Hi-Risk/Recurrent/Advanced PCa Video Chat, Dec 18, 2023

Once a year in December, AnCan Foundation comes to you for a donation to support our largely volunteer programs. If you’re signed up to get meeting reminders, you’ll also have seen our Annual Fundraising Letter, sent last week. If you value our recordings, please consider making a donation at https://ancan.org/donate/

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Pfizer, Janssen, Myriad Genetics, Myovant, Telix & Blue Earth Diagnostics.

Recent Webinar Recording & Sides – Let’s talk Medicare 2024! 

AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.

AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.

AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download

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AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 monthly prostate cancer meetings at https://ancan.org/prostate-cancer/          Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Join our other free and drop in groups: Men (Only) Speaking Freely…1st & 3rd Thursdays @ 8.00 pm Eastern https://ancan.org/men-speaking-freely/       Veterans Healthcare Navigation… 4th Thursday @ 8.00 pm Eastern https://ancan.org/veterans/

Editor’s Picks: Wrapping up (literally) a scary episode of lymphedema; after bladder complications, every step he takes could mean a hospital visit. (bn)

Topics Discussed

Specialized therapists bring his lymphedema under control; surprise prostate recurrence after high-dose brachytherapy; waiting for pain to fade after radiation for rectal tumor; runaway diarrhea with no intestinal bug in sight — was it Keytruda?; PSA inching up but PSMA PET draws a blank; after radiation to bladder, every step risks a hospital visit; doctors who turn their back on complications; parting ways with a medonc who won’t do doublet; adrenal glands won’t restart after long-term abiraterone

Chat Log

Ravi Subramaniam · 8:54 PM
sucralfate enema for radiation proctitis

Unknown · 9:01 PM
Psyllium is often helpful

Peter Kafka – Maui · 9:43 PM
Peter Kafka – peterk@ancan.org

Ravi Subramaniam · 9:44 PM
RaviS58@outlook.com

Unknown · 9:58 PM
Psyllium helps with diarrhea

Unknown · 9:59 PM
Psyllium can make constipation worse

Frank Fabish Columbus OH · 10:00 PM
Thanks guys. Catch you next week.

Thomas Matica WA · 10:03 PM
Psyllium also helps reduce blood glucose levels.

Thomas Matica WA · 10:05 PM
Great sesion. Thanks to all.