Hi-Risk/Recurrent/Advanced PCa Video Chat, Nov 1, 2021
All AnCan’s groups are free and drop-in – join us in person sometime! You can find out more about this and our other 10 monthly prostate cancer groups at https://ancan.org/prostate-cancer/.
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Editor’s Pick: Can you reallly avoid significant side effects when PCa recurs – right now AnCan thinks not BUT we hope Lu177 PSMA proves us wrong! We hear from two men who hope so. (rd)
Topics Discussed
Under 60 man faces Gleason 9 recurrence; recently Dx de novo Mx with G10; recurrent man seeks alternative to systemic Tx; side effects due to enz?; mobility trial at OHSU; pre-Mx abiraterone; more than nutritional option required; EMBR Wave still seeks trial particpants; GERD/acid reflux; super broccoli and power nutrients
Chat Log
Rich Jackson (to Everyone): 5:23 PM: Next gathering is Tuesday, Nov 9 at 6pm EST
Len Sierra (to Organizer(s) Only): 5:28 PM: What was Henry’s PSA and Gleason before surgery?
Jake (to Organizer(s) Only): 5:29 PM: 4 + 5 PSA 45
Len Sierra (to Organizer(s) Only): 5:30 PM: Thanks,
Jake. He never should’ve had surgery. That’s a shame.
Herb Geller (to Organizer(s) Only): 5:31 PM: I agree. I have no clue why he got surgery with Gleason 9 and positive nodes.
Herb Geller (to Organizer(s) Only): 5:31 PM: What is his current PSA?
Len Sierra (to Organizer(s) Only): 5:31 PM: I think he said 4.8 post surgery.
Herb Geller (to Organizer(s) Only): 5:32 PM: Mark Pomerantz is publishing with Eli. But surgery was in August, right?
Peter Monaco (to Everyone): 5:35 PM: September
Jake (to Organizer(s) Only): 5:35 PM: diagnosed in august
Pat Martin (to Everyone): 5:38 PM: Hutchinson is great, in my opinion. Been with them for 7 years. I have not found any “klinkers” in the whole staff. i was Gl 9(5+4)
AnCan – rick (to Everyone): 5:41 PM: https://www.clinicaltrials.gov/ct2/show/NCT04720157?term=PSMAddition&draw=2&rank=1
Henry (and Staci) Cornelius (to Everyone): 5:45 PM: Thanks everyone for all the time spent.
Herb Geller (to Everyone): 5:45 PM: The contact for the Lu trial in Jacksonsville is Jacob.Andring@CSNF.us
George (to Everyone): 5:49 PM: Genito Urinary Medical Oncologist
Herb Geller (to Everyone): 5:49 PM: He is not a GU oncologist. Vivek Arora at Siteman seems competent.
larry meddles (to Everyone): 5:54 PM: last week someone suggested that I get a PYL pet scan, what does PYL mean?
Jake (to Everyone): 5:55 PM: Pylarify
George (to Everyone): 5:55 PM: https://www.pylarify.com
Herb Geller (to Everyone): 5:55 PM: It is a scan that will identify areas of high PSMA levels in your body.
Stephen Saft (to Everyone): 5:59 PM: I am on the elliptical now
Edward Clautice (to Everyone): 6:00 PM: my exercise experience is similar to jimmy greenfield. round 10 of docetaxel, run, lift weights. minimal side effects felt
Joe Gallo (to Everyone): 6:05 PM: Germline genetic test looks at inherited dna variants Sonomic genomic test look at the actual tissue sample.
Len Sierra (to Everyone): 6:07 PM: Treating the primary in metastatic PCa https://journals.lww.com/co-supportiveandpalliativecare/Abstract/2019/09000/Treating_the_primary_in_metastatic_prostate.16.aspx
Ted Healy- Portland, OR. (to Everyone): 6:08 PM: I had a genetic test due to my family history and stage of my cancer. turns out i carry the HOXB13 variant which predisposes all of my offspring, brother and sisters offspring to early prostate cancer. At least i can give them a heads up.
Henry (and Staci) Cornelius (to Everyone): 6:10 PM: Can genetic testing be done on tissue taken during my surgery on Sept. 21? It seems too late for that, right?
Stephen Saft (to Everyone): 6:10 PM: no oos that tisse is available for long time not too late.
Henry (and Staci) Cornelius (to Everyone): 6:11 PM: Copy that. Thanks.
Stephen Saft (to Everyone): 6:13 PM: my prostectomy tisse from 2017 has been many places
ken (to Everyone): 6:15 PM: got to sign off guys…
AnCan – rick (to Everyone): 6:30 PM: Cachexia Conference tomorrow https://www.cancersupportcommunity.org/cachexia-pfdd
George (to Everyone): 6:38 PM: https://www.urotoday.com/video-lectures/esmo-2021/video/2320-stampede-analysis-of-abiraterone-with-or-without-enzalutamide-added-to-androgen-deprivation-therapy-compared-to-adt-alone-in-high-risk-non-metastatic-prostate-cancer-patients-gerhardt-attard.html
AnCan – rick (to Everyone): 6:46 PM: joeg@ancan.org
larry meddles (to Everyone): 6:58 PM: Gotta go, have another meeting in 2 minutes. Thanks.
AnCan – rick (to Everyone): 7:01 PM: EMBR Wave trial
Ted Healy- Portland, OR. (to Everyone): 7:02 PM: Gotta go as well. Thank you all for being here and special thanks to all that make this meeting possible!
Henry (and Staci) Cornelius (to Everyone): 7:02 PM: I’m going to say goodnight to my 11 year old daughter. Be back in a bit.
Edward Clautice (to Everyone): 7:06 PM: gotta go, thanks to all
Jeff Marchi (to Everyone): 7:07 PM: https://radiomd.com/show/her/item/45742-men-get-hot-flashes-too
David Muslin (to Everyone): 7:10 PM: Gotto go men, see you next week
Frank Fabish (to Everyone): 7:11 PM: Gotta go. good night all. Thanks for insight.
Joe Gallo (to Everyone): 7:12 PM: embrlabs.com
AnCan – rick (to Everyone): 7:12 PM: https://myrcc.redcapcloud.com/?#join=352a5988a6ee4219888676c627c3bd2f That’s the trial – EMBR Wave
Herb Geller (to Everyone): 7:13 PM: Andrew Vetter (vetter@embrlabs.com) is the person to contact for the trial.
Henry (and Staci) Cornelius (to Everyone): 7:14 PM: Steve, I’ve been taking pantoprazole for GERD for 3 months and it’s been great.
Jim Stevens (to Everyone): 7:18 PM: I need to leave. Thanks for the conversation. I will be back.
Len Sierra (to Organizer(s) Only): 7:19 PM: I’ve got to drop off, guys. See y’all next week.
Jake (to Everyone): 7:19 PM: LHRH/GNRH still suppress testosterone even if ‘castrate resistant’.
Herb Geller (to Everyone): 7:25 PM: I think our friends now live in Elkins Park.
Pat Martin (to Everyone): 7:26 PM: I like drinking V8, the spicey variety.
Julian Morales-Houston (to Everyone): 7:28 PM: Have to call it a night – Very good conversation as always! thanks.
Henry (and Staci) Cornelius (to Everyone): 7:32 PM: thanks y’all!