Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 26, 2021 

 

All AnCan’s groups are free and drop-in – join us in person sometime! You can find out more about this and our other 10 monthly prostate cancer groups at https://ancan.org/prostate-cancer/.

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Editor’s Pick: This week’s repeating theme seems to be the need to switch your QB to a GU medical oncolcogist as your disease progresses. And great discussion about monotherapy 2nd line anti-androgens. (rd)

Topics Discussed

DenovaMx man treated by urologist; interviewing for a new QB doc; the role of palliative care; Bruce’s Breakfast Club!; recurrent PCa requires adding GU med onc; considering 2nd Lu177 trial; appoint with Dr. Beltran coming up; reading PSMA scan – who to beleive?; monotherapy darolutamide works; LHRH role in presence of 2nd line Anti-Androgen – QoL considerations; Lymph and Lung Mx; Fly fishing!

Chat Log

Bruce Bocian (to Everyone): 3:10 PM: It was excellent!

Jake Hannam (to Everyone): 3:11 PM:Len Sierra article  https://ancan.us14.list-manage.com/track/click?u=ece3f3da90f82cb974b407396&id=86fad2dc1a&e=6727193137

Mark Perloe, MD Atlanta (to Everyone): 3:12 PM: Having fun post prostate. First parathyroid surgery, now planning a pancreas biopsy early November. After prostate, parathyroid and pancreas, I’m running out of organs starting with “p”.

Bill Bradford (to Everyone): 3:18 PM: Has anyone had any experience with Dr. Eugene Kwon with Mayo Clinic in Rochester? Someone recommended him for a 2nd opinion consultation for treatments. If so, I can reach out off line later in the week if that is ok

Peter Monaco (to Everyone): 3:18 PM: Good luck Mark!

AnCan – rick (to Mark Perloe, MD Atlanta): 3:19 PM: Heh Doc ….. did they find all the parathyroids??

Mark Perloe, MD Atlanta (Private): 3:23 PM: yes. introspection sestimibi. only one gland +

Julian Morales (to Everyone): 3:25 PM: NCCN – National Comprehensive Cancer Network

AnCan – rick (to Bill Bradford): 3:28 PM: genitourinary GU

George (to Everyone): 3:28 PM: Genito Urinary Oncologist

Bill Bradford (Private): 3:31 PM: Thanks Rick – very helpful. I am seeing a GU medical oncologist at MD Anderson (Omar Alhalabi) for the last month. I am new to the disease and the treatments available so wasn’t sure if I should get a 2nd opinion at this early point in my battle

AnCan – rick (to Everyone): 3:36 PM: Jacqueline Vuky, Julie Graff, Tom Baer all at OHSU. All genitourinary medcial oncologists

Len Sierra (to Organizer(s) Only): 3:43 PM: Guys, the fact that Tom has bone pain with a PSA less than 0.1 makes me wonder if he has PCa cells that are not producing PSA and that I might want to see him get another scan like an FDG-PET.

Julian Morales (to Everyone): 3:44 PM: • United States +1 (646) 749-3129 – LogMeIn/GtM

Joe Gallo (to Organizer(s) Only): 3:44 PM: I have a 50Vets call in 15min so I will leave quietly

AnCan – rick (to Everyone): 3:49 PM: To dial in: +1 (646) 749-3129 #222 583 973

Mark Perloe, MD Atlanta (to Everyone): 4:00 PM: Chol11 should be retired and I think a PYL PET is indicated.

John Antonucci (to Everyone): 4:20 PM: I imagine for any lutetium trial a subject has to have a certain minimum psa?

AnCan – rick (to Everyone): 4:23 PM: rarely is there a PSA eligibility criteria, Dr. John

John Antonucci (to Everyone): 4:23 PM: then what is the outcome measure, Rick?

AnCan – rick (to Everyone): 4:24 PM: usually rPFS

John Antonucci (to Everyone): 4:24 PM: You mentioned a study for guys like me, hormone sensitive and de novo metastatic. but my psa is to low to measure outcome

John Antonucci (to Everyone): 4:27 PM: oh, right. thanks

Gary Peters (to Everyone): 4:27 PM: What is the meaning of “de novo metastatic”? What about “rPFS”?

Len Sierra (to Everyone): 4:28 PM: de novo metastatic means metastatic on diagnosis. first diagnosis, prior to any treatment.

John Antonucci (to Everyone): 4:29 PM: radiographic progression free survival

Gary Peters (to Everyone): 4:31 PM: Thank you Len, thank you John

Bruce Bocian (to Everyone): 4:39 PM: https://radonc.uchicago.edu/faculty/stanley-liauw-md If your in the Chicago area this guy is awesome!

Paul Freda (to Everyone): 4:43 PM: What is rPFS ??

Len Sierra (to Everyone): 4:45 PM: radiographic progression free survival

Bruce Bocian (to Everyone): 4:57 PM: Excellent call tonight! Len, the article is awesome. Rick, great job as always! Herb,”Give a man a fish, and you fed him for a day. Teach a man to fish and you feed him for a lifetime.