Hi-Risk/Recurrent/Advanced PCa Video Chat, Jan 3, 2022 

Here’s to a healthy 2022 for all – to learn more about what AnCan has achieved in the past 12 months, please visit https://mailchi.mp/ancan/ancans-year-…   We also learned recently that in 2021 almost 15,000 visitors have watched 258,000 minutes in viewing time on our YouTube Channel – THANK YOU! All

AnCan’s groups are free and drop-in – join us in person sometime! You can find out more about this and our other 10 monthly prostate cancer groups at https://ancan.org/prostate-cancer/  To sign up to receive a weekly Reminder/Newsletter for this Group or others, go to https://ancan.org/contact-us/

This meeting was a little different to normal with more than 50 participants carried over from the PCF Retreat session https://www.youtube.com/watch?v=eoFWeGbeGUA  We gave time to new participants, then opened the floor.

To watch the PCF Research Retreat Review Session visit https://www.youtube.com/watch?v=eoFWeGbeGUA

Editor’s Pick: It can be really tough getting good care in Canada. We also examine intraductal issues.(rd)

Topics Discussed

‘Young’ man with low level recurrence 4 years after RP; NJ gent needs to find a GU med onc; getting treated for progressive PCa in Canada is much tougher; younger man with intraductal Dx needs better guidance; intraductal conversation gets expanded; long-term chemo continues to hold the beast at bay!; reading PSMA scans can be challenging – but leads to a result.

Chat Log

Michael Chandler (to Everyone): 6:21 PM: what does chemical recurrence mean?

Pat Martin (to Everyone): 6:21 PM: how often is he getting his PSA checked?  t

John Antonucci (to Everyone): 6:22 PM: it means your PSA comes back up Michael

Pat Martin (to Everyone): 6:22 PM: That would help you determine PSADT

Ben Nathanson (to Everyone): 6:23 PM: @Michael Chandler –‘chemical recurrence’ or ‘biochemical recurrence’  just means that your PSA, after having gone low, has risen again past a specified level

Len Sierra (to Everyone): 6:26 PM: Biochemical recurrence is defined as a rise in PSA to 0.2 ng/mL and a confirmatory value of 0.2 ng/mL or greater following radical prostatectomy

Stephen Saft (to Everyone): 6:36 PM: I am going to say good night. My son is staying at my house tonight and I am going to hang out with him for a bit. Thanks

Jake Hannam (to Organizer(s) Only): 6:37 PM: anomaly? get rechecked

Peter Kafka (to Everyone): 6:38 PM: He should see a Med Onc right away, perhaps at MSKCC.  My 2 cents.

Bill Franklin (to Organizer(s) Only): 6:39 PM: I agree, in my opinion his doctor should order a recheck anyway.  I know I would ask for one.

Joe Gallo (to Organizer(s) Only): 6:39 PM: NJU is primarily a radiation facility

Bill Franklin (to Everyone): 6:41 PM: If he got rechecked and the PSA went down again on treatment then maybe a scan is in order.

Stan Friedman (to Everyone): 6:42 PM: where in New Jersey does he live?

Rick Davis (to Everyone): 6:46 PM: joeg@ancan.org

Peter Kafka (to Everyone): 6:50 PM: If he complains of arthritis and back pain, all the more important to get a psma scan.  Just in case….

John Antonucci (to Everyone): 6:51 PM: good point Peter

Peter Kafka (to Everyone): 6:58 PM: Is HIFU covered by Canadian Medicine?  Is it considered Standard of care in Canada? I have been anemic due to ADT for 8 years. My Hemoglobin is in the low 9’s.  Eleven is pretty good . I have not been on Lupron for 5 months now.  So I think Nubeqa causes it.

Stan Friedman (to Everyone): 7:29 PM: can’t he do a televisit?

Julian Morales-Houston (to Everyone): 7:29 PM: Dr E is a fantastic Medical Oncologist and works with me to guide me thru this PCa.

John Ivory (to Everyone): 7:30 PM: I agree–try to meet Dr. E by Zoom first if you can’t afford to travel

Julian Morales-Houston (to Everyone): 7:31 PM: Dr E does televisit and in this current pandemic increase – It is preferred!

Jerry Pelfrey – Mexico (to Everyone): 7:33 PM: Gentlemen, unfortunately I must leave now.

Julian Morales-Houston (to Everyone): 7:37 PM: Eleni Efstathiou, MD is at Houston Methodist Oncology Partners 713-441-9948. You can mention my name!

Bill Franklin (to Everyone): 7:38 PM:.  Good night and Happy New Year to all!

Fred Stires (to Everyone): 7:39 PM: Any recommendations for a good medical oncologist in North New Jersey

Ken (to Everyone): 7:40 PM: Signed up for 12 more chemo cycles so it would take me to 43….  its possible!

John Ivory (to Everyone): 7:41 PM: Ken–you’re like the Superman of chemo–Chemoman!

Jake Hannam (to Everyone): 7:41 PM: You are my hero, Ken. Keep it up!

Len Sierra (to Everyone): 7:44 PM: Ken, time to apply to the Guinness Book of World Records — freakin’ amazing!

Jake Hannam (to Everyone): 7:47 PM: yes, great job Herb!

Len Sierra (to Everyone): 7:50 PM: Alk Phos reference range:  The normal range is 44 to 147 international units per liter (IU/L) or 0.73 to 2.45 microkatal per liter (µkat/L). Normal values may vary slightly from laboratory to laboratory.

Jake Hannam (to Everyone): 7:50 PM: ALP results are reported in units per liter (U/L). For men and women older than age 18, an ALP level between 44 and 147 U/L is considered normal. The normal range for children is higher than that for adults, especially for infants and teens because their bones are growing rapidly.

Frank Fabish (to Everyone): 7:53 PM: got to go guys

Peter Monaco (Private): 7:54 PM: 5 weeks since my hip replacement surgery. Anterior method is awesome. Recovery has been a breeze!

Rick Davis (to Peter Monaco): 7:54 PM: Told ya …. ;<)))))

George Rovder, Arlington VA (to Everyone): 7:55 PM: Thank you all.  George

Peter Monaco (Private): 7:55 PM: Indeed you did! Glad you were right!

don kramer (to Everyone): 7:56 PM: Thank you, Rick and Joe and all.  always beneficial to get the help along this path of barbed wire and broken glass

don kramer (to Everyone): 7:56 PM: Be Well ,  ALL.

Pat Martin (to Everyone): 7:57 PM: See ya all next Tuesday.

Julian Morales-Houston (to Everyone): 7:59 PM: Happy New Year to all!!

Michael Chandler (to Everyone): 8:00 PM: Thank you Rick and all. Happy New Year and see you next week

Martin Wice (to Everyone): 8:01 PM: Thank you.  Happy new year.