Virtual Support Group Co-Sponsored by AnCan and the Ramsay Hunt Syndrome Foundation.
Understanding RHS
Ramsay Hunt syndrome (RHS) is one of the leading causes of facial paralysis, but for the people who experience it, it’s so much more than a medical condition. Symptoms often appear suddenly—sometimes within just a day or two—and can include intense ear pain, dizziness, a blistering rash, changes in hearing, and facial paralysis. Many patients are first told they have Bell’s palsy, only to learn later that RHS is usually more severe and can make recovery far more challenging.
Behind every diagnosis is a real person facing fear, uncertainty, and a life turned upside down.
That’s why the Ramsay Hunt Syndrome Foundation (RHSF) was created in 2024—to ensure that no patient has to walk this journey alone. The RHSF mission is to improve care, expand understanding, and support every individual and family affected by RHS.
In partnership with the AnCan Foundation, we are hosting our virtual group video chats twice a month – See below for times and joining specifics.
Links we think you’ll find useful on the RHSF website:
Upcoming Ramsay Hunt Syndrome Groups
Ramsay Hunt Syndrome
With this national online support group you will be able to do a video chat with others who are affected by Ramsay Hunt Syndrome and their caregivers: if you don’t feel comfortable with video, you will be able to call-in also, but we do ask that we are able to put your first name in the room so we know who is talking.
Hosted by AnCan, our video chat virtual group meets twice a month – on the 1st Thursday of each month at 6:00 pm Eastern (5:00 Central, 4:00 Mountain, and 3:00 Pacific) and on the 4th Sunday of each month at 9:30 am Eastern. The meetings will be held in the AnCan Schmier Room. You can follow the link provided to join online or by phone at +1 646 749 3127 Access # 656-182-845. See the Joining Instructions Panel above right for more information and other Country Access codes.
Meet our moderators
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Resources
Patient Power
Our services are free, but if you benefit then please consider a tax deductible donation.
AnCan does not provide medical advice – we do empower you to manage your own care.
Our calls are recorded and posted on this website for later listening; please note we are a peer-to-peer support group and not subject to HIPAA compliance.
