Hi-Risk/Recurrent/Advanced PCa Virtual Support– Men & Caregivers Recording, Mar 9, 2021
Editor’s Pick No real pick – just lots of doubles this week – from 2 men with ‘strange’ disease to relugolix, Provenge, and American Ginseng all coming up twice! (rd)
Topics Discussed
Dx young w ‘strange’ disease, it comes back and is treatable; relugolix/Orgovyx now and later in the meeting; recurrence shows in bladder neck; intraductal/ductalcell discussion; HT induced anemaia; Covid & walking pneumonia; Provenge now and again later; Jobert syndrome; STAMPEDE re-analysis; men produce PSA in different amounts; American ginseng now and again later; treating hot flashes; Lu177 PSMA trial participant; more chemo; Artificial Urinary Sphincter procedure
Chat Log
Rick Davis (to Everyone): 4:23 PM: American Ginseng MSKCC https://www.mskcc.org/cancer-care/integrative-medicine/herbs/ginseng-american?utm_source=AboutHerbs-03-02-21&utm_medium=email&utm_content=GeneralCancer&utm_type=PersonalInterest
Jake Hannam (to Everyone): 4:25 PM: American is the key. grown in Wisconsin, I believe.
Jake Hannam (to Everyone): 4:37 PM: relugolix (Orgovyx)
Rick Davis (to Organizer(s) Only): 4:56 PM: Why did he wait so long??
Jefferson Duryee (to Everyone): 5:01 PM: DR. PETER J. VANVELDHUIZEN WAS A SUGGESTION TO ME 3 MONTHS AGO HERE. HE IS IN ROCHESTER U.0f R
John Ivory (to Everyone): 5:02 PM: https://www.urmc.rochester.edu/people/31825023-peter-van-veldhuizen
Jake Hannam (to Organizer(s) Only): 5:04 PM: Dr. Peter Van Veldhuizen’s treatment focus for the past 25 years has been genitourinary cancers. He has been actively involved in the development and participation of local and national clinical trials to find new treatment alternatives for these tumor types. He also has a special interest in cancer survivorship and quality of life issues.Dr. Van Veldhuizen ensures patients are fully educated on their diagnosis and actively involved in treatment decisions. His goal is to help patients have some control over their cancer diagnosis and treatment in an effort to return to life as normal as possible.Dr. Van Veldhuizen joined the Wilmot Cancer Institute faculty in 2020. He serves as the Director of Genitourinary Medical Oncology.
Len Sierra (to Everyone): 5:11 PM: Can anyone recommend a reliable supplier of American Ginseng?
Ben Nathanson (to Everyone): 5:12 PM: American Ginseng is going to be my question tonight, too
Herb Geller (to Everyone): 5:21 PM: There is a list on the Maryland web site of dealers who are licensed to harvest ginseng in MD. I am not sure about other states
Jefferson Duryee (to Everyone): 5:22 PM: has any one done provenge ?
Rick Davis (to Everyone): 5:24 PM: As said, stick to Wisconsin Ginseng
Mark Thompson Rehoboth Beach DE. (to Everyone): 5:24 PM: Thank you all very much for being here for support for men like myself with advanced prostate cancer. I will definitely be back. Thank you all very much.
Jefferson Duryee (to Everyone): 5:25 PM: I believe it takes up yo five hours to collect sample to be sent for processing. i wonder how long it would be to have it put back ?
Len Sierra (Private): 5:25 PM: Have you ever tried it, Rick?
Rick Davis (to Len Sierra): 5:26 PM: nope! Rob swore by it
Jefferson Duryee (to Everyone): 5:28 PM: I understand but it can not hurt can it
Len Sierra (Private): 5:29 PM: Good enough for me!
Jefferson Duryee (to Everyone): 5:30 PM: how long does it take to put it back in ?
Rick Davis (to Jefferson Duryee): 5:30 PM: Jefferson – this is a longer conversation. We’ll try to bring it up in the Group.
Jake Hannam (to Organizer(s) Only): 5:40 PM: liverish [liv-er-ish] adjective: resembling liver, especially in color. having a liver disorder; bilious. disagreeable; crabbed; melancholy: to have a liverish disposition.
Rick Davis (to Everyone): 5:41 PM: disagreeable …. that’s me!
Jake Hannam (to Organizer(s) Only): 5:41 PM: ha-ha!
Rick Davis (to Everyone): 5:43 PM: that was meant just for Jake, folks
Jefferson Duryee (to Everyone): 5:50 PM: COULD YOU TELL ME HOW TO SPELL GARDEN TEST
Jake Hannam (to Everyone): 5:53 PM: Len is correct. It is Guardent 360.
Ted Healy (to Everyone): 5:53 PM: Dr Beer is not taking new patients. I’m going to see Dr Julie Graff on 4/20. Thank you!
Rick Davis (to Everyone): 5:54 PM: She’s v. good too, Ted
Ted Healy (to Everyone): 5:54 PM: 👍
Jim Ward (to Everyone): 6:05 PM: I don’t have anything tonight, Peter; thanks.
Len Sierra (to Organizer(s) Only): 6:09 PM: Gotta go, gents. See ya next week!
Jimmy Greenfield (to Everyone): 6:09 PM: Peter you forgot me, but it’s ok maybe I can get some time next week.
Herb Geller (to Organizer(s) Only): 6:10 PM: I gotta go, too.