Hi-Risk/Recurrent/Advanced PCa Video Chat, Oct 10, 2023
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Editor’s pick: Does it make sense to keep your cancer off guard?… & the Group talks A-fib! (rd)
Topics Discussed
AnCan loses two long term men on same day; Zometa side effects; 3+3 (??) newbie addresses mets after 20 years; Gent running out of options needs current sequencing … and new doc; does it make sense to keep the cancer off guard?; addressing A-fib; reducing visceral fat with exercise addresses sarcopenia; darolutamide refused so Gent starts with Orgovyx alone; Payer wrongly refusing NGS somatic testing; blood in urine could be RT cystitis – cystoscopy required; PCa recurs only within the gland.
Chat Log
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Matt Kriegersent · 3:32 PMHere are my recent PSA trends, it’s been a bit of a rollercoaster and I would appreciate any feedback. My treatment history is external radiation and HDR brachytherapy completed April 2020, and I was on 2 anti-androgens until June 2022. So 9 (Sept.)/2022 <.06, 1/2023 .06, 3/2023 .06, 6/2023 .35, 7/2023 .17, 8/23 .24, 9/2023 .07 I’m seeing my urologist tomorrow because a few weeks ago, for the only time other than the one biopsy and brachy, I had some blood in my urine – that was surprising but hasn’t happened again since.
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sent · 3:35 PMToo many things to do. You need to talk with the group. You need to make changes now.
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Jim Marshall, Alexandria, VAsent · 3:44 PMGenitourinary Medical Oncologist
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John Asent · 3:48 PM“LHRH antagonist drugs include relugolix (Orgovyx) and degarelix (Firmagon). These will suppress testosterone rapidly and don’t need the premedication with another drug.
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Jim Marshall, Alexandria, VAsent · 3:50 PMAbiraterone for Castration-Sensitive guys is 5MG of Prednisone
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John Asent · 3:50 PMThen, a second dug may be added to add to the testosterone suppression: abiraterone or darolutamide or enzalutamide.
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marc valenssent · 3:56 PMgenitourinary MedOnc at Fred Hutchinson in Seattle: Petros Grivas
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J. Wardsent · 4:00 PMI need to hop off now; thanks for allowing me speak about Ken Anderson.
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TonyFigsent · 4:00 PMBrandan Guercio, MD. GU Medical oncologist at Strong. https://www.urmc.rochester.edu/people/26819600-brendan-j-guercio
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TonyFigsent · 4:01 PMAsk to be assigned to him. Harvard Medical degree, MSK Fellowship
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“Thomas” Maticasent · 4:10 PMWhere are these “protocols” and/or “guidelines” that Rick mentions?
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sent · 4:16 PMThomas, NCCN has the protocols/guidelines for advanced prostate cancer, link is https://www.nccn.org/patientresources/patient-resources/guidelines-for-patients/guidelines-for-patients-details?patientGuidelineId=50
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AnCan – ricksent · 4:37 PMInterval workouts, Gents …. I’m standing in for Jimmy. I do them on the rowing machine. eg 2 min on, 2 min off.
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Geoffsent · 4:40 PMCan Jack throw out a couple of lit. references for us?
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AnCan – ricksent · 4:45 PMHere you go Geoff… A Masterclass on Reversing Visceral Fat to Increase Longevity and Reduce Chronic Disease https://podcasts.apple.com/us/podcast/a-masterclass-on-reversing-visceral-fat-to-increase/id1381257272?i=1000629888710&ign-itscg=30440&ign-itsct=catchall_podcast_ep
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Jeff G.sent · 4:45 PMI eat it with date syrup or pomegranate molasses, or maple syrup or honey. Sometimes I add roasted almond slivers, and raisins.
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Geoffsent · 4:46 PMThanks for the link!
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Jim Marshall, Alexandria, VAsent · 4:53 PMSTEVE -Say the Somatic test is REQUIRED for treatment to proceed.
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Herb Courtney, Oak View, CAsent · 4:59 PMGotta go. Thanks all. Another good learning experience.
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sent · 5:08 PMThank you all, need to sign off
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Julian – Houstonsent · 5:16 PMNeed to go! Thanks!