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Boy, have I ever had a lot of time to think over the last 6 weeks! An itsy bitsy spider bite (in late November 2020) woke my stable MS up! It did not get fully resolved with the first 3 week round of oral steroids. So, starting December 30, 2020 I started an outpatient 5 day, 1 gram Solumedrol infusion therapy. The last Solumedrol infusion was on January 3. Two days later, January 5, 2021; I collapsed once again. While waiting in the emergency department I was given my second Covid 19 test! I was asymptomatic of any Covid-19 symptoms, but my MS was pissed!
That evening, the Nurses and ER Doctor entered my room in full protective garb to advise me that on January 5, 2021, I had tested positive for Covid-19.
January 5, 2021, I start yet another 5 day, 1 gram, Sol-u-Medrol infusion therapy for the MS, AND a 3 day Remdesivir infusion therapy for the Covid-19.
January 7, 20231, my Covid-19 symptoms take a big step forward! I developed a horrible cough on the left side of my chest. I honestly believe I coughed hard enough that I strained muscles in my ribcage, my ribs were tender to the touch. A conversation with my PCP included my desires about intubation, ventilation and CPR IF my condition deteriorated rapidly! Let’s just call that a reality check, wake-up call I did not see coming!
January 8, 2021, the Remdesivir really starts improving my Covid chest congestion and cough. It was simply amazing how fast improvement happened, but we still had to deal with the MS. My PCP consulted with an MS Neurology Specialist at KU Med and she came up with an 80mg/day dose of oral Prednisone for 10 days, then taper to 60mg/day for 3 days, then 40mg/day for 3 days, ending with 20mg/day for 3 days. That will end on February 2, 2021.
Yes, It will have been a long 2 months! But as of right now, my Secondary Progressive MS did not progress! The KU Med Neurologist has reviewed my MRIs and deemed my exacerbation to be a quasi-MS exacerbation. That there quasi sure has/had a long life!
Don’t forget you are your best advocate! Get aggressive!
Frank