Hi-Risk/Recurrent/Advanced PCa Video Chat, May 1, 2023
AnCan is grateful to the following sponsors for making this recording posssible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Gentics, Myovant & Telix
AnCan Foundation deeply mourns our dear Board & Advisory Board Member, Moderator and Brains Trust Brother, Herb Geller. To read more click https://mailchi.mp/ancan/remembering-…
All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/
Join our other free and drop in groups: Men (Only) Speaking Freely …1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/ Veterans Healthcare … 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/
Editor’s pick: Stay alert for morphing if your PCa acts weird – and great ACS tip if you need a hotel for medical reasons.(rd)
Topics Discussed
Diagnosed 4+5 in 2009 and still going strong; probably ain’t the abi – gotta exercise !; urinary retention; holding steadyl ; snady mouth and Sjogrens could come from Keytruda; Neulasta side effects; watch for small cell and adjust treatment; lung nodule could just be liquid; 97% continent 9 mo after surgery; seeking a Center of Excellence for RT proved wise; ACS can help with hotels; HT shrinks lesions
Chat Log
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Tim Valle and Jen Turner-Valle , Boulder, CO sent · 5:07 PMIt appears that prostate bed recurrence after RP + adjuvant RT is 13.3% (ok, almost 15%), after RP alone is 20.6% in the prostate bed, and after RT in-gland recurrence is 64%.
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Joe Comanda (Philadelphia) sent · 5:49 PM
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Joe Comanda (Philadelphia) sent · 5:49 PM
These are links for Dr. Sartor’s bio. They both have him at Tulane.
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Ben Nathanson sent · 5:50 PMIf you would like to schedule an appointment to see me at Mayo, you will need to call the Medical Oncology New Registration Phone Line: 507-284-4137 Fax Line for patient records: 507-266-4973. You will need to indicate that you are a patient of mine from Tulane, and we will help coordinate your records to them. Becky and Brigitte can help with Tulane records.
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AnCan- rick sent · 6:11 PMAndrea Harzstark https://mydoctor.kaiserpermanente.org/ncal/providers/andreaharzstark
- eric sent · 6:23 PM Have to go, but wanted to check in. I doing well excersing everyday and coaching soccer now. I would just say to the group meditate and be active and live while you do it. Talk to you guys soon
- AnCan- rick sent · 6:24 PMTx Eric – try to get by 10 minutes aftr we start so we can check in with you
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Julian – Houston sent · 6:24 PM
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Chick sent · 6:28 PMPeter, thanks for this info, and hope the dry mouth will improve.
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Joe sent · 6:30 PMa little dex never hurt a day
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Michael Wyn, Colorado Springs sent · 6:35 PMThank you everyone. Have to leave.
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Joe sent · 6:49 PMhttps://www.novartis.com/us-en/sites/novartis_us/files/netspot.pdf netspot for somatostatin
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Bob G sent · 6:51 PMGot to go. Thanks and have a good night.
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Joe sent · 7:02 PMRobert, where are you in CO?
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Frank Fabish Columbus OH sent · 7:08 PMgot to go guys. See you next week.
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Joel Blanchette Reston, VA sent · 7:09 PMVery good info. I stayed at Extended Stay America a couple of weeks agp and it cost me $200.00 for one night. When I go back I will ask for the discount. Thank you again for the info.
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TonyFig sent · 7:12 PMMany of the cancer treatment centers have social workers. If you contact the social workers, they usually have arrangements with local hotels for free rooms or discounts, plus gas cards.
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Robert Glover (Colorado) sent · 7:12 PM(contact rd@ancan.org) for Rob Glover’s email re. info on America Cancer society hotel reservation info.
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Pat Martin sent · 7:12 PMThanks again for the great help