Webinar: Genetic and Genomic Testing The How’s, Why’s and Where’s

Webinar: Genetic and Genomic Testing The How’s, Why’s and Where’s

On June 29th we hosted a webinar that we know you’ll love to share! Titled “Genetic and Genomic Testing The How’s, Why’s and Where’s“, you’ll get a crash course on everything genetic and genomic testing related.

 

Featuring a true dream team of experts, Pamela Munster, MD (UCSF Center for BRCA Research), Marni Brisson Tierno, PhD RN (Foundation Medicine), and Channing Paller, MD (Johns Hopkins).

 

  • When should you get tested?
  • How do you bring it up with your provider?
  • Are there any downsides?

 

Learn all this and more here:

 

Special Note: Interested in participating in the PROMISE trial? Click here to learn more and sign up.

You can also learn more about additional testing for other cancers by clicking here.

And click here to watch the video referenced by Dr. Paller during the presentation.

 

Special thanks to Janssen, Pfizer, Bayer, Foundation Medicine, and Advanced Accelerator Applications for sponsoring this webinar.

 

 

We apologize, but slides are not available for this webinar.

To SIGN UP for any of our AnCan Virtual Support groups, visit our Contact Us page.

Solo Arts Heal with Jesus Guillen

Solo Arts Heal with Jesus Guillen

AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal!

On June 22, in honor of Pride month, we were happy to have Jesus Guillen join us.

Jesus is Your Singing Advocate and founder of the HIV Long Term Survivors international network. A 37-year HIV long term survivor, Jesus is part of the first generation growing older with HIV, living with chronic pain, but still a very creative individual. The focus of his work during the last years has been on aging, chronic pain, HIV, mental health, coping skills, and cultural awareness, always with the strong background of his personal journey as an immigrant and being a member of the LGBTQI family. He is also an international speaker and a bilingual/bicultural Latino activist.

Watch the performance here:

 

To SIGN UP for any of our AnCan Virtual Support group reminders, visit our Contact Us page.

Multiple Myeloma – What’s a Myeloma Coach?

 

sally torgeson, multiple myelomaFrom Conquer Magazine’s Sally Torgeson:

“Sally Torgeson explains the help a myeloma coach can help newly diagnosed patients with [including] the vast array of information, emotional, and financial demands of this type of blood cancer.”

She was diagnosed in 2018, and is a Myeloma Coach with the Myeloma Crowd.

The beginnings of a new diagnosis can be troubling, confusing, heartbreaking – the list goes on. A new diagnosis like this is a lot to take in, to say the least. Multiple Myeloma patients can feel isolated, especially as this disease is considered rare. Suddenly you have a bajillion tons of information thrown at you from your doctor’s visits.

“All Myeloma Coaches are patients or care partners who assist newly diagnosed patients with multiple myeloma or their caregivers.”

Read Sally Torgeson’s article here to learn a little bit more about what a myeloma coach is and how a myeloma coach can help you navigate all of your new life’s aspects.

 

Summer of Art – June 16th Class – Sunflowers

Summer of Art – June 16th Class – Sunflowers

Summer of Art – June 16th Class – Sunflowers

On June 16th, we had so much fun once again with our very own Hannah Garrison (Artist, MS activist, and moderator for our MS virtual support group). We painted Van Gogh inspired sunflowers, and the results will amaze you! In fact, just check out what our community members created here.

This project is so easy, AND fun. Plus you don’t need much.

What you will need:

  • Paper (any kind will work)
  • Markers (again, any kind at all) – Or just something to draw with. Crayons, colored pencils, or just a black sharpie!

…and that’s it! (we promise)

Watch this here:

 

Funding for this project was provided by the HealtheVoices Impact Fund at the Community Foundation of New Jersey, which was funded by a contribution from Janssen Pharmaceuticals, Inc.

 

Would you like your art featured in the AnCan Art Gallery? please email me at alexa (at) ancan.org!

To SIGN UP for any of our AnCan Virtual Support groups, visit our Contact Us page.

Solo Arts Heal with Elizabeth Jameson

Solo Arts Heal with Elizabeth Jameson

AnCan and The Marsh (well renown, long-established theater company with a large following in the Bay Area and venues in San Francisco and Oakland) collaborate every 4th Wednesday of the month for Solo Arts Heal!

On April 27th, we had the pleasure of hosting Solo Arts Heal with special guest, Elizabeth Jameson!

Elizabeth Jameson is an artist, writer, and health advocate.  Since her diagnosis of multiple sclerosis, she has used medical technology to create art as a way of taking ownership of her disease. She transformed her unsettling, clinical black-and-white brain scans into work that invites others to be curious and contemplate
the beauty of the brain, and encourages conversations about what it means to live in an imperfect body. Her use of strong, vibrant colors is a way to celebrate and honor the journey of what she has had to confront—the disease of her brain—and to challenge others to question what it means to be imperfect, which is part of the universal human experience.

As her disease has progressed, her practice has evolved. She now concentrates on writing and publishing essays about illness and disability. In 2021, she created MS Confidential, a monthly web series that provides a safe space for raw and informal discussions about the chaos of daily life for people living with multiple sclerosis.

Watch the performance here:

 

To SIGN UP for any of our AnCan Virtual Support group reminders, visit our Contact Us page.