Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 20, 2023

Hi-Risk/Recurrent/Advanced PCa Video Chat, Feb 20, 2023

AnCan is grateful to the following sponsors for making this recording posssible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/       Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/       Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Pick: Let’s talk financial assistance … and a little mutation edcuation!! rd

Topics Discussed

PSA recurrence from mystery source; appointment made with a real GU med onc; what’s this TP53 index – allele frequency??; GU med oncs at MSKCC; chemo drives down PSA but no change in scans; buy a hard hat Dr. Kwon – Oliver Sartor’s inbound!; keep your hair with chemo; monitoring disease post salvage RT; finding financial assistance; when it comes to PSMA scans, mCRPC not the same as mHSPC; PSA up post chemo while abi challenges liver function; MPCP doesn’t provide patient feedback; PSA creeps up on IHT.

Chat Log

• David Muslinsent · 6:25 PM
  I did say that because he had a met in his girdle
• Herb Courtney sent · 6:25 PM
  Re the Axumin scan, I had a negative one at a PSA of ~6
• sent · 6:30 PM
  it took my brother well over a year before his post-radiation PSA started to drop
• AnCan – ricksent · 6:42 PM
  Bless you Norm!!!
• George Rovder, Arlington VA sent · 6:54 PM
  Thank you all. I have to go. George
• Frank Fabish Columbus OH sent · 7:11 PM
  Thanks guys for sharing. gotta go.
• Herb Courtney sent · 7:16 PM
  Thanks guys. Gotta go to dinner.
• John A sent · 7:24 PM
  Headache is getting to me so I have to go, but I want to thank everyone who wrote or called me with support since my head injury. If I wrote gibberish or wrote twice to someone sorry, I discovered I sent several emails in a blackout! If I forgot a message try again. I am slowly improving.
• gary peters sent · 7:31 PM
  I believe Rick may be referring to the Formula 509 trial
• Don Eisner sent · 7:40 PM
  Have to leave now
• Phil Snyder (Houston) sent · 7:52 PM
  Have to leave.
• Jim – Tucson sent · 8:05 PM
  Got to leave, thanks.
• Richard Tolbert sent · 8:07 PM
  Thanks Jim. One of my former reps works for Pfizer who markets XTANDI with Astellas is working with his leadership to see if they will provide assistance. In 2022 I had a grant from The Assistance Fund that covered both ORGOVYX. I was denied 2023 funding due to lack of funding.
• Pat Martin sent · 8:17 PM
  Gonna head out. See you all next week
• Stan Friedman sent · 8:26 PM
  Sorry, I’m fading and need to leave. Thanks for the input on possible MSK docs. Will keep you up to date.
• Bob G sent · 8:31 PM
  Thanks all. Gotta get up early for program where I’m matched with a cancer researcher. Going to his lab tomorrow morning.