Peer Advice on “Managing Your Medical Team”
We received this great email from AnCan community member Allen, with tips from a patient’s perspective on to best manage your medical team, as inspired by our webinar “Managing Your Medical Team“.
From Allen himself…
First, I live in Auburn, Alabama, which is a smaller college town with a population of about 68,000 residents, including about 30,000 students.  Until recently, we only had 1 urologist for the entire county with 175,000 residents.  I was diagnosed with PCa a year ago and started looking outside my community for more options. 
I landed at Emory University last November, but was disappointed with the level of service and attention to detail.  After they made several mistakes this spring, I fired my team at Emory in July and went with a private practice Urologist in Atlanta and Dr. John Sylvester, a prominent Radiation Oncologist in Sarasota, FL. 
I am much happier with the team I have now, but I have found it a little challenging managing a team of doctors in 3 different states and various distances from my home.  Following are some things I have learned:
1. Referrals are not as important as they used to be.  Many doctors will accept new patients without a referral.
2.  Choose the Doctor, not the Institution, to get a doctor you are comfortable with.
3.  Insurance – make sure the doctor is in your insurance network and ask your insurer if procedures are covered so you are not blindsided.
4.  Telehealth calls – ask if the Doctor can do them, especially across state lines.
5.  Keep good notes!  I found a notebook system has been a great help in organizing my notes, phone calls, and appointments.
6.  HIPAA – If you are comfortable with emailing your records and questions, that is your decision.  I would rather get my info into the right hands quickly than to worry about a lot of red tape.  Doctors may be more restricted by HIPAA rules.
7.  Patient Portals – Use them if you can.  It is an excellent and secure way to access your health records.
8.  List your questions for the Doctor prior to visits to make sure you cover your concerns.  Be concise. (and always hand the doc a copy of your questions at the start of your consult – that way everything gets answered: AnCan)
9.  Coordinate your Medical Team – Secure office and FAX numbers and other contact info and have that info available to other members of your team if needed.  This can save a lot of time and prevent delays.
10.  Insist on getting good Diagnostics Tests.  
Thanks, Allen! And as we say here at AnCan…Be your OWN best advocate!