this population sarcoidosis can be debilitating and life-threatening.
When and Where
Our video chat virtual group meets on the 2nd Wednesday of each month at 7 pm Eastern, 6 pm Central, 5 pm Mountain and 4 pm Pacific in the AnCan Schmier Room. You can join online or by phone at +1 646 749 3127 Access # 656-182-845. See the Joining Instructions Panel above right for more information and other Country Access codes.
Our Co-Sponsors
Check out Sarcoidosis Moderator Regina Gordon's Book!
Instructions for Joining a Group
Scroll Down to "HOW TO JOIN" on this page for link and other instructions.
Click HERE to sign up for email reminders for this, and other groups we offer.
All of our groups are FREE...
and you can drop in at any time!
Upcoming Sarcoidosis Groups
Sarcoidosis
With this national online support group you will be able to do a video chat with others who are affected by sarcoidosis and their caregivers: if you don’t feel comfortable with video, you will be able to call-in also, but we do ask that we are able to put your first name in the room so we know who is talking.
Meet our moderators
Related Blog posts
Summer of Art – July 21 Class – Dreamy Summer Sky
On July 21st, we had so much fun once again with our very own Hannah Garrison (Artist, MS activist, and moderator for our MS virtual support group). Hannah taught us how to create summer sunset backgrounds with acrylic paint, blending, different types of clouds, stars, and mountains. You could create 100’s of art pieces that all look different from this class with all the options there are. See what our community members created with this project in the AnCan Art Gallery.
Webinar: Genetic and Genomic Testing The How’s, Why’s and Where’s
On June 29th we hosted a webinar that we know you’ll love to share! Titled “Genetic and Genomic Testing The How’s, Why’s and Where’s”, you’ll get a crash course on everything genetic and genomic testing related.
Featuring a true dream team of experts, Pamela Munster, MD (UCSF Center for BRCA Research), Marni Brisson Tierno, PhD RN (Foundation Medicine), and Channing Paller, MD (Johns Hopkins).
Summer of Art – June 16th Class – Sunflowers
On June 16th, we had so much fun once again with our very own Hannah Garrison (Artist, MS activist, and moderator for our MS virtual support group). We painted Van Gogh inspired sunflowers, and the results will amaze you! In fact, just check out what our community members created here.
Resources
Our services are free, but if you benefit then please consider a tax deductible donation.
AnCan does not provide medical advice – we do empower you to manage your own care.
Our calls are recorded and posted on this website for later listening; please note we are a peer-to-peer support group and not subject to HIPAA compliance.
