Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 25, 2022

 

We’ll start by talking about NEXT week!!!

The schedule is a little strange …., Monday Jan 31, AnCan welcomes Dr. Rachel Rubin answering Jimmy G’s questions during an intimacy/sexual dysfunction webinar. It’s free but you’ll need to register at: https://register.gotowebinar.com/regi…  

… AND our meeting will be on Tuesday, Feb 1  @ 6 pm Eastern . That’s because Feb and March mess up our Meeting Calendar, so we have to make adjustments to avoid consecutive nights!

All AnCan’s groups are free and drop-in – join us in person sometime! You can find out more about this and our other 10 monthly prostate cancer groups at https://ancan.org/prostate-cancer/

To sign up to receive a weekly Reminder/Newsletter for this Group or others, go to https://ancan.org/contact-us/

Editor’s Pick: how long should you stay on HT prescribed as adjuvant to radiation? This is controversial and tricky – not just your disease risk but own preferences come into play (rd)

Topics Discussed

Likely denovo Mx gent seeks guidance; how long should you stay on adjuvant HT; more on morphing; getting Provenge; TP53, PTEN and RB1 mutations; be sure to ask for NGS test results when your doc orders; enz + pembro fails; taxane and platinum based chemo; Radium223 as an option; Dr. A steps up to help; spot radiation; how well will PSMA curative Tx work?

Chat Log

John Ivory (to Everyone): 4:07 PM: PUBLIC SERVICE ANNOUNCEMENT: What would you do if you found out that you had a rare, chronic disease that affects your skin and weakens your muscles? Lisa Sniderman chose to integrate her disease into her writing and performing. Join Rick Davis as he hosts Solo Arts Heal tomorrow evening at 10:30 ET/7:30 PT https://ancan.org/solo-arts-heal/

George Rovder, Arlington VA (to Everyone): 4:19 PM: Genito-Urologic (GU ) Medical Oncologist.

John Ivory (to Everyone): 4:19 PM: Who is he seeing at UChicago?

Joe Gallo (to Organizer(s) Only): 4:31 PM: He should be careful that an administrator puts him far out on schedule

George Rovder, Arlington VA (to Everyone): 4:33 PM: PSMA Scan

Joe Gallo (to Organizer(s) Only): 4:33 PM: PSMA PET

George Rovder, Arlington VA (to Everyone): 4:33 PM: Gallium 68 or Pylarify,

Joe Gallo (to Everyone): 4:34 PM: PSMA PET

John Ivory (to Everyone): 4:35 PM: UChicago Stadler, Szmulewitz

Len Sierra (to Everyone): 4:36 PM: Dr. Russell Szmulewitz, (U Chicago)

John Ivory (to Everyone): 4:36 PM: Or at Northwestern, Vanderwheele. I’ve seen both Smulewitz and Vanderwheele–both are great docs

George Rovder, Arlington VA (to Everyone): 4:38 PM: https://pubmed.ncbi.nlm.nih.gov/31059665/#:~:text=Cribriform%20pattern%20with%20intraductal%20carcinoma%20was%20associated%20with,may%20benefit%20from%20dichotomizing%20these%202%20histolo%20%E2%80%A6

Larry Fish (to Everyone): 4:38 PM: I think too much detailed info – in general for new guys – focus on 3 main things to do – when guy taking complex notes will get lost later. Joe Gallo (to Everyone): 4:39 PM: cribriform intraductal

George Rovder, Arlington VA (to Everyone): 4:39 PM: Cribriform Intraductal

John Ivory (to Everyone): 4:39 PM: You can also watch the recording again on YouTube tomorrow, Tom M.

Chick Lindsay (to Everyone): 4:39 PM: Where find info on SBRT therapy, and does UMN-Mpls offer the SBRT radiation therapy?

Larry Fish (to Everyone): 4:41 PM: good to make sure guy gets 1,2,3, ABC , can’t handle too much at first – technically and emotionally…relistening may not emphasize what to do first, second and third and then do that – 1 get a good GU quarterback and see what he says, 2- get PSMA scan to find out what is going on where, 3- form a plan of action with MD , based on 1 and 2 and then “Take Action”. All the other stuff will follow …

Joe Gallo (to Everyone): 4:44 PM: Dr Mark Scholz. The Key to Prostate Cancer

George Rovder, Arlington VA (to Everyone): 4:48 PM: https://support.goto.com/meeting/help/where-are-my-chat-logs

John Ivory (to Everyone): 4:49 PM: ChatLog Ancan Barniskis Room

Julian Morales-Houston (to Everyone): 4:50 PM: https://ancan.org/blog/

Bruce Bocian (to Everyone): 5:03 PM: My PSA rose to .31 after RP 9 years ago, had a PSMA scan, nothing detected. Sought 3 opinions, all said HT not recommended under .5. I just finished Salvage Radiation, PSA dropped to .024, blew the doc away as he was expecting a smaller drop over a longer period.

AnCan – rick (to Organizer(s) Only): 5:17 PM: Taxane + platinum

AnCan – rick (to Everyone): 5:27 PM: Carl – #1 consider this article primarily authored by Paul Corn, including Dr.E – https://pubmed.ncbi.nlm.nih.gov/31515154/  #2 Platinum-Based Chemotherapy for Variant Castrate-Resistant Prostate Cancer | Clinical Cancer Research that includes our friend Andrea Harzstark as well as Corn http://clincancerres.aacrjournals.org/content/19/13/3621

Bob Smith (to Everyone): 5:57 PM: Given my rapid rise in PSA (14 to 44) in 40 days and the explosion in bone mets (approx 3-6 to about 25), am I taking excessive risk by delaying the Ra 223 while trying to get a timely ga 68 psma Pet which would require a trip to the mainland?

AnCan – rick (to Everyone): 5:58 PM: Bob …. You may be able to get an Axumin scan and maybe a Pyl scan on HI.

Mark Baldridge – Seattle (to Everyone): 5:58 PM: Is Lutetium 177 PSMA expected to be a game-changer in the future?

AnCan – rick (to Everyone): 5:59 PM: Mark … YES!

Peter Kafka – Ken Anderson (to Everyone): 6:03 PM: Pylarify is not available in Hawaii. I spoke to the company. Closest is California. Mot sure about Axumin. Might have to check their website – Blue Earth? I think.

Carl Forman (Private): 6:08 PM: I asked Tagawa about LU177, and he told me that it will not be a game changer as it will help some but not others

George Rovder, Arlington VA (to Everyone): 6:17 PM: https://applauncher.gotowebinar.com/#notStarted/5567985577422921997/en_US

AnCan – rick (to Everyone): 6:18 PM: https://register.gotowebinar.com/register/5567985577422921997