Chat Log – April 12, 2022

[Rick Davis]

Chat Log
Amanda (to Everyone): 7:36 PM: @Jon is your bandana from walk ms?
Jon (to Everyone): 7:36 PM: It is not. I just wanted something orange I can throw on. Amazon has everything.
Amanda (to Everyone): 7:37 PM: ah! i have my first ms walk at the end of the month and i want the bandana!
Amanda (to Everyone): 7:38 PM: i got excited but yours is purty!!! 😀
Jon (to Everyone): 7:38 PM: It sure is bright tho
Kim Stroeh (to Everyone): 7:38 PM: I do like your bandana Jon!
Jon (to Everyone): 7:39 PM: Oh yeah, my hair hangs over my eyes. Kim, you inspired the bandana.
Kim Stroeh (to Everyone): 7:39 PM: Awww….. I have an orange sweatshirt I can switch out
Amanda (to Everyone): 7:39 PM: name on a porta potty bc you are the ISH!
Amanda (to Everyone): 7:43 PM: youre doing great kim!
Amanda (to Everyone): 7:47 PM: i vacuumed the apartment the other day and almost died!
Amanda (to Everyone): 7:47 PM: my hands hurt so bad after
Amanda (to Everyone): 7:48 PM: and we live in a society that prioritizes and values physical ability
Amanda (to Everyone): 7:50 PM: and we mourn our old lives
Karen Broder (to Everyone): 7:56 PM: it’s a never ending cascade of grief as I keep losing more function
Tiffany (to Everyone): 8:06 PM: I did the prednisone by mouth a few months ago. I was so wired and got nothing
done.
Tim Brien (to Everyone): 8:10 PM: So since I am possibly experiencing a flare-up in my left arm and since my
CIS will more than likely turn to Relapse Remitting, should I possibly expect steriod infusion or tablets? Last time I
took steroids was when I got married in 2013 and I was moving at 20000%
Tiffany (to Everyone): 8:12 PM: my md is waiting for the results of my mri to see if I in a flare. may need
steroids if I am.
Tiffany (to Everyone): 8:12 PM: my mri was pushed up because I am having new symptoms.
Tim Brien (to Everyone): 8:12 PM: Hoping good news for you Tiffany, I am in that waiting period as well
Kim Stroeh (to Everyone): 8:12 PM: Tim, if they think you are still having a flare, they will probably give
solumedrol, the IV type unless it doesn’t work for you
Tim Brien (to Everyone): 8:13 PM: Cool cool, last time I had steroids was prednisone for a strained back so this
would be a new thing for me
Kim Stroeh (to Everyone): 8:14 PM: be prepared to not be able to sleep for awhile if they give you a 1000mg IV
dose
holly (to Everyone): 8:14 PM: maybe were there is so many people ask everyone to use the raise your hand
button and have monitors call on them.
Tim Brien (to Everyone): 8:14 PM: I am a twin dad sleep happend back in 2013
Tim Brien (to Everyone): 8:14 PM: lol
Karen Broder (to Everyone): 8:16 PM: Soliel was here before — not her first time Kim
Kim Stroeh (to Everyone): 8:16 PM: Karen, I have cog issues… lol
Tiffany (to Everyone): 8:19 PM: I agree with holly about seeing if there is an option to raise your hand. it is hard
to speak sometimes.
Kim Stroeh (to Everyone): 8:21 PM: i am not seeing a “raise your hand” function on this platform. Does it not
exist or am I blind tonight?
Amanda (to Everyone): 8:21 PM: i dont see it either
Karen Broder (to Everyone): 8:22 PM: I have something to share about home modification

Amanda (to Everyone): 8:23 PM: https://support.goto.com/meeting/help/how-do-i-raise-my-hand-during-a-
meeting

Amanda (to Everyone): 8:23 PM: Hand raising is currently only available in the Web App or the GoTo app. The
organizer needs to be hosting from one of these methods in order for attendees to see the feature.
Kim Stroeh (to Everyone): 8:23 PM: I hope you have a good evening! thanks for joining us tonight
Kim Stroeh (to Everyone): 8:25 PM: So how do I access the app on a laptop? Don’t have hubs here tonight to
help me out.
Tim Brien (to Everyone): 8:25 PM: got to switch the laundry to the dryer, I am still here just being a Papa bear
Amanda (to Everyone): 8:25 PM: im researching
Beth Carrigan (to Everyone): 8:27 PM: Hi Mike!
Amanda (to Everyone): 8:27 PM: i downloaded the app and still dont see.. whomp whomp
Roni Benscher (to Everyone): 8:28 PM: just had bathroom railngs installed. Not easy but very helpful
Amanda (to Everyone): 8:29 PM: i have two topics whenever we get a chance
Jon (to Everyone): 8:29 PM: If your couch/chairs/bed is too low and you struggle to get up, my guy suggested
getting risers.
Kim Stroeh (to Everyone): 8:30 PM: Amanda, well that is frusterating on the app part.
Tim Brien (to Everyone): 8:31 PM: Hey Jon, I think I heard you say something about Zoloft and steroids, mind if I
ask about that interaction or if I am wrong in hearing the zoloft connection
Jon (to Everyone): 8:33 PM: Emotional extremes got more extreme and they blew in and out like the wind on a
lake.
Karen Broder (to Everyone): 8:33 PM: Ran I was horrified when I had tub handrail installed. I thought it
defaced the pretty tile. Now so glad to have them.

Amanda (to Everyone): 8:33 PM: ive always needed an excuse for a trampoline!
Amanda (to Everyone): 8:35 PM: Lol say less!
Jon (to Everyone): 8:35 PM: Sorrrrryyyyy
Tim Brien (to Everyone): 8:35 PM: Thanks for sharing Jon, appreciate it since I am on Zoloft and if I gotta get
steroids just want to be prepared
Amanda (to Everyone): 8:37 PM: that was soooo helpful!
Amanda (to Everyone): 8:37 PM: thanks for sharing!
Karen Broder (to Everyone): 8:37 PM: I was told to urinate every two hours on demand.. you know I am a proud
success story for Transcutaneous tibial nerve stimulation home treatment for urinary incontinence. Ask your
urologist about it.
Kim Stroeh (to Everyone): 8:38 PM: Amanda I think she wanted me to wait at least 3 hours between voids
Amanda (to Everyone): 8:38 PM: okay. i think im doing too much “just in case” so that was helpful advice. i will
look to see if i can get a referral
Amanda (to Everyone): 8:39 PM: thats what the trial was for @Karen
Amanda (to Everyone): 8:39 PM: i was interested just not in the area
Kim Stroeh (to Everyone): 8:39 PM: Amanda, please get the referral. You will thank me later!
Amanda (to Everyone): 8:40 PM: “my pharmacist recommended this” 🙂
Kim Stroeh (to Everyone): 8:41 PM: lol
Roni Benscher (to Everyone): 8:43 PM: Love how everyone is shaking their head in agreement
Amanda (to Everyone): 8:43 PM: <3
Karen Broder (to Everyone): 8:43 PM: Now I gotta pee... be right back lol
Tim Brien (to Everyone): 8:47 PM: As I like to say this too shall pass, like a kidney stone
Jon (to Everyone): 8:48 PM: Tim, I have had a 6mm and 11mm removed.
Jon (to Everyone): 8:48 PM: This year. Haha
Tim Brien (to Everyone): 8:49 PM: I have 3 right now, have had 4 removed in the past 4 years, not fun stuff I feel
ya man
Kim Stroeh (to Everyone): 8:51 PM: Any other topics you would like to discuss tonight?
Louie (to Everyone): 8:53 PM: I have a screenshot of my MRI on my phone
Amanda (to Everyone): 8:54 PM: my other thing was how do you deal with overstimulation but its not super
important
Amanda (to Everyone): 8:54 PM: we can continue this convo
Tim Brien (to Everyone): 8:55 PM: My next tattoo are the lessions in my brain, cervial and thoracic spine
Andrea Nameth (to Everyone): 8:55 PM: @Amanda, I use mindfulness and meditation
Amanda (to Everyone): 8:55 PM: im trying to do that more
Amanda (to Everyone): 8:56 PM: i have a day full of meetings tomorrow and im dreading it. my ears will be
ringing from the stimulation
Karen Broder (to Everyone): 8:56 PM: How often do you get MRI?
Amanda (to Everyone): 8:56 PM: i will try to meditate in between. thanks @Andrea!
Kim Stroeh (to Everyone): 8:56 PM: I get an MRI yearly Karen
Andrea Nameth (to Everyone): 8:56 PM: Every minute you can, close your eyes and try to relax
Kim Stroeh (to Everyone): 8:57 PM: sure
Amanda (to Everyone): 8:59 PM: cooling vest?!
Amanda (to Everyone): 8:59 PM: shall i whip out my link?! 😀
Kim Stroeh (to Everyone): 8:59 PM: Colleen - thermapparel check them out
Louie (to Everyone): 8:59 PM: yes please I already lost the link Amanda lol
Amanda (to Everyone): 8:59 PM: https://mymsaa.org/msaa-help/cooling-products/
Roni Benscher (to Everyone): 9:00 PM: REI has bandanas that can be frozen or dipped in cold water. Only
lats for an hour but it's a quick fix
Karen Broder (to Everyone): 9:00 PM: thermapparel funded by MS foundation same thing?
Amanda (to Everyone): 9:01 PM: im working on compiling all the resources we have discussed (that i can
remember). if you have any other recommendations you can email me at agrego925@gmail.com and i will add to
my list
AnCan - rick (to Everyone): 9:01 PM: Embr .....wrist strap https://embrlabs.com
Kim Stroeh (to Everyone): 9:01 PM: Karen... yes

Amanda (to Everyone): 9:01 PM: https://www.googleadservices.com/pagead/aclk?sa=L&ai=DChcSEwjg6cDv-
I_3AhWHjcgKHQdWBQMYABADGgJxdQ&ae=2&ohost=www.google.com&cid=CAESbeD2JX7RSwlHxFGA5Ag16-

WHo80hjOg6mNDu-_fWwtjP43GNLoTjqN7qSMtC04HswCxeIwHzTI6tA-1myAmgm015LXSGW77ajxlhooODv-
2oPyOEfaeOo1H2VtDUHPL8h1bva-
2nJXY4G2ptmns&sig=AOD64_0yFIr3WGVO8Uqfgsa8cNZISYHDkg&q&adurl&ved=2ahUKEwjh07bv-
I_3AhX4knIEHZDzC7AQ0Qx6BAgFEAE&dct=1

Amanda (to Everyone): 9:03 PM: Rick this is phenomenal!!
Tim Brien (to Everyone): 9:03 PM: Awesome info tonight folks again, I am fading fast take care and see you all
in 2 Weeks
Jon (to Everyone): 9:03 PM: I am heading towards bed time. Everyone have a great night!
Amanda (to Everyone): 9:04 PM: great discussion! thanks for sharing everyone!
Amanda (to Everyone): 9:06 PM: $50 off
Amanda (to Everyone): 9:07 PM: theres a payment plan too

holly (to Everyone): 9:08 PM: thank you everyone, have a great night
Amanda (to Everyone): 9:08 PM: my computer is dying so im gonna log off
Louie (to Everyone): 9:25 PM: I think I'm gonna sign off for the night, it was nice seeing y'all!
Andrea Nameth (to Everyone): 9:25 PM: Have a happy night
Louie (to Everyone): 9:28 PM: Thank you, good night!

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