Hi-Risk/Recurrent/Advanced PCa Video Chat, Apr 18, 2022 

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about this and our other 10 monthly prostate cancer groups at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Two new AnCan groups starting this month – 1) Pancreatic Cancer 2) Lupus. Check webiste

Editor’s Pick: Hear about VERY rare form of PCa …. and we revisit metabolic syndrome more than once (rd)

Topics Discussed

Denova Mx Dx …. in Maui!!; germline vs somatic mutations; med onc leaves disease largely untreated; very rare PCa type Dx; did abi cause metabolic issues?; puzzling scalp pain after spot RT to skull base; gabapentin side effects; younger man with denovo Mx has successful Tx; switching to Nubeqa+Orgovyx vs metabolic issues; 2014 participant returns doing well; Dennis Correia back with us; KP caves over Lu177; Pluvicto experiences

Chat Log

AnCan – rick (to Organizer(s) Only): 5:04 PM: Dr. George !!! A leftover from Dominic days

Len Sierra (to Organizer(s) Only): 5:08 PM: Yes, it’s been years since Dr. George S. joined us.

Joe Gallo (to Everyone): 5:16 PM: Rana McKay UCSD

Henry (Private): 5:17 PM: Hey Rick — for the new fellow — recommend triplet therapy per Arasens or Peace? (After PSMA scan of course).

Maria (to Everyone): 5:18 PM: Hi everyone, I just wanted to check in and say Hi, Jeff is enjoying his hormone & zytiga vacation, April PSA is undetectable. You are all in my thoughts…

Joe Gallo (to Everyone): 5:19 PM: Welcome. Thanks for the update Maria.

Joe Gallo (to Everyone): 5:25 PM: Rana Clinic 858-657-7876

AnCan – rick (to Everyone): 5:50 PM: https://doctors.umiamihealth.org/prov…

Alan Babcock (to Everyone): 5:53 PM: I might be in the wrong group. I am 9 weeks out from a prostatectomy. Dr. Correa, from Fox Chase is minitoring my PSA.

George Rovder Arlington VA (to Everyone): 5:55 PM: Alan, This group is for Stage 4 metastatic and Stage 3 Very High Risk.

AnCan – rick (to Everyone): 5:55 PM: Alan – you are best in Peter’s Low/intermediate group that meets every 2nd & 4th Monday same time and place. We know Dr. C very well

Edward Clautice (to Everyone): 5:56 PM: I received lutetium treatment in Germany last week. Cost about $25k. The appointment was made and paid for before the FDA approved pluvitco. The care was very good. They ran daily scans to monitor lutetium attachment to tumor sites. I am looking now to continue pluvitco here in the USA, potentially at the U of Florida. Question:703-463-0490. clautice@verizon.net. Take care, Ed

George Rovder Arlington VA (to Everyone): 5:57 PM: Thanks Ed. Best of luck.

George George Rovder Arlington VA (to Everyone): 6:00 PM: Josh Allen https://www.inova.org/doctors/joshua-…

Edward Clautice (to Everyone): 6:03 PM: Jeannie Aragon-Ching George Rovder Arlington VA (to Everyone): 6:04 PM: https://www.inova.org/doctors/jeanny-…

Joe Gallo (to Everyone): 6:10 PM: Embrlabs.com  Embr Wave

Julian Morales-Houston (to Everyone): 6:20 PM: Nubeqa

AnCan – rick (to Organizer(s) Only): 6:23 PM: Dennis Correia is in the house … please give him a shout out! Welcome back.

Don Kramer (to Everyone): 6:40 PM: I just got appeal approval for PSMA formerly denied by UHC med. advantage. Don’t give up if you are originally denied on a potential option for diagnosis you know is approved by medicare but advantage is denying. will share more next week. great meeting thank you all.

Frank Fabish – Ohio (to Everyone): 6:53 PM: Got to go guys. See you next week.

George A Southiere Jr (to Everyone): 6:59 PM: great to see all the new guys and the old guys.enjoyed the meeting tremendously

Jerry Pelfrey – Mexico (to Everyone): 7:09 PM: Jerry, sorry I have to leave.

Henry (to Everyone): 7:12 PM: Thanks all; I have to drop off now. Have a great rest of your evening, gents!

MIke Yancey (to Everyone): 7:17 PM: Enjoyed being on this call for the first time. Plan to join again next week. Gotta run for tonite.

John Birch (to Everyone): 7:19 PM: Need to go, thank you everyone for sharing and info