Who Are We?
This support group is for patients and caregivers of a Sarcoidosis patient. We are all patients supporting one another.
Sarcoidosis (pronounced SAR-COY-DOE-SIS) is an inflammatory disease characterized by the formation of granulomas—tiny clumps of inflammatory cells—in one or more organs of the body. When the immune system goes into overdrive and too many of these clumps form, they can interfere with an organ’s structure and function.
This disorder affects the lungs in approximately 90% of cases, but it can affect almost any organ in the body. In some cases, the disease goes away on its own. In others, the disease may not progress but individuals will still suffer from some symptoms that challenge their quality of life. The rest of patients—up to a third of people diagnosed with the disease—will require long- term treatment. Sarcoidosis is considered chronic in people whose disease remains active for more than 2-5 years; in this population sarcoidosis can be debilitating and life-threatening.
When and Where
Our video chat virtual group meets on the 2nd Wednesday of each month at 7 pm Eastern, 6 pm Central, 5 pm Mountain and 4 pm Pacific in the AnCan Schmier Room. You can join online or by phone at +1 646 749 3127 Access # 656-182-845. See the Joining Instructions Panel above right for more information and other Country Access codes.
Our Co-Sponsors
Check out Sarcoidosis Moderator Regina Gordon's Book!
Upcoming Sarcoidosis Groups
Sarcoidosis
With this national online support group you will be able to do a video chat with others who are affected by sarcoidosis and their caregivers: if you don’t feel comfortable with video, you will be able to call-in also, but we do ask that we are able to put your first name in the room so we know who is talking.
Meet our moderators
Related Blog posts
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Living with Visual Snow – a Therapist’s Perspective with Dr. Paula Hechinger – January 20th, 2025
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Special Presentation: What if You Could Predict the Risk of Radiation Effects – Prostox and Beyond
Special Presentation: What if You Could Predict the Risk of Radiation Effects – Prostox and Beyond
Resources
Our services are free, but if you benefit then please consider a tax deductible donation.
AnCan does not provide medical advice – we do empower you to manage your own care.
Our calls are recorded and posted on this website for later listening; please note we are a peer-to-peer support group and not subject to HIPAA compliance.
