Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 13, 2022

by | Sep 14, 2022 | Prostate Cancer, Recorded Groups, Uncategorized

Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 13, 2022

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 per month prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Editor’s Pick: No Provenge with autoimmune disease — but how about vitiligo? Dr. Larry Fong himself weighs in. (bn)

Topics Discussed
Hyperbaric chamber for radiation cystitis; docs inadequately warn gay man of prostatectomy side effects; years after prostatectomy, incontinence reappears; Provenge OK with vitiligo?; fourth and worst-yet chemo; dehydration to avoid leakage backfires at radiation simulation; avoiding leakage at work; expanded access to end for Pluvicto — no more free drug; which Medicare plan?; paused Keytruda treatments back on track; dehydration makes liquid biopsy fail; message from Dr. Larry Fong: no known Provenge problem with vitiligo

Chat Log
Herbert Geller (to Everyone): 6:31 PM: Here is the url for Rachel Rubin webinar:https://www.youtube.com/watch?v=rax9523yhGg

Len Sierra (to Everyone): 6:32 PM: Climacturia after definitive treatment of prostate cancerResults: Overall 412 surveys were returned and available for analysis, and of these respondents 75.2% were sexually active or experiencing orgasms. Climacturia was reported by 22.6% of these respondents, and by 28.3%, 5.2% and 28.6% of those treated with surgery, radiation, or both, respectively (p <0.001).

Bob McHugh (to Everyone): 6:37 PM: Had a Pylarify scan in May at 0.5.Showed three very small lesions which we treated with five rounds of Tomotherapy.

Bob McHugh (to Everyone): 6:40 PM: Very candidly, I haven’t had a erection since my surgery in 2015. My girlfriend said, “Bob, I don’t care if you ever have an erection again.” Changed my life!

John Antonucci–CT (to Everyone): 6:40 PM: Nothing better than a supportive partner, huh?

Julian Morales – Houston (to Everyone): 6:41 PM: you got that right Dr John

Herbert Geller (to Everyone): 6:43 PM: Allen Edel, “Prostate Cancer News, Reviews & Views” https://www.prostatecancer.news

Ben Nathanson (to Everyone): 6:50 PM: https://ancan.org/men-speaking-freely/

Julian Morales – Houston (to Everyone): 6:51 PM: The file will start with ChatLog Ancan Barniskis Room followed with the date of the meeting. It is an RTF file.

Bob McHugh (to Everyone): 7:16 PM: My surgeon gave me a lidocane cream. HJelpful.

Julian Morales – Houston (to Everyone): 7:19 PM: vitiligo

Julian Morales – Houston (to Everyone): 7:39 PM: https://pcri.org/

Jeff Marchi, San Francisco (to Everyone): 7:41 PM: incontinence and erectile dysfunction at 11am Saturday

Bob McHugh (to Everyone): 7:47 PM: Yes, AARP/United Health Care! Medicare Advantage looks good. But isn’t .

Frank Fabish – Columbus OH (to Everyone): 7:55 PM: Got to go guys. Good info as always.

Herbert Geller (to Everyone): 7:59 PM: Gotta go eat.

Julian Morales – Houston (to Everyone): 8:02 PM: yes