Hi-Risk/Recurrent/Advanced PCa Video Chat, Sep 19, 2022

Are you a Vet ? – Join AnCan’s new Vet’s group to help best navigate your healthcare. It’s not about your disease – it’s about getting the best care, bennies and allowances. So please invite other Vets and Care Partners – no matter gender, condtion, or where they get care. Read more at https://ancan.org/veterans/ . Next meeting Thu, Sep 22 , free, drop-in – https://www.gotomeet.me/AnswerCancer

All AnCan’s groups are free and drop-in … join us in person sometime! You can find out more about our 12 per month prostate cancer meetings at https://ancan.org/prostate-cancer/ Sign up to receive a weekly Reminder/Newsletter for this Group or others at https://ancan.org/contact-us/

Editor’s Pick: Mental health is much on AnCan’s mind right now. It’s highlighted this week by the anxiety suffered by an older gent. (rd)

Topics Discussed

Possible recurrence needs more skilled provider; denovo Mx w. no primary inervention requires a GU med onc; early report post testicualr surgery; short report on NY conference; PIK3CA; MSI-H makes gent a candidate for Keytruda; Gen. Joel needs a new QB; mice and purple tomatoes; treating gynacomastia but how much RT??; slow, creeping PSA gives rise to anxiety in older gent; is spinal pain cancer, asks long term, younger Mx gent?; Pluvicto only holds so what’s next – Jevtana?

Chat Log

Jeff Marchi, San Francisco (Private): 5:07 PM: my brother gene has been given Casodex 2 days before his first Lupron shot. isn’t 14 days the standard?

AnCan – rick (to Jeff Marchi, San Francisco): 5:10 PM: 10-15 days

Jeff Marchi, San Francisco (Private): 5:11 PM: thanks

Herbert Geller (to Everyone): 5:20 PM: Genitourinary Medical Oncologist They deal with prostate, bladder, etc.

Joe Gallo (to Organizer(s) Only): 5:21 PM: Should have had an MRI for a targeted rather than a standard BX.

Len Sierra (to Organizer(s) Only): 5:22 PM: True, Joe.

Pat Martin (to Everyone): 5:25 PM: Genetic testing?

Len Sierra (to Organizer(s) Only): 5:26 PM: This is unbelievable. At the UT website for GU oncology this is what they say: Our team treats the following conditions: (Hint – No mention of Prostate Cancer) Bladder Kidney Penis Testis Ureter Urethra

Herbert Geller (to Organizer(s) Only): 5:26 PM: Great!

Joe Gallo (to Organizer(s) Only): 5:26 PM: Weird

AnCan – rick (to Organizer(s) Only): 5:29 PM: Vanderbilt GU https://www.vanderbilthealth.com/program/urological-cancers#radiation-oncologists

David Muslin (to Everyone): 5:45 PM: Dr. Scott Herbert MD – Hematology & Oncology –

George Rovder, Arlington VA (to Everyone): 5:45 PM: https://www.christushealth.org/find-a-doctor/scott-herbert-40870

AnCan – rick (to Everyone): 5:50 PM: GU med onc = genitourinary medical oncologist

Julian Morales – Houston (to Everyone): 5:54 PM: Dr Eleni Efstathiou at Houston Methodist

TonyFig – NYS (Private): 5:58 PM: Who was the doctor at M D Anderson you suggested?

AnCan – rick (to TonyFig – NYS): 5:59 PM: Paul Corn

AnCan – rick (to Organizer(s) Only): 6:00 PM: who produced the conference?

Len Sierra (to Organizer(s) Only): 6:02 PM: NY Presbyterian, Weill Cornell and MSK.

Len Sierra (to Organizer(s) Only): 6:10 PM: PIK3/AKT inhibitor drug in development is ipatasertib.

AnCan – rick (to Organizer(s) Only): 6:11 PM: that’s it!!!

Pat Martin (to Everyone): 6:19 PM: Thanks for the input. Have to run

George Rovder, Arlington VA (to Everyone): 6:22 PM: https://www.inova.org/doctors/joshua-m-allen-md

AnCan – rick (to Everyone): 6:30 PM: https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(21)00580-8/fulltext ipatasertib for P1K3CA ?…. also PTEN

George Rovder, Arlington VA (to Everyone): 6:36 PM: https://www.inova.org/doctors/jeanny-b-aragon-ching-md

Mike Yancey (to Organizer(s) Only): 6:44 PM: Early morning doc appointment, so gotta run. Thanks for another great call and discussion AnCan – rick (to George Rovder, Arlington VA): 6:45 PM: If I had to see a doc at Innova, it would be her. George Rovder, Arlington VA (to Everyone): 6:46 PM: Thanks Rick. Good if it’s a go with Dr. E. If not she’s local and more experienced than Joshua Allen. AnCan – rick (to George Rovder, Arlington VA): 6:46 PM: It’s always tough to switch docs within a practice. George Rovder, Arlington VA (Private): 6:47 PM: Of course. Richard Cramond – Oakton, VA (to Everyone): 7:06 PM: I have to go David Muslin (to Everyone): 7:16 PM: What about Dr. O? Julian Morales – Houston (to Everyone): 7:16 PM: Need to drop off. These discussions are only getting better!!! Ben Nathanson (to Organizer(s) Only): 7:18 PM: Sorry, must go — see you all next week Joe Gallo (to Everyone): 7:21 PM: David. 3 sessions 12Gy Mark Thompson (to Everyone): 7:38 PM: Thank you all. George Rovder, Arlington VA (to Everyone): 7:39 PM: Happy New Year. George Rovder, Arlington VA (to Everyone): 7:39 PM: Thanks to all.