Hi-Risk/Recurrent/Advanced PCa Virtual Support– Men & Caregivers Recording, Mar 15, 2021

 

Editor’s Pick: Treating recurrence immediately versus waiting for PSA to rise for a meaningful scan! (rd)

Topics Discussed

Well educated denovo Mx man visits us first time; treat vs scan for PCa recurrence; artificial urinary sphincter surgery and recovery; denovo Mx Dx – chemo vs 2nd line HT; using Estradiol; detecting Circulating Tumor Cells and their analysis; IMRT vs PBRT; long-term management … keeping the disease in check; metallic taste from chemo

Chat Log

John Ivory (to Everyone): 5:17 PM: https://www.mskcc.org/cancer-care/doctors/borys-mychalczak#about-me

Joel Blanchette (to Everyone): 5:50 PM: PSMA PET locations: Columbia University (PYL) https://clinicaltrials.gov/ct2/show/NCT03824275 NIH-18F-DCFPyL PET/CT in High Risk and Recurrent Prostate Cancer https://clinicaltrials.gov/ct2/show/NCT03181867 NIH-18F-DCFPyL PSMA- Versus 18F-NaF-PET Imaging for Detection of Metastatic Prostate Cancer https://clinicaltrials.gov/ct2/show/NCT03173924 Mayo Clinic https://www.mayo.edu/research/clinical-trials/cls-20449461 Memorial Sloan Kettering https://clinicaltrials.gov/ct2/show/NCT03204123 UCSF https://www.cancer.gov/about-cancer/treatment/clinical-trials/se… https://www.cancer.gov/about-cancer/treatment/clinical-trials/search/v?id=NCI-2019-01394 University of Iowa https://clinicaltrials.gov/ct2/show/NCT03822845 University of Michigan https://clinicaltrials.gov/ct2/show/NCT03396874 Moffitt (PYL-PSMA-PET) https://clinicaltrials.gov/ct2/show/NCT03495427 University of Alabama https://clinicaltrials.gov/ct2/show/NCT04086966 Case Western University https://clinicaltrials.gov/ct2/show/NCT02978586

Rick Davis (to Jim Marshall – Alexandria, VA ): 6:07 PM: Jim – please make sure that Chris understands the difference between the 2 groups. Men with low/intermediate disease are welcome BUT they can get freaked out by hearing the discussion in this group. From Chris Veblen ….. and he is in the database already: Chris Veblen on the West Coast. My email is Veblencf@hcc.net. I’m Medium Not Acute or Metz or recurring. Looking forward to the email. Thanks.

Peter Kafka (to Everyone): 6:21 PM: Mike may want to get genomic/genetic testing results before embarking on Chemo, just in case he needs a platinum chemo.

John Ivory (to Everyone): 6:25 PM: https://www.mcw.edu/departments/medicine/divisions/hematology-oncology-cancer/doctors/giever-thomas-a-do

John Ivory (to Organizer(s) Only): 6:30 PM: Mike’s docs long name might be https://www.uwhealth.org/findadoctor/profile/christos-kyriakopoulos-md/9675

Peter Kafka (to Everyone): 6:42 PM: We have a 5th monday this month on the 29th. How about Wassersug and Estrodial in two weeks.

Jake Hannam (to Organizer(s) Only): 6:43 PM: good idea

Jeff Marchi (to Everyone): 6:44 PM: yes

Jake Hannam (to Organizer(s) Only): 6:44 PM: yes

kang (to Everyone): 6:44 PM: yes

Rick Davis (to Everyone): 7:01 PM: IMRT vs PBRT http://prostatecancerinfolink.net/2012/02/01/first-directly-comparative-data-question-safety-of-pbrt-vs-imrt/

Alan Moskowitz (to Everyone): 7:11 PM: Guys, I have to leave now. thanks for the guidance tonight.

Rick Davis (to Everyone): 7:19 PM: https://www.cancer.net/coping-with-cancer/physical-emotional-and-social-effects-cancer/managing-physical-side-effects/taste-changes

Len Sierra (to Organizer(s) Only): 7:20 PM: Gotta go, guys. Good session!

Peter Monaco (to Everyone): 7:21 PM: Good night gents!

Rick Davis (to Everyone): 7:23 PM: taste ….. https://www.cancer.org/treatment/treatments-and-side-effects/physical-side-effects/eating-problems/taste-smell-changes.html