Hi-Risk/Recurrent/Advanced PCa Virtual Support – Men & Caregivers Recording, Apr 13, 2021

 

Editor’s Choice : We learn about a partial removal of the prostate for urinary reason – a simple prostatectomy; and how this can complicate identifying whether PCa has spread. (rd)

Topics Discussed

Hawaii KP patient needs better follow-up on recurrence; a partial removal of the prostate confuses what’s going on; 80 yr man wonders how to handle recurrence; Lu177 PSMA trial experience; & … I130 PSMA trial experience together with jaw issues; cyclophosphamide oral chemo; the AUS works!! (artificial urinary sphincter); PSA still rising on ARV110 trial; experience with return of testosterone; follow-up after 4+5 RP with a positive node.

Chat Log

Rick Davis (to Everyone): 3:03 PM: OMG …… Don Price – the Mouse returns!! Bob Bordiga also coming out the woodwork

Don Price (to Everyone): 3:06 PM: Si…sorry to have been away so long.

Jake Hannam (to Everyone): 3:30 PM: Axumin PET/CT scan

Jake Hannam (to Organizer(s) Only): 3:40 PM: simple prostatectomy or TURP?

John Ivory (to Everyone): 3:45 PM: https://cancer.osu.edu/find-a-doctor/search-physician-directory/anish-b-parikh Pat Martin (to Everyone): 3:46 PM: Any biopsies?

Jake Hannam (to Everyone): 3:51 PM: thanks john

Pat Martin (to Everyone): 3:53 PM: What Gleason score?

John Ivory (to Everyone): 3:53 PM: he said 4+4

Pat Martin (to Everyone): 3:54 PM: Thanks. I missed that

W Klass Toronto (to Everyone): 3:56 PM: Need to leave. Thanks for the invite.

Pat Martin (to Everyone): 3:57 PM: I was looking forward to hearing from you.

Jake Hannam (to Everyone): 3:57 PM: thanks for joining us. Come back soon!

Herb Geller (to Organizer(s) Only): 4:03 PM: I just got an e-mail from Collins at Gt saying my PSA yesterday was 1.4, and that was after I did stationary bicycle. The previous GT number was 1.8!

Jake Hannam (to Organizer(s) Only): 4:03 PM: congrats Herb!

Pat Martin (to Everyone): 4:08 PM: heading out. See all next week.

John Ivory (to Everyone): 4:16 PM: I’ve go to run to another meeting. Good to see everyone!

Russ (to Everyone): 4:25 PM: Heading out as well. Have a good night!

Bob (to Everyone): 4:30 PM: Is an axumin scan the same as a PSMA PET with Galium 68?

Jake Hannam (to Everyone): 4:30 PM: oral chemotherapy drug called cyclophosphamide (Cytoxan)

Herb Geller (to Organizer(s) Only): 4:30 PM: No, it uses a different tracer from PSMA. Axumin uses a different tracer

Len Sierra (to Everyone): 4:31 PM: Bob, no, PSMA-PET is more sensitive than Axumin

Rick Davis (to Everyone): 4:36 PM: cyclophosphamide https://pubmed.ncbi.nlm.nih.gov/31399784/

Bob (to Everyone): 4:40 PM: Does anyone have experience with BiPolar ADT? If so, did it work?

Rick Davis (to Everyone): 4:41 PM: Bob – we have a webinar on BAT … search for Denmeade on our website https://ancan.org

Rick Davis (to Everyone): 4:42 PM: Anecdotally we only see short term results from BAT, but JH is reporting better results. Some of our guys have had more conversations with JH. This is a longer discussion than the chat window.

Bob (to Everyone): 4:43 PM: Thank you everyone. I have to leave due to a 1:45appointment which was previously scheduled.

Jake Hannam (to Everyone): 4:44 PM: ARV-110

Jeff Marchi (Private): 4:48 PM: you asked whether Santa Clara is where the medoc is located. when I had my prostate removed I had to drive from San Francisco to San Jose. that is where the surgeons are located. must be where medoc is located

Rick Davis (to Jeff Marchi): 4:50 PM: No he’s mid-Peninsula

Herb Geller (to Everyone): 5:16 PM: I gotta go. See you on Monday

Len Sierra (to Everyone): 5:23 PM: Goodnight, fellas. See you next week.