Hi-Risk/Recurrent/Advanced PCa Video Chat, June 28, 2022
If you missed our Wednesday night webinar this week, “Genetic and Genomic Testing The How’s, Why’s and Where’s”, you can find it at https://ancan.org/webinar-genetic-and-genomic-testing-the-hows-whys-and-wheres/ We invite you to listen to 3 excellent presenters.
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/
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Editor’s Pick: AnCan recomnmends a QB GU med onc to two gents (rd)
Topics Discussed
Newbie neds to find a QB GU med onc; finding ways to save on abi; waiting to finish up radionuclide trial; Ben’s started a blog; back in biz with Pluvicto; Orgovyx Ambassador Frank has good outcome; Hawaii gent needs a GU med onc QB; Keytruda is next treatment; chemo brings results for rare type of PCa; consider Provenge before chemo
Chat Log
AnCan – rick (to Everyone): 3:18 PM: EMBr Discount for AnCan’rs …. ‘ANCAN50
Mike Yancey (to Everyone): 3:22 PM: QuickRx at 347-691-3494 for Abiraterone 1000mg for a month
Pat Martin (to Everyone): 3:24 PM: I use Expess Scripts subsid by the name of Accredo. I pay 6.60 per month. Benefit through Carpenter union
George Rovder Arlington VA (to Organizer(s) Only): 3:24 PM: Search GoodRX for discount up to 98% in your area. https://www.goodrx.com/zytiga
George Rovder Arlington VA (to Organizer(s) Only): 3:25 PM: GenitoUrinary Medical Oncologist
George Rovder Arlington VA (to Everyone): 3:25 PM: Search GoodRX for discount up to 98% in your area. https://www.goodrx.com/zytiga
AnCan – rick (to Everyone): 3:27 PM: Dr. Daniel Petrylak https://medicine.yale.edu/urology/doctors/daniel_petrylak-2.profile
Ben Nathanson (to Everyone): 3:34 PM: Nubeqa – darolutamide
AnCan – rick (to Everyone): 3:42 PM: https://www.prostatecancerpromise.org/?utm_campaign=ANCAN&utm_medium=link&utm_source=Webinar PROMISE Trial
AnCan – rick (to Everyone): 3:48 PM: Blog Registration – right sidebar https://ancan.org/blog/
Ben Nathanson (to Everyone): 3:58 PM: blog: https://bennathanson.substack.com email: bennathanson@substack.com
George Rovder Arlington VA (to Everyone): 3:59 PM: Thank you Ben.
AnCan – rick (to Everyone): 3:59 PM: Great idea …. thanks Ben
John Antonucci (to Everyone): 4:03 PM: Oh that looks good Ben thanks. pictures and all.
George Rovder Arlington VA (to Everyone): 4:16 PM: Congratulations Frank.
Bob McHugh (Private): 4:37 PM: Dr. Oh orders T level EVERY time he orders PSA. 3 month intervals.
Len Sierra (to Everyone): 4:45 PM: PSA max of 4.0 V. rare form of PCa identified by Epstein as high grade foamy gland prostatic adenocarcinoma!! Gl undeterminable but =/greater than 7 per Dr. Epstein. Has only seen 21 cases. Lung spots seen.
Pat Martin (to Everyone): 4:47 PM: That should be SOC….can’t tell you why I slipped up on being INSISTENT on getting it checked. Some of the trials showed Abbie effective for 5 yrs. I got a couple more years, so we knew it was time to check T.
Ben Nathanson (to Organizer(s) Only): 4:49 PM: If I recall right, foamy gland is itself not a bad diagnosis and not too uncommon mixed with acinar. I think what surprised Epstein is not the foamy but that it’s a high-grade foamy
Julian Morales – Houston (to Everyone): 4:51 PM: Have another meeting at 7pm CT. Talk to you all next week!
Pat Martin (to Everyone): 4:59 PM: See ya all next week…Thanks to all!!
AnCan – rick (to Everyone): 5:00 PM: MPCP https://mpcproject.org/ MPCP = metastatic prostate cancer project