Who Are We?
This support group is for patients and caregivers of a Sarcoidosis patient. We are all patients supporting one another.
Sarcoidosis (pronounced SAR-COY-DOE-SIS) is an inflammatory disease characterized by the formation of granulomas—tiny clumps of inflammatory cells—in one or more organs of the body. When the immune system goes into overdrive and too many of these clumps form, they can interfere with an organ’s structure and function.
This disorder affects the lungs in approximately 90% of cases, but it can affect almost any organ in the body. In some cases, the disease goes away on its own. In others, the disease may not progress but individuals will still suffer from some symptoms that challenge their quality of life. The rest of patients—up to a third of people diagnosed with the disease—will require long- term treatment. Sarcoidosis is considered chronic in people whose disease remains active for more than 2-5 years; in this population sarcoidosis can be debilitating and life-threatening.
When and Where
Our video chat virtual group meets on the 2nd Wednesday of each month at 7 pm Eastern, 6 pm Central, 5 pm Mountain and 4 pm Pacific in the AnCan Schmier Room. You can join online or by phone at +1 646 749 3127 Access # 656-182-845. See the Joining Instructions Panel above right for more information and other Country Access codes.
Our Co-Sponsors
Check out Sarcoidosis Moderator Regina Gordon's Book!
Instructions for Joining a Group
Scroll Down to "HOW TO JOIN" on this page for link and other instructions.
Click HERE to sign up for email reminders for this, and other groups we offer.
All of our groups are FREE...
and you can drop in at any time!
Upcoming Sarcoidosis Groups
Sarcoidosis
With this national online support group you will be able to do a video chat with others who are affected by sarcoidosis and their caregivers: if you don’t feel comfortable with video, you will be able to call-in also, but we do ask that we are able to put your first name in the room so we know who is talking.
Meet our moderators
Related Blog posts
AnCan Advisory Board Member Honored Nationally
AnCan Advisory Board Member Honored Nationally: Genetic Counselor Lindsey Byrne honored at the National Society of Genetic Counselors Annual Awards, 2022 in Nashville
AnCan Art Friends – October 20, 2022 – Fall Trees
Art Class was back in session with Hannah teaching us about fall trees, including fun add ons to your fall escape like owls, squirrels, and a swing.
Anything goes here! While markers were the main medium, we heard about coffee, soy sauce, and gum as potential art supplies.
Summer of Art – September 15th Class – Oil Pastels
Summer of Art – September 15th Class – Oil Pastels
On September 15th, Hannah Garrison (Artist, MS activist, and moderator for our MS virtual support group) brought her magic back to AnCan. We made different types of Owls with oil pastels, and in keeping true to the education part in our tagline (Advocacy Support Education), we learned a lot about Owls. You can click here to learn some of the facts we went over!
Resources
Our services are free, but if you benefit then please consider a tax deductible donation.
AnCan does not provide medical advice – we do empower you to manage your own care.
Our calls are recorded and posted on this website for later listening; please note we are a peer-to-peer support group and not subject to HIPAA compliance.
