Hi-Risk/Recurrent/Advanced PCa Video Chat, Dec 6, 2021
Happy Holiday Season to all – to learn more about what AnCan has achieved in the past 12 months, please visit https://mailchi.mp/ancan/ancans-year-end-summary
All AnCan’s groups are free and drop-in – join us in person sometime! You can find out more about this and our other 10 monthly prostate cancer groups at https://ancan.org/prostate-cancer/
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Editor’s Pick: Some docs are holding off starting HT – others are jumping in quickly. We hear from both sides in this session. (rd)
Topics Discussed
Responding to a high risk PCa Dx; responding to a recurrence; treating abdominal lymph mets; EMBR discussion; PSA fluctuates on abi; pushing the envelope on starting HT; scans or no scans before starting RT; Lu177 Managed Access Trial discussed; Dr. E
Chat Log
Joe Gallo (to Everyone): 6:31 PM: www.mskcc.org/nomograms
Len Sierra (to Everyone): 6:40 PM: Pylarify
George (to Everyone): 6:40 PM: pylarify psma scan
Joe Gallo (to Everyone): 6:40 PM: PSMA PET Pylarify
Joe Gallo (to Everyone): 6:44 PM: GU Medical Oncologist
Joe Gallo (to Everyone): 6:46 PM: Ask to take a Lupron holiday
George (to Everyone): 6:52 PM: Mike, My case was like yours. My urologist surgeon sent me to interview radiation oncologists. The surgeon told me he would not do surgery, because if I had a prostatectomy there would surely be positive margins.requiring salvage radiation. He also told me that after surgery there would be incontinence, which might in time resolve. However, he said, radiation will lock in the incontinence at the state it is at the start of radiation.
Paul Freda , Lake Worth FL (to Everyone): 6:57 PM: Have to give an online Physics lesson at 9pm. See you all next week. 🙂
Peter Sherman (to Everyone): 7:01 PM: I’m pleased with my care at MSK Cal Van Zee (to Everyone): 7:05 PM: Anyone here in a PSMA Lu-617 trial?
Herb Geller (to Everyone): 7:05 PM: Yes, several guys
Peter Kafka (to Everyone): 7:07 PM: Sylvester has the record.
Jake Hannam (to Organizer(s) Only): 7:10 PM: Why do they still do bone scans these days – so old tech!
Cal Van Zee (to Everyone): 7:10 PM: For those in Lu-617 trial, would appreciate any offline feedback/side effects. I’m waiting/hoping to get into a trial.
Joe Gallo (to Organizer(s) Only): 7:11 PM: PSMA PET replaces CT and Bone scans. Assume they are trained to read them.
Pat Martin (to Everyone): 7:18 PM: Somatic gene testing
Peter Sherman (to Everyone): 7:21 PM: what is the difference between the types of genetic testing?
Pat Martin (to Everyone): 7:23 PM: Germline is what your Mom and Dad gave you. Somatic shows the mutations that your tumor has created.
Peter Sherman (to Everyone): 7:23 PM: thanks Pat
Pat Martin (to Everyone): 7:27 PM: They ran Somatic on the tumor they removed 5 year prior and determined that I might be eligible for Keytruda after ADT fails.
George (to Everyone): 7:28 PM: T3a: The tumor has extended outside of the prostate on one side. T3b: The tumor has extended outside of the prostate on both sides. T3c: The tumor has invaded one or both of the seminal vesicles, which are small bag-like organs near the bladder.
Henry (and Staci) Cornelius (Private): 7:30 PM: Rick, I have to step away for 5 minutes to tuck my daughter in. I’ll be right back.
Joe Gallo (to Everyone): 7:33 PM: https://embrlabs.com/products/embr-wave-2
Joe Gallo (to Everyone): 7:33 PM: for basic info
Peter Monaco (to Everyone): 7:35 PM: Signing off gents! See you next week!
Jeff Marchi (to Everyone): 7:39 PM: thanks George
George (to Everyone): 7:41 PM: You’re welcome Jeff.
Pat Martin (to Everyone): 7:53 PM: Does he have a quarterback?
AnCan – rick (to Everyone): 7:54 PM: Pomerantz at Dana Farber
Frank Fabish (to Everyone): 7:59 PM: got to sign off
Peter Sherman (to Everyone): 8:03 PM: got to go. Getting up early for work
Stan Friedman (to Everyone): 8:21 PM: see everyone next time.
Julian Morales-Houston (to Everyone): 8:21 PM: Dr E is my medical oncologist.
AnCan – rick (to Everyone): 8:24 PM: Eleni Efstathiuou
eric (to Everyone): 8:32 PM: Thanks for you time and good luck everyone. bye
Julian Morales-Houston (to Everyone): 8:32 PM: Thanks again – see you next week!
George (to Everyone): 8:32 PM: Thank you all. George