Hi-Risk/Recurrent/Advanced PCa Video Support – Men & Caregivers Recording, July19, 2021
To sign up for a Reminder to join in person, please visit https://ancan.org/contact-us/
For the Embr hot lalsh control gizmo, visit https://myrcc.redcapcloud.com/?#join=352a5988a6ee4219888676c627c3bd2f
Editor’s Pick If you are getting somatic NGS sequencing, is the prostate a good sampling source? (rd)
Topics Discussed
Germline genetic testing and HOXB13; is the chemo finally kicking in for Jake?; does the primary lesion represent metastatic disease?; more chemo vs clinical trial for BRCA man; Gleason 4 in your number? NO CURE!; Lu177 PSMA success; edema arising from using abi – see Len’s post on glucoccorticoids linked in Chat; being your best advocate pays; live ibn twopplaces- set up a 2nd medical team; ‘white foods’ during radiation; PSA fluctuates on abi + LHRH; switching to an AR blocker; hot flashes.
Chat Log
Pat Martin (to Everyone): 5:04 PM: Just curious…how important to follow cholestral while on aberiterone? I read through the circular included with my last delivery of my meds. It mentioned that they might be impacted. Mine have alwats been good.
Jeff Marchi (to Everyone): 5:05 PM: I just had mine tested and it was low as usual. Abi hasn’t seemed to change it for me
Len Sierra (to Everyone): 5:06 PM: Pat, It might be a good idea to have a lipid panel at least annually.
Pat Martin (to Everyone): 5:07 PM: Thanks all!!!
John A. (to Everyone): 5:07 PM: Can increase triglycerides often. Plus you’re probably on Lupron or something which can worsen the lipids. So, repeat ? once or twice a year according to your doc.
Pat Martin (to Everyone): 5:10 PM: Been asking my PCP…she says medicare doesn’t cover, but every five years, I replyI’ll pay. conversation ends. I’ll ask my MO.
Mark Perloe – Atlanta (to Everyone): 5:11 PM: They need to code as not a screening exam.
Pat Martin (to Everyone): 5:12 PM: Thanks again
John A. (to Everyone): 5:14 PM: I checked my Medicare ap but it wasn’t specific
Jake Hannam (to Everyone): 5:20 PM: https://www.invitae.com/en
Joel Blanchette – Reston, VA (to Everyone): 5:20 PM: I took the Invitae a couple of years ago.
Jake Hannam (to Everyone): 5:24 PM: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3779870/
Ted Healy- Portland, OR. (to Everyone): 5:25 PM: have to go. Thank you all!
Joel Blanchette – Reston, VA (to Everyone): 5:37 PM: I had SBRT, no major issurs
Julian Morales (to Everyone): 5:38 PM: I am having IMRT/VMAT sessions.
Mark Perloe – Atlanta (to Everyone): 5:39 PM: ViewRay MRIdian is the latest methodology. THere is another MRI Linac at MD Anderson. It is more precise than proton or cyberknife.
Sylvester Mann (to Everyone): 5:40 PM: Good seeing everyone. An emergency (not cancer related) came up. Have to go. Best regards to everyone. See you next session.
AnCan – rick (to Dennis Correia): 6:00 PM: Here you go Dennis https://rad-onc.arizona.edu/shona-t-dougherty-mb-chb-phd
Dale Barbour – San Diego (to Everyone): 6:06 PM: Thanks everyone for these illuminating discussions. Need to depart early tonight. See you all next time.
Don Price – Colorado (to Everyone): 6:15 PM: Thanks all for the discussion…leaving early.
Tracy Saville (to Everyone): 6:18 PM: great info as always. see you next week.
Len Sierra (to Everyone): 6:25 PM: In CHAARTED, the most significant survival advantage afforded to recipients of docetaxel were those with high volume metastatic disease, defined as less than 4 bone lesions or bone lesions outside the axial skeleton or presence of visceral metastasis. Low volume, or oligometastatic, patients did not significantly benefit.
AnCan – rick (to Everyone): 6:26 PM: Of course, CHAARTED – I stand corrected!
Len Sierra (to Everyone): 6:26 PM: Too many trial names to remember!!!
Mark Perloe – Atlanta (to Everyone): 6:27 PM: I have to run. Hope you all have a good week. Thanks.
Len Sierra (to Everyone): 6:33 PM: My AnCan blog on comparisons of glucocorticoid regimens with Zytiga / abiraterone: https://ancan.org/safety-of-glucocorticoid-regimens-in-combination-with-zytiga-for-mcrpc-patients/
AnCan – rick (to Everyone): 6:33 PM: Thanks Len …
Pat Martin (to Everyone): 6:36 PM: Like my MO stated let’s debulk the disease.
Pat Martin (to Everyone): 6:41 PM: I have a deal with my abi provider to ship 3 months a time so I can travel. Just have to work it out with insurance.
Paul Freda (to Everyone): 6:44 PM: Need to leave early tonight. See all next week.
Pat Martin (to Everyone): 6:58 PM: see ya all next Tuesday
Martin Wice (to Everyone): 6:59 PM: I contacted the company to be part of the study but never heard back.