Editor’s Pick: Very rare penile metatstasis …. not to mention two younger men diagnosed, one denovo metastatic!
Happy Bastille Day ……. Topics Discussed
younger G9 man experiences recurrence; older man experiences recurrence; another younger denovo Mx man needs GU med onc on team; stock medicine cabinet before starting chemo; Neulasta patch falls off!; enzalutamide …. & bad dreams; let’s compare C11 with an Axumin scan; prepping for surgery and how to follow up; feeling mets grow in your penis!
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BARBARA DYSKANT (to Everyone): 3:09 PM: I will need to leave soon because Barry isn’t feeling well tonight. He will get another transfusion tomorrow (2 units this time) — help is on the way. I will stay in touch, of course. Have a great night.
AnCan – rick (to BARBARA DYSKANT): 3:13 PM: Got it B – feel free to come in and out!
BARBARA DYSKANT (Private): 3:13 PM: THanks Rick!!!! Have a great night.
Len (to Everyone): 3:15 PM: ancan.org
Len (to Everyone): 3:45 PM: From the TOPARP clinical trial: “Of these 16 patients, 14 (88%) had a response to olaparib, including all 7 patients with BRCA2 loss”
Madhav Mohan (to Everyone): 3:47 PM: Thanks Carl. can you repeat the name of the new drug you got on?
Madhav Mohan (to Everyone): 3:50 PM: my pre-surgery gleason was a 4/5.
Madhav Mohan (to Everyone): 3:51 PM: this was confirmed on the post surgery pathology – Primary was 4 and Secondary was 5
Jake Hannam (to Everyone): 3:52 PM: olaparib (PARP inhibitor)
Madhav Mohan (to Everyone): 4:14 PM: Thanks Peter, Carl, Len, Rick. Real useful information. I checked my Genomic Assay – the mutations were in BRCA1, CDK12 which they called out and also mentioned NF1 and TERT
Len (to Everyone): 4:16 PM: The BRCA and CDK12 mutations are “actionable.” Not the others.
Madhav Mohan (to Everyone): 4:16 PM: Thats what they said, Len.
Madhav Mohan (to Everyone): 4:17 PM: :))
Carl Forman (Private): 4:29 PM: Curious about the new guy from last week who was told he has weeks to live, and was hopefully going to see Paul Corn. Have you heard from him since?
AnCan – rick (to Carl Forman): 4:32 PM: we set him up with Corn – this week I think
Gene Spesard (to Organizer(s) Only): 4:37 PM: Got to leave. Dog demands food.
AnCan – rick (to Everyone): 4:50 PM: PCa pamphlet http://urology.ucsf.edu/sites/urology.ucsf.edu/files/uploaded-files/attachments/localized_prostate_cancer_and_its_treatment_1.pdf
Nick (to Everyone): 4:59 PM: Thank you for all the valuable info and well wishes.
John A (to Everyone): 5:17 PM: “Prostate cancer with penile metastasis: a case report.” Hinyokika Kiyo 2005: 519(1);771-3. Sawada A, et al. Patient improved on Estramustine, Paclitaxel and Carboplatin.
Len (to Everyone): 5:19 PM: https://mpcproject.org/home