Hi-Risk/Recurrent/Advanced PCa Video Chat, July 26, 2022
AnCan APOLOGIZES FOR ANY INCONVENIENCE FROM DOWNTIME ON OUR WEBSITE THIS PAST WEEK. AS A RESULT WE ARE NOW IN THE PROCESS OF SWITCHING THE HOST.
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Editor’s Pick: No one ever asked but exactly how much chemo is required to be eligible for Pluvicto?… Jim B wants to know! And watch out for the Nurse Practitioners when your doc isn’t available(rd)
Topics Discussed
Denovo Mx Newbie experiences heart issues from treatment; when to see the NP; chemo failing – time for Pluvicto; handling anxiety; Carl’s next step – Pluvicto, rechallenging PARP, or …??; defer ADT for oligoMx spot RT; advanced PCa REQUIRES GU med onc who knows the map; how much chemo required for Pluvicto qualification; rechallenging with another radionuclide; treatments for PTEN and SPOP?
Chat Log
AnCan – rick (to Organizer(s) Only): 3:19 PM: No PTEN, TP53??
Herb Geller (to Organizer(s) Only): 3:19 PM: There must be some specific mutations
AnCan – rick (to Everyone): 3:22 PM: Great job getting your son to test, Bob!
ALFRED LATIMER (to Everyone): 3:37 PM: Bob: you have learrned an amazing amount about PCa in four months. Great job with the homework!
Len Sierra (to Organizer(s) Only): 3:44 PM: definitely!
Ben Nathanson (to Everyone): 3:56 PM: “New Era of Lu-PSMA Post Approval: Perspectives, Challenges and Future.” https://ancan.us14.list-manage.com/track/click?u=ece3f3da90f82cb974b407396&id=e11236a87f&e=48fc76c421
Julian Morales – Houston (to Everyone): 3:58 PM: need to leave early tonite – catch you all next week!
Henry (Private): 4:12 PM: Hey there Rick. This is your old buddy Henry from Alabama. I joined late and so didn’t get on the list to ask questions/speak. Is there still room, or already too full for tonight? Not urgent. It’s about my PTEN SPOP deletions with low tumor mutational burden and microsatellite stability. I’ve learned from Dr. E (thanks to you hooking us up!!!!!!) that PTEN may = abiraterone resistance. This can totally wait ‘till next week or more. Thanks!!
Peter Kafka – Maui (to Organizer(s) Only): 4:17 PM: Guys: I wil be hopping off before 2pm – Got to catch an overnight flight back to Minneapolis. My first Keytruda infusion will be with Antonarakis next Tuesday. I am optimistic. Thanks for everything. I will try and catch up with some of the more recent MN guys who have popped up in recent weeks over the summer months.
David Muslin (to Everyone): 4:22 PM: Is Bob castrate resistant?
Peter Kafka – Maui (to Everyone): 4:33 PM: Good catch Dennis!
Bob McHugh (to Everyone): 4:34 PM: Many thanks to all. Good night.
Peter Kafka – Maui (to Everyone): 4:37 PM: Chemo # 5 & 6 are the worst.
Mark Finn (to Everyone): 4:47 PM: Rick – info on “weaning off” prednisone? thanks
AnCan – rick (to Everyone): 4:49 PM: SLOWLY!!!!!!!! Please speak to your docs!!
Mark Finn (to Everyone): 4:50 PM: OK – “slowly”? 5mg every other day? 2.5/day by cutting tablet? Expected side effects if go cold turkey?: I am going off prednizone and have about 10 tabs remaining.
Ben Nathanson (to Everyone): 4:52 PM: PSMA-targeted radiopharmaceutical clinical trials in the US https://www.prostatecancer.news/2020/08/psma-targeted-radiopharmaceutical.html?utm_source=feedburner&utm_medium=email
Jim Marshall, Alexandria, VA (to Everyone): 4:53 PM: I did 2.5 prednisone for 10 days and 2.5 every other day for 10 days. Seem to work. jim marshall
AnCan – rick (to Everyone): 4:54 PM: Mark Finn …. you don’t want to go cold turkey. I know someone who lost 30# …. really screws up your adrenals.
David Muslin (to Everyone): 4:55 PM: When should Jim B check his PSA next?
Herb Geller (to Everyone): 4:56 PM: I assume they will check before the next chemo.
Jerry Pelfrey – Mexico (to Everyone): 5:14 PM: sorry I have to leave gents. Have a good week and see you next week!
Bob G (to Everyone): 5:15 PM: Have to leave. Thank you for all the great feedback & info. Will be back. Have a good night.
Kevin Bagnasco (Private): 5:17 PM. I am at a crossroad now. I have done LU-177, Actinium 8 sessions of docetaxel. Tagawa has taken me off because of the neuropathy in my fingers (nothing in toes). Scans are scheduled this Friday. I have an appointment with Tagawa on the 2nd and Petrylac on the 4th. PSA has gone from 9/9/21 (4.93 to 19.7).metastasized tumors are throughout my skeleton system.