Who Are We?
This support group is for patients and caregivers of a Sarcoidosis patient. We are all patients supporting one another.
Sarcoidosis (pronounced SAR-COY-DOE-SIS) is an inflammatory disease characterized by the formation of granulomas—tiny clumps of inflammatory cells—in one or more organs of the body. When the immune system goes into overdrive and too many of these clumps form, they can interfere with an organ’s structure and function.
This disorder affects the lungs in approximately 90% of cases, but it can affect almost any organ in the body. In some cases, the disease goes away on its own. In others, the disease may not progress but individuals will still suffer from some symptoms that challenge their quality of life. The rest of patients—up to a third of people diagnosed with the disease—will require long- term treatment. Sarcoidosis is considered chronic in people whose disease remains active for more than 2-5 years; in this population sarcoidosis can be debilitating and life-threatening.
When and Where
Our video chat virtual group meets on the 2nd Wednesday of each month at 7 pm Eastern, 6 pm Central, 5 pm Mountain and 4 pm Pacific in the AnCan Schmier Room. You can join online or by phone at +1 646 749 3127 Access # 656-182-845. See the Joining Instructions Panel above right for more information and other Country Access codes.
Our Co-Sponsors
Check out Sarcoidosis Moderator Regina Gordon's Book!
Instructions for Joining a Group
Scroll Down to "HOW TO JOIN" on this page for link and other instructions.
Click HERE to sign up for email reminders for this, and other groups we offer.
All of our groups are FREE...
and you can drop in at any time!
Upcoming Sarcoidosis Groups
Sarcoidosis
With this national online support group you will be able to do a video chat with others who are affected by sarcoidosis and their caregivers: if you don’t feel comfortable with video, you will be able to call-in also, but we do ask that we are able to put your first name in the room so we know who is talking.
Meet our moderators
Related Blog posts
Webinar – What Is a Pelvic Floor Physical Therapist – And Why You Need One!
AnCan Foundation supports several conditions that compromise the pelvic floor as a result of surgery, radiation, or just side effects of the disease itself. It can impact continence and sexual function for all!
A non-interventional rehab solution is pelvic floor physical therapy – a sub-specialty in itself.
The Prostate Snatchers — still lurking?
Dr. Mark Scholz reviews progress in prostate treatment and overtreatment since his 2010 book “Invasion of the Prostate Snatchers”
Invasion of the Prostate Snatchers – 2021 Revised Edition Book Review, Howard Wolinsky
Active Surveillor Howard Wolinsky reviews the 2021 revised edition of Dr. Mark Scholz’ iconic book, ‘Invasion of the Prostate Snatchers’. From treatment comparisons to the pitfalls of surgery, this book changed how patients approached prostate cancer.
Resources
Our services are free, but if you benefit then please consider a tax deductible donation.
AnCan does not provide medical advice – we do empower you to manage your own care.
Our calls are recorded and posted on this website for later listening; please note we are a peer-to-peer support group and not subject to HIPAA compliance.
