Hi-Risk/Recurrent/Advanced PCa Virtual Support – Men & Caregivers Recording, Jan 26, 2021
Editor’s Pick: What to do when your doc gives you a pink slip. …. and a very exciting BiTE trial with REGN5678! (rd)
Topics Discussed
Late stage treatment options; how PCa effects your exercise regime; what next after docetaxel stops working; SBRT for spot and gland Tx; PSA as a marker; handling pain from chemo; issues around unblinding a clinical trial; medical marijuana; handling constipation from pain meds; when youd doc kicks you out ….; meaning of MSI grades; hip replacement with bone mets; markers for small cell/NE PCa; exciting BiTE trial with REGN5678; resuming Tx after IHT;pill LHRH relugolix/orgovyx prescribed; Lupron vs Eligard
Chat Log
Ancan – rick (to Everyone): 4:28 PM: Kampel https://www.mskcc.org/cancer-care/doctors/lewis-kampel
Ancan – rick : 4:39 PM: https://ancan.org
Jim Ward (Private): 4:40 PM: HI Rick — Does AnCan sponsor a colorectal cancer support group? I checked the list of groups on AnCan.org, but missed it if there is one. Thx!
Ancan – rick (to Jim Ward): 4:43 PM: we are working on it, and we have been trying to establish for some time. But not yet ….. WE do have the Speaking Freely group and the Caregivers Group that are pan-cancer. I do know a number of resources for colorectal. We can discuss offline.
Jim Ward (Private): 4:48 PM: Sounds good, Rick. Someone I know has colon cancer (largely under control). She might well benefit from the Speaking Freely group until the colon group gets set up. Thank you! Except Speaking Freely is just for men, I think! Well, will look forward to discussing off-line.
Ancan – rick (to Everyone): 4:57 PM: Speaking Freely https://ancan.org/men-speaking-freely/
Ancan – rick (to Everyone): 4:58 PM: Stereotactic Body Radiation Therapy – SBRT
Mark Perloe (to Everyone): 5:02 PM: Tramadol 100 mg ER might be useful.
Bob McHugh (to Everyone): 5:04 PM: Meloxicam is a prescription NSAID.
Mark Perloe (to Everyone): 5:08 PM: So is tramadol. Do not take on an empty stomach for either.
Ancan – rick): 5:23 PM: Alan Bryce http://www.mayoclinic.org/biographies/bryce-alan-h-m-d/bio-20055430
Ancan – rick: 5:24 PM: Rana McKay https://profiles.ucsd.edu/rana.mckay
Bill Franklin (to Organizer(s) Only): 5:32 PM: I have to drop off guys. Take care and have a good night.
Herb Geller (to Everyone): 5:53 PM: REGN5678 (Anti-PSMAxCD28, a costimulatory bispecific antibody) with cemiplimab
Jim Ward (to Everyone): 6:01 PM: I need to hop off the call now. Have a good night, all!
Len Sierra (to Everyone): 6:01 PM: cemiplumab
Alan Moskowitz (to Everyone): 6:05 PM: Does this group meet everyTuesday at 6 pm? or does it alternate weeks or days?
Mark Perloe (to Everyone): 6:06 PM: I need to check out. Thanks and good wishes and you can all get access to Covid vaccines.
Pat Martin (to Everyone): 6:06 PM: Does anyone know anything about the FLU-BLAST study going on at Fred Hutch?
Herb Geller (to Everyone): 6:06 PM: Mondays at 8 PM EST, Tue at 6 PM EST
Alan Moskowitz (to Everyone): 6:08 PM: Both are for advanced and recurrent?
Ancan – rick (to Everyone): 6:08 PM: Yes Alan ….. both the same
Herb Geller (to Everyone): 6:09 PM: I gotta go tonight. See you all Monday.
John Ivory (to Everyone): 6:09 PM: 1st & 3rd Monday at 8 EST, 2nd & 4th Tue at 6 pm
Alan Moskowitz (to Everyone): 6:09 PM: Thanks John.
John Ivory (to Everyone): 6:11 PM: Orgovyx (relugolix) www.orgovyx.com