Happy Thanksgiving to all our Audience ….. may it be healthy, safe and still delicious – don’t forget the exercise! ….. from your AnCan PCa Moderators 

 

Editor’s Choice:  We discuss a rare form of prostate cancer this week – ductal adenocarcinoma!

Topics Discussed

Recurrent ductal adenocarcinoma PCa; PSMA scans; newbie needs help dealing with hot flashes… and maybe doctors?; glucocorticoid + enz trial not working; qualifying for Axumin scan insurance coverage; chemo considerations; what ‘morphed’ PCa means; calcium and parathyroid issues; lupus and breast cancer considerations; dealing mentally with long term treatment; measuring T level rasies an issue; PARP-I failing for BRCA man

Chat Log

Jim Ward (to Everyone): 4:31 PM: Could someone please type the name of this rare form of PC? Thanks!

AnCan – rick (to Everyone): 4:31 PM: ductal adenocarcinoma

Jim Ward (to Everyone): 4:32 PM: Thx!

AnCan Barniskis Room (to Everyone): 4:44 PM: 18F DCFPyL PSMA scan

Jake Hannam (to Everyone): 4:48 PM: 1 and 15 Dec – Tuesday meetings due to calendar

Jake Hannam (to Everyone): 4:56 PM: https://ancan.org/

Mark Perloe (to Everyone): 4:57 PM: venlafaxine

John I (to Everyone): 5:04 PM: Nutrition & Prostate Cancer plenary https://youtu.be/uwMZinYekGU Nutrition for Active Surveillance https://youtu.be/A7b3StqcXro Mark Perloe (to Everyone): 5:11 PM: Fred Hutchins Cancer Center in Seattle has a great playlist of exercise for prostate CA.

Mark Perloe (to Everyone): 5:18 PM: Dennis, Have you discussed consideration of AR-V7? If the mets are bone mets, are they discussing a Lu177 consideration?

Frank Fabish (to Everyone): 5:23 PM: Testosterone today 15. last month 298. Had 2nd firmagon injection today. Doc wants to continue monthly firmagon. Wants to start chemo evry 3 weeks for 6 treatments docetaxel because of metastatic PC to lungs. Then to follow up with apalutimide along with firmagon injections. PSA .78. Last month 2,82

AnCan Barniskis Room (to Everyone): 5:25 PM: Weill Cornell and Tulane are running LU177 trials for metastatic castrate resistant PCa. Also UCSF is recruiting for LU177 and Pembrolizumab trial, as well asanother one for “CTT1403” for metastic castrate resistant PCa

Mark Perloe (to Everyone): 5:29 PM: Ask your MD request a peer to peer consultation. I have always been able to get necessary testing done physician to physician under appeal. Ken do any DCF18 PYL or PSMA Ga-68 scan studies should be considered? These are better scans than Axumin.

AnCan Barniskis Room (to Everyone): 5:30 PM: Also Pheonix Molecular Imaging and U. of AZ in Tucson are recruiting for LU177 trials.

Mark Perloe (to Everyone): 5:31 PM: There is a scan study at Emory for PSMA rh. not sure what the control group is for that study.

Dennis McGuire (to Everyone): 5:32 PM: is it the LU177 – 617 or LU177 – R2 ?

Jim Ward (to Everyone): 5:53 PM: Is there a thought that the lupus is related to RT and/or ADT?

Rusty (to Everyone): 5:56 PM: Gotta run, I have a backagammon challege with my wife. I will win.

Herb Geller (to Everyone): 6:00 PM: I gotta go as well. See you all next week.

Mark Perloe (to Everyone): 6:01 PM: I thought Tony had PROSTRATE cancer.

David Muslin (Private): 6:05 PM: BTW, my “T “level is staying level at 10. She checks it everytime I do blood work.

Mark Perloe (to Everyone): 6:07 PM: I was just dropped to abi 2 pills per day. Abi primarily drops DHEA and DHEAS from androstenedione.from the adrenal. My T on both ABI and triptorelin is undetectable. Some people get their shots monthly, but it should be every 4 weeks. If you go longer, you may have higher level of T.

James Barnes (to Everyone): 6:11 PM: Happy Thanksgiving Everybody!

Jim Ward (to Everyone): 6:12 PM: Gotta hop off the call, folks. Happy Thanksgiving everyone!