Hi-Risk/Recurrent/Advanced PCa Video Chat, July 1, 2024

by | Jul 3, 2024 | mCRPC, mHSPC, nmCRPC, Prostate Cancer, Recorded Groups

Intermediate Risk Prostate Cancer Graphic

Hi-Risk/Recurrent/Advanced PCa Video Chat, July 1, 2024

Apologies for the delay this week… it was a GoTo issue because we had a double session with a lot of slides. The ASCO24 presentation can be found at https://ancan.org/patient-highlights-from-the-2024-asco-annual-conference/

Men Speaking Freely is on for July 4 – we’re talking parent-child relationships with Dr. John Happy July 4th to all

If you missed any recent recordings, you’ll find a full list either on our YouTube Playlist (click above) or visit our Blog Post https://ancan.org/our-recent-blog-posts-in-case-you-missed-them/ Sign up for our Blog by checking the New Blog box at https://ancan.org/contact-us/

AnCan is grateful to the following sponsors for making this recording possible: Bayer, Foundation Medicine, Janssen, Myriad Genetics, Novartis, Telix & Blue Earth Diagnostics.
AnCan respectfully notes that it does not accept sponsored promotion. Any drugs, protocols or devices recommended in our discussions are based solely on anecdotal peer experience or clinical evidence.
AnCan cannot and does not provide medical advice. We encourage you to discuss anything you hear in our sessions with your own medical team.
AnCan reminds all Participants that Adverse Events experienced from prescribed drugs or protocols should be reported to the pharmaceutical manufacturer or the FDA Adverse Event Reporting System (FAERS). To do so call 1-800-332-1066 or download interactive FDA Form 3500 https://www.fda.gov/media/76299/download
AnCan’s Prostate Cancer Forum is back (https://ancan.org/forums). If you’d like to comment on anything you see in our Recordings or read in our Reminders, just sign up and go right ahead. You can also click on the Forum icon at the top right of the webpage.
All AnCan’s groups are free and drop-in … join us in person sometime!
Join our other free and drop in groups:

Editor’s Pick:  Dr. Jeff advises you read your medical records carefully – he’s found mistakes and typos in his! (rd) 

Topics Discussed
Solution to chafing from sweats; put a GU med onc in place before you finish up at Fort Belvoir; Promise germline test; advocating for yourself at KP; play anxiety card to get Casodex buffer; couple of Gents update us; read your medical records carefully; PSA creeps – possible post-RP recurrence – when to get PSMA PET?; testing PSA in Panama and US; how does PSMA change as disease advances; responding well to HT; good immune system can slow disease
Chat Log

  • Norm Pollock

    sent: 5:19 PM

    Monistat chafing relief powder gel

  • AnCan – rick

    sent: 5:22 PM

    https://www.hopkinsmedicine.org/profiles/results/directory/profile/3138167/channing-paller

  • Joel Blanchette, Reston, VA

    sent: 5:40 PM

    Invitae gene test

  • GARY Z

    sent: 5:42 PM

    Hi, Dr. John. I’m 66. Inova Oncology Genetic testing ~ 2018. No BRCA. No prostate cancer history immediately family (father, uncles, cousin). Mother breast cancer (survived 30 years) died of uterine cancer (BRCA, I think). After an ADT vacation three years – 2020 > 2023. Orgovyx February 2024 and scheduled to stop end of July 2024. (Received continuous ADT 2017-2018. Had intermittent ADT 2018 through 2019.) Thank you, Doctor.

  • John A

    sent: 5:49 PM

    Color includes PTEN.

  • Richard Fiske

    sent: 5:56 PM

    Long Term AnCan title: BSd

  • dan straub

    sent: 6:02 PM

    I just received my COLOR genetic test results… it does NOT analyze P10 or RB1

  • AnCan – rick

    sent: 6:04 PM

    BSd….. I like it

  • Frank Fabish Columbus OH

    sent: 6:12 PM

    Thanks everyone gotta sign off.

  • AnCan – rick

    sent: 6:35 PM

    Here’s the D’Amico paper https://www.medpagetoday.com/reading-room/asco/prostate-cancer/105340?xid=NL_ASCORR_2023-07-20&eun=g10110736d39r&pos=

  • Julian – Houston

    sent: 6:43 PM

    Thanks again everyone – Great discussion: See you next week

  • AnCan – rick

    sent: 6:44 PM

    http://nomograms.mskcc.org/Prostate/index.aspx

  • Larry

    sent: 6:44 PM

    should be cautious about rushing to see surgeon and opting for surgery before not knowing a lot more

  • Stephen

    sent: 6:49 PM

    Nope – Not a vet – I’ll be back for more info – I have time to explore my best options. Thanks guys!