Hi-Risk/Recurrent/Advanced PCa Video Chat Recording, Sep 20, 2021
3 survey opportunities have come our way for you …… and AnCan receives a donation for each approved respondent:
…… if you are taking or have taken and stopped relugolix (Orgovyx), you can earn upto $200 for 80 min of your time, mostly a one-on-one interview. Or, upto $350 if you interview together with your caregiver. Please reach out to us via info@ancan.org and we’ll connect you.
……. if you experience a cough or shortness of breath and are in any type of active treatment, including for urinary issues, there is an opportunity to earn $100 for 60 minutes of time from your home computer. The cough or shortness of breath does not have to be related to your diagnosis or treatment. If interested, please go to https://gigs.savvy.coop/stcancer/?r=a
….. if you have experienced mouth swelling and sores (stomatitis) as a result of past or current treatment, there is another opportunity to earn $100 for 60 minutes of time from your home computer. If interested, please go to https://gigs.savvy.coop/cancer-stomat…
AnCan Webinars next week …..
Sep 29 Dr. Klotz – world renowned urologist https://bit.ly/394uxXB
Sep 30 Nancy Novack – 10 favorite from her list https://bit.ly/3nTHBaJ
Editor’s Pick: Changing your doc comes up multiple times this week – make sure you find one with whom you connect! One other takeaway – don’t test if it don’t make a difference! (rd)
Topics Discussed
Embr’s Wave – now and agin later; Testosterone returns quickl for man in 70’s; treating metastatic disease in N. Florida; Pylarify reimbursed by Medicare; Bipolar Androgen Therapy; ‘ABC’ man dives into cabazitaxel; chemo side effects; Amazon Smile pitch; more WAVE; any relationship between abi and highh clacium?; PSA fluctuatuing on abi; what’s next? – cabazitaxel or Radium 223; peripheroal neuropathy and Vit B6; switch docs to find a good fit with YOU!
Chat Log
Joe Gallo (to Everyone): 5:48 PM: Eleni Efstathiou, Houston Methodist; Paul Corn MD Anderson
Jake Hannam (to Everyone): 5:56 PM: https://ancan.org/
Len Sierra (to Everyone): 6:03 PM: Dr. Elizabeth Guancial
AnCan – rick (to Everyone): 6:04 PM: https://flcancer.com/en/physician/elizabeth-guancial-md/
Joe Gallo (to Organizer(s) Only): 6:09 PM: She could also do a preview interview via telemed Dr. E website says she will accept video visits
Rusty (to Everyone): 6:14 PM: Off to Fly Fish thanks to Reel Recovery. A dream trip to northern ME all comp. via Reel Recovery. Check it out. I believe this trip would cost $2,400 if paying your own way. 3 days and 2 nights, everything included, even a personal guide and instructor. All for guys living with cancer.
Len Sierra (to Everyone): 6:16 PM: I’ve heard of Reel Recovery, Rusty, and I’ve been wanting to do it, too. Sounds like a great program!
Herb Geller (to Everyone): 6:16 PM: Sounds great,
AnCan – rick (to Everyone): 6:21 PM: ABC Club …. Anything But Chemo
Maria Cintia (to Everyone): 6:26 PM: thanks for let me know, I call tomorrow
AnCan – rick (to Maria Cintia): 6:27 PM: Maria …… Dr. E will do a telemed appointment I believe. Here is her Houston Methodist website .https://www.houstonmethodist.org/doctor/eleni-efstathiou/?inm=vfad And here is a pix of her from ouir Advisory Board https://ancan.org/team/eleni-efstathiou-md-phd/
Julian Morales (to Everyone): 6:30 PM: I check Houston Methodist site and Dr E is accepting Video Visits
AnCan – rick (to Everyone): 6:34 PM: Procrit
Joe Gallo (to Organizer(s) Only): 6:43 PM: Epstein says you would need to take 10,000 cores to get the WHOLE prostate.
Joe Gallo (to Everyone): 6:46 PM: Daniel Geynisman Med Onc Fox Chase
Joel Blanchette, Reston, VA (to Everyone): 6:52 PM: I received a report from Amazon today and they said that Ancan had earned over 1,200.00
AnCan – rick (to Everyone): 6:55 PM: Tx Joel …… that’s what I thought I read
Maria Cintia (to Everyone): 6:57 PM: I’m leaving the chat now. Thanks to everyone! see you next week
Stephen Saft (to Everyone): 6:58 PM: Thanks for the name. From Fox Chase
Stephen Saft (to Everyone): 7:00 PM: 6+
Herb Geller (to Everyone): 7:00 PM: EMBR Wave EMBR labs
Peter Kafka (to Everyone): 7:19 PM: I started B-6 when I first heard it here and I notice a pretty big diff.
AnCan – rick (to Everyone): 7:24 PM: Orgovyx/ relugolix
Julian Morales (to Everyone): 7:28 PM: see you all next week!